Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.

<h4>Introduction</h4>An estimated 1 billion people with disabilities live in low and middle income countries, a population that includes people with communication disabilities (PwCD). PwCD are a heterogenous group with a wide range of abilities who may be underrepresented in research due...

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Autores principales:	Caroline Jagoe, Caitlin McDonald, Minerva Rivas, Nora Groce
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/908dad6ff9604c6d8c8a091d5073dd4d
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spelling	oai:doaj.org-article:908dad6ff9604c6d8c8a091d5073dd4d2021-12-02T20:19:11ZDirect participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.1932-620310.1371/journal.pone.0258575https://doaj.org/article/908dad6ff9604c6d8c8a091d5073dd4d2021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0258575https://doaj.org/toc/1932-6203<h4>Introduction</h4>An estimated 1 billion people with disabilities live in low and middle income countries, a population that includes people with communication disabilities (PwCD). PwCD are a heterogenous group with a wide range of abilities who may be underrepresented in research due to the communication demands involved in research participation.<h4>Methods</h4>A critical analysis of 145 studies from a previously published systematic review was undertaken with the aim of documenting the opportunities for direct participation of PwCD in research on poverty and disability in low- and middle- income countries.<h4>Results</h4>The key finding was the high risk of underrepresentation of PwCD in research on poverty and disability in LMICs, despite low rates of explicit exclusion (n = 8; 5.5%). A total of 366 uses of data collection tools were analysed (255 unique tools). The majority of data collection tools had high communication demands (92.9%), including those measuring disability (88.6%) and those assessing poverty (100%). Only 22 studies (15.2%) specifically included PwCD. A subset of these studies (n = 14) presented disaggregated data in a way that allowed for analysis of outcomes for PwCD, suggesting a clear intersection between poverty and communication disability, with findings related to general poverty indicators, reduced access to education, low levels of employment, and additional expenditure.<h4>Conclusions</h4>The findings suggest a systematic underrepresentation of PwCD in research on poverty and disability with substantial implications for future policy and program planning, directly affecting the availability and provision of services and resources for this population. A failure to provide adequate opportunity for participation of PwCD in research risks leaving those with communication disabilities behind in the pursuit of global poverty eradication.Caroline JagoeCaitlin McDonaldMinerva RivasNora GrocePublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 10, p e0258575 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Caroline Jagoe Caitlin McDonald Minerva Rivas Nora Groce Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.
description	<h4>Introduction</h4>An estimated 1 billion people with disabilities live in low and middle income countries, a population that includes people with communication disabilities (PwCD). PwCD are a heterogenous group with a wide range of abilities who may be underrepresented in research due to the communication demands involved in research participation.<h4>Methods</h4>A critical analysis of 145 studies from a previously published systematic review was undertaken with the aim of documenting the opportunities for direct participation of PwCD in research on poverty and disability in low- and middle- income countries.<h4>Results</h4>The key finding was the high risk of underrepresentation of PwCD in research on poverty and disability in LMICs, despite low rates of explicit exclusion (n = 8; 5.5%). A total of 366 uses of data collection tools were analysed (255 unique tools). The majority of data collection tools had high communication demands (92.9%), including those measuring disability (88.6%) and those assessing poverty (100%). Only 22 studies (15.2%) specifically included PwCD. A subset of these studies (n = 14) presented disaggregated data in a way that allowed for analysis of outcomes for PwCD, suggesting a clear intersection between poverty and communication disability, with findings related to general poverty indicators, reduced access to education, low levels of employment, and additional expenditure.<h4>Conclusions</h4>The findings suggest a systematic underrepresentation of PwCD in research on poverty and disability with substantial implications for future policy and program planning, directly affecting the availability and provision of services and resources for this population. A failure to provide adequate opportunity for participation of PwCD in research risks leaving those with communication disabilities behind in the pursuit of global poverty eradication.
format	article
author	Caroline Jagoe Caitlin McDonald Minerva Rivas Nora Groce
author_facet	Caroline Jagoe Caitlin McDonald Minerva Rivas Nora Groce
author_sort	Caroline Jagoe
title	Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.
title_short	Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.
title_full	Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.
title_fullStr	Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.
title_full_unstemmed	Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.
title_sort	direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: a critical review.
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/908dad6ff9604c6d8c8a091d5073dd4d
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Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review.

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