Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.

<h4>Background</h4>People aged 85 and over are often excluded from research on the grounds of being difficult to recruit and problematic to retain. The Newcastle 85+ study successfully recruited a cohort of 854 85-year-olds to detailed health assessment at baseline and followed them up o...

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Autores principales:	Karen Davies, Andrew Kingston, Louise Robinson, Joan Hughes, Judith M Hunt, Sally A H Barker, June Edwards, Joanna Collerton, Carol Jagger, Thomas B L Kirkwood
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2014
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/90e56ba6af17444aa7ab89fd7db351f6
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spelling	oai:doaj.org-article:90e56ba6af17444aa7ab89fd7db351f62021-11-25T05:57:11ZImproving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.1932-620310.1371/journal.pone.0108370https://doaj.org/article/90e56ba6af17444aa7ab89fd7db351f62014-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0108370https://doaj.org/toc/1932-6203<h4>Background</h4>People aged 85 and over are often excluded from research on the grounds of being difficult to recruit and problematic to retain. The Newcastle 85+ study successfully recruited a cohort of 854 85-year-olds to detailed health assessment at baseline and followed them up over 3 phases spanning 5 years. This paper describes the effectiveness of its retention strategies.<h4>Methods</h4>Primary retention strategies involved meticulous management of contact information and active maintenance of contact with participants between research visits and between phases of the study. For statistical analysis, data on post-inclusion attrition over the 3 follow-up phases was separated into 'death' and 'withdrawal' categories, with sub-categories 'health' and 'non-health' reasons created for 'withdrawal'. Multinomial logistic regression was used to determine if particular socio-demographic and health characteristics were associated with post-inclusion attrition due to withdrawal at each of the 3 phase-to-phase transition points.<h4>Results</h4>For both sexes, at successive follow-up phases there was a decrease in attrition due to withdrawal and an increase due to death. Withdrawal was most prevalent between baseline and phase 2. Across the 5 years of the study total post-inclusion (post-baseline) attrition due to death accounted for a 40% (344/854) loss to cohort and total post-inclusion attrition due to withdraw a 19% (166/854) loss to cohort, with health reasons for withdrawal becoming more dominant over time. Adjusting for sex, parsimonious modelling showed only occupational class (National Statistics Socio-economic Classification) to be associated with withdrawal and only between baseline and phase 2 (routine/manual compared to managerial (OR 3.41; 95% CI [1.23 to 9.44]).<h4>Conclusion</h4>Following successful recruitment, we retained a high proportion of participants from a very old age group over 5 years of longitudinal research. No strong predictors of post-inclusion attrition due to withdrawal were found, suggesting the general effectiveness of our retention strategies.Karen DaviesAndrew KingstonLouise RobinsonJoan HughesJudith M HuntSally A H BarkerJune EdwardsJoanna CollertonCarol JaggerThomas B L KirkwoodPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 9, Iss 10, p e108370 (2014)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Karen Davies Andrew Kingston Louise Robinson Joan Hughes Judith M Hunt Sally A H Barker June Edwards Joanna Collerton Carol Jagger Thomas B L Kirkwood Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.
description	<h4>Background</h4>People aged 85 and over are often excluded from research on the grounds of being difficult to recruit and problematic to retain. The Newcastle 85+ study successfully recruited a cohort of 854 85-year-olds to detailed health assessment at baseline and followed them up over 3 phases spanning 5 years. This paper describes the effectiveness of its retention strategies.<h4>Methods</h4>Primary retention strategies involved meticulous management of contact information and active maintenance of contact with participants between research visits and between phases of the study. For statistical analysis, data on post-inclusion attrition over the 3 follow-up phases was separated into 'death' and 'withdrawal' categories, with sub-categories 'health' and 'non-health' reasons created for 'withdrawal'. Multinomial logistic regression was used to determine if particular socio-demographic and health characteristics were associated with post-inclusion attrition due to withdrawal at each of the 3 phase-to-phase transition points.<h4>Results</h4>For both sexes, at successive follow-up phases there was a decrease in attrition due to withdrawal and an increase due to death. Withdrawal was most prevalent between baseline and phase 2. Across the 5 years of the study total post-inclusion (post-baseline) attrition due to death accounted for a 40% (344/854) loss to cohort and total post-inclusion attrition due to withdraw a 19% (166/854) loss to cohort, with health reasons for withdrawal becoming more dominant over time. Adjusting for sex, parsimonious modelling showed only occupational class (National Statistics Socio-economic Classification) to be associated with withdrawal and only between baseline and phase 2 (routine/manual compared to managerial (OR 3.41; 95% CI [1.23 to 9.44]).<h4>Conclusion</h4>Following successful recruitment, we retained a high proportion of participants from a very old age group over 5 years of longitudinal research. No strong predictors of post-inclusion attrition due to withdrawal were found, suggesting the general effectiveness of our retention strategies.
format	article
author	Karen Davies Andrew Kingston Louise Robinson Joan Hughes Judith M Hunt Sally A H Barker June Edwards Joanna Collerton Carol Jagger Thomas B L Kirkwood
author_facet	Karen Davies Andrew Kingston Louise Robinson Joan Hughes Judith M Hunt Sally A H Barker June Edwards Joanna Collerton Carol Jagger Thomas B L Kirkwood
author_sort	Karen Davies
title	Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.
title_short	Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.
title_full	Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.
title_fullStr	Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.
title_full_unstemmed	Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.
title_sort	improving retention of very old participants in longitudinal research: experiences from the newcastle 85+ study.
publisher	Public Library of Science (PLoS)
publishDate	2014
url	https://doaj.org/article/90e56ba6af17444aa7ab89fd7db351f6
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Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study.

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