The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic

Abstract Children that have a parent with Amyotrophic Lateral Sclerosis (ALS) suffer from the progressive loss of their beloved ones. During the COVID-19 pandemic, the difficulties faced by these children have increased. The study aimed to detect whether there were differences between the minors exp...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Ines Testoni, Lorenza Palazzo, Lucia Ronconi, Gabriella Rossi, Jenny Ferizoviku, Jose Ramon Pernia Morales
Formato:	article
Lenguaje:	EN
Publicado:	Nature Portfolio 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/8a97172cff2446f29aa4676d6d72e3dc
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:8a97172cff2446f29aa4676d6d72e3dc
record_format	dspace
spelling	oai:doaj.org-article:8a97172cff2446f29aa4676d6d72e3dc2021-12-02T18:49:27ZThe experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic10.1038/s41598-021-95338-32045-2322https://doaj.org/article/8a97172cff2446f29aa4676d6d72e3dc2021-08-01T00:00:00Zhttps://doi.org/10.1038/s41598-021-95338-3https://doaj.org/toc/2045-2322Abstract Children that have a parent with Amyotrophic Lateral Sclerosis (ALS) suffer from the progressive loss of their beloved ones. During the COVID-19 pandemic, the difficulties faced by these children have increased. The study aimed to detect whether there were differences between the minors experiencing a relative’s ALS and the minors with no experience of ALS and it aimed also to detect the impact of COVID-19 pandemic on these minors. The study involved Italian participants, in particular: the target group consisted of 38 children (7–18 years) (T0/T1); the control group consisted of 38 children (9–14 years) (T0 only). The following variables were measured: attachment with the Security Scale (SS), affects with the Positive and Negative Affect Schedule for Children (PANAS-C), behavioural problems with Strengths and Difficulties Questionnaire (SDQ), death representation with Testoni Death Representation Scale for Children (TDRS-C), self-concept with the Multidimensional Self Concept Scale (MSCS), resilience and socio-emotional skills with the Devereux Student Strengths Assessment (DESSA). The results showed higher negative affectivity (p < .001), externalising behaviours (p < .05), uncertainty in reflective function (p < .05) in the target group compared to the control one; after the COVID-19 pandemic minors in the target group showed reduced certainty of mental states (p < .05) and interpersonal and scholastic self-esteem (p < .05). The impact of ALS on these minors is significant and produces negative affect, externalizing behaviours and uncertainty of mental states. The lockdown situation due to the COVID-19 pandemic has further aggravated minors in their school and interpersonal self-esteem.Ines TestoniLorenza PalazzoLucia RonconiGabriella RossiJenny FerizovikuJose Ramon Pernia MoralesNature PortfolioarticleMedicineRScienceQENScientific Reports, Vol 11, Iss 1, Pp 1-11 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Ines Testoni Lorenza Palazzo Lucia Ronconi Gabriella Rossi Jenny Ferizoviku Jose Ramon Pernia Morales The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic
description	Abstract Children that have a parent with Amyotrophic Lateral Sclerosis (ALS) suffer from the progressive loss of their beloved ones. During the COVID-19 pandemic, the difficulties faced by these children have increased. The study aimed to detect whether there were differences between the minors experiencing a relative’s ALS and the minors with no experience of ALS and it aimed also to detect the impact of COVID-19 pandemic on these minors. The study involved Italian participants, in particular: the target group consisted of 38 children (7–18 years) (T0/T1); the control group consisted of 38 children (9–14 years) (T0 only). The following variables were measured: attachment with the Security Scale (SS), affects with the Positive and Negative Affect Schedule for Children (PANAS-C), behavioural problems with Strengths and Difficulties Questionnaire (SDQ), death representation with Testoni Death Representation Scale for Children (TDRS-C), self-concept with the Multidimensional Self Concept Scale (MSCS), resilience and socio-emotional skills with the Devereux Student Strengths Assessment (DESSA). The results showed higher negative affectivity (p < .001), externalising behaviours (p < .05), uncertainty in reflective function (p < .05) in the target group compared to the control one; after the COVID-19 pandemic minors in the target group showed reduced certainty of mental states (p < .05) and interpersonal and scholastic self-esteem (p < .05). The impact of ALS on these minors is significant and produces negative affect, externalizing behaviours and uncertainty of mental states. The lockdown situation due to the COVID-19 pandemic has further aggravated minors in their school and interpersonal self-esteem.
format	article
author	Ines Testoni Lorenza Palazzo Lucia Ronconi Gabriella Rossi Jenny Ferizoviku Jose Ramon Pernia Morales
author_facet	Ines Testoni Lorenza Palazzo Lucia Ronconi Gabriella Rossi Jenny Ferizoviku Jose Ramon Pernia Morales
author_sort	Ines Testoni
title	The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic
title_short	The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic
title_full	The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic
title_fullStr	The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic
title_full_unstemmed	The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic
title_sort	experience of children with a parent suffering from amyotrophic lateral sclerosis during the covid-19 pandemic
publisher	Nature Portfolio
publishDate	2021
url	https://doaj.org/article/8a97172cff2446f29aa4676d6d72e3dc
work_keys_str_mv	AT inestestoni theexperienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT lorenzapalazzo theexperienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT luciaronconi theexperienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT gabriellarossi theexperienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT jennyferizoviku theexperienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT joseramonperniamorales theexperienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT inestestoni experienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT lorenzapalazzo experienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT luciaronconi experienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT gabriellarossi experienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT jennyferizoviku experienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic AT joseramonperniamorales experienceofchildrenwithaparentsufferingfromamyotrophiclateralsclerosisduringthecovid19pandemic
_version_	1718377571333177344

The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic

Ejemplares similares