Sociodemographic characteristics and patient and family experience survey response biases

Enhancing Patient and Family Experience (PFE) is vital to the delivery of quality healthcare services. Sociodemographic differences affect health outcomes and experiences, but research is limited on biases in PFE survey methodology. We sought to assess survey participation rates across sociodemograp...

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Autores principales:	Lauren Brinkman, Myra Saeed, Andrew Beck, Michael Ponti-Zins, Ndidi Unaka, Mary Burkhardt, Jareen Meinzen-Derr, Samuel Hanke
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2021
Materias:	measurement patient experience pediatrics survey response bias social determinants of health Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/8a5c6eec47964c18bc12353adab6e917
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spelling	oai:doaj.org-article:8a5c6eec47964c18bc12353adab6e9172021-11-15T04:33:55ZSociodemographic characteristics and patient and family experience survey response biases2372-0247https://doaj.org/article/8a5c6eec47964c18bc12353adab6e9172021-08-01T00:00:00Zhttps://pxjournal.org/journal/vol8/iss2/6https://doaj.org/toc/2372-0247Enhancing Patient and Family Experience (PFE) is vital to the delivery of quality healthcare services. Sociodemographic differences affect health outcomes and experiences, but research is limited on biases in PFE survey methodology. We sought to assess survey participation rates across sociodemographic characteristics. This retrospective study analyzed a health system’s ambulatory PFE survey data, collected January 1 – July 31, 2019. Outcomes of interest were rates of survey response, completion, and comments. Predictors included respondent-reported race, ethnicity, language, and measure of social deprivation attached to a respondent’s home address. Addresses were geocoded to census tracts. The tract’s degree of socioeconomic deprivation was defined using the Deprivation Index (DPI). Associations between outcomes and predictors were assessed using the Chi square test.<strong> </strong>77,627 unique patient encounters were analyzed. Patients were predominantly White (76%); 5% were Hispanic; and 1% were Spanish-speaking. The overall response, completion, and comment rates were 20.1%, 17.6%, and 4.1%, respectively. There were significant differences across assessed sociodemographic characteristics in response, completion, and comment rates. White patients were most likely to respond, complete, and leave a comment. Spanish-speaking respondents and those living in the most deprived areas were more likely to respond and complete the survey, but less likely to comment than English-speaking respondents and those living in less deprived areas, respectively. PFE survey participation differs across a range of sociodemographic characteristics, potentially introducing noteworthy biases. Health systems should minimize differences in how they collect feedback and account for potential biases when responding to experience data. <strong>Experience Framework</strong> This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Policy%20%26%20Measurement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PolicyMeasurement">Access other resources</a> related to this lens.</li> </ul>Lauren BrinkmanMyra SaeedAndrew BeckMichael Ponti-ZinsNdidi UnakaMary BurkhardtJareen Meinzen-DerrSamuel HankeThe Beryl Institutearticlemeasurementpatient experiencepediatricssurvey response biassocial determinants of healthMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	measurement patient experience pediatrics survey response bias social determinants of health Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	measurement patient experience pediatrics survey response bias social determinants of health Medicine (General) R5-920 Public aspects of medicine RA1-1270 Lauren Brinkman Myra Saeed Andrew Beck Michael Ponti-Zins Ndidi Unaka Mary Burkhardt Jareen Meinzen-Derr Samuel Hanke Sociodemographic characteristics and patient and family experience survey response biases
description	Enhancing Patient and Family Experience (PFE) is vital to the delivery of quality healthcare services. Sociodemographic differences affect health outcomes and experiences, but research is limited on biases in PFE survey methodology. We sought to assess survey participation rates across sociodemographic characteristics. This retrospective study analyzed a health system’s ambulatory PFE survey data, collected January 1 – July 31, 2019. Outcomes of interest were rates of survey response, completion, and comments. Predictors included respondent-reported race, ethnicity, language, and measure of social deprivation attached to a respondent’s home address. Addresses were geocoded to census tracts. The tract’s degree of socioeconomic deprivation was defined using the Deprivation Index (DPI). Associations between outcomes and predictors were assessed using the Chi square test.<strong> </strong>77,627 unique patient encounters were analyzed. Patients were predominantly White (76%); 5% were Hispanic; and 1% were Spanish-speaking. The overall response, completion, and comment rates were 20.1%, 17.6%, and 4.1%, respectively. There were significant differences across assessed sociodemographic characteristics in response, completion, and comment rates. White patients were most likely to respond, complete, and leave a comment. Spanish-speaking respondents and those living in the most deprived areas were more likely to respond and complete the survey, but less likely to comment than English-speaking respondents and those living in less deprived areas, respectively. PFE survey participation differs across a range of sociodemographic characteristics, potentially introducing noteworthy biases. Health systems should minimize differences in how they collect feedback and account for potential biases when responding to experience data. <strong>Experience Framework</strong> This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Policy%20%26%20Measurement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PolicyMeasurement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Lauren Brinkman Myra Saeed Andrew Beck Michael Ponti-Zins Ndidi Unaka Mary Burkhardt Jareen Meinzen-Derr Samuel Hanke
author_facet	Lauren Brinkman Myra Saeed Andrew Beck Michael Ponti-Zins Ndidi Unaka Mary Burkhardt Jareen Meinzen-Derr Samuel Hanke
author_sort	Lauren Brinkman
title	Sociodemographic characteristics and patient and family experience survey response biases
title_short	Sociodemographic characteristics and patient and family experience survey response biases
title_full	Sociodemographic characteristics and patient and family experience survey response biases
title_fullStr	Sociodemographic characteristics and patient and family experience survey response biases
title_full_unstemmed	Sociodemographic characteristics and patient and family experience survey response biases
title_sort	sociodemographic characteristics and patient and family experience survey response biases
publisher	The Beryl Institute
publishDate	2021
url	https://doaj.org/article/8a5c6eec47964c18bc12353adab6e917
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_version_	1718428817235640320

Sociodemographic characteristics and patient and family experience survey response biases

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