Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.

<h4>Background</h4>For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinio...

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Autores principales:	Stefan Essig, Roderick Skinner, Nicolas X von der Weid, Claudia E Kuehni, Gisela Michel
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2012
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/93aa9726d5ca4d40a4e29e9f51357cbe
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spelling	oai:doaj.org-article:93aa9726d5ca4d40a4e29e9f51357cbe2021-11-18T08:03:02ZFollow-up programs for childhood cancer survivors in Europe: a questionnaire survey.1932-620310.1371/journal.pone.0053201https://doaj.org/article/93aa9726d5ca4d40a4e29e9f51357cbe2012-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/pmid/23300889/pdf/?tool=EBIhttps://doaj.org/toc/1932-6203<h4>Background</h4>For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinions on different models of LTFU.<h4>Methodology/principal findings</h4>We asked 179 pediatric oncology institutions in 20 European countries to complete an online survey on LTFU available at their institution. Of 110 respondents (62% response), 66% reported having LTFU for pediatric survivors, 38% for adult survivors of childhood cancer. Availability varied widely across European regions, from 9% of institutions in Northern Europe reporting LTFU for adult survivors to 83% of institution on the British Isles reporting LTFU for pediatric survivors. Pediatric and adult LTFU were usually located in pediatric hospitals and run by pediatric oncologists. Content of follow-up included screening for adverse outcomes and health education. Important problems included lack of time, personnel and funding. Most institutions without LTFU reported that they would like to offer a program (86%).<h4>Conclusion/significance</h4>Despite general agreement on the need of follow-up care, there is still a lack of well-organized LTFU for survivors of childhood cancer across Europe.Stefan EssigRoderick SkinnerNicolas X von der WeidClaudia E KuehniGisela MichelPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 7, Iss 12, p e53201 (2012)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Stefan Essig Roderick Skinner Nicolas X von der Weid Claudia E Kuehni Gisela Michel Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.
description	<h4>Background</h4>For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinions on different models of LTFU.<h4>Methodology/principal findings</h4>We asked 179 pediatric oncology institutions in 20 European countries to complete an online survey on LTFU available at their institution. Of 110 respondents (62% response), 66% reported having LTFU for pediatric survivors, 38% for adult survivors of childhood cancer. Availability varied widely across European regions, from 9% of institutions in Northern Europe reporting LTFU for adult survivors to 83% of institution on the British Isles reporting LTFU for pediatric survivors. Pediatric and adult LTFU were usually located in pediatric hospitals and run by pediatric oncologists. Content of follow-up included screening for adverse outcomes and health education. Important problems included lack of time, personnel and funding. Most institutions without LTFU reported that they would like to offer a program (86%).<h4>Conclusion/significance</h4>Despite general agreement on the need of follow-up care, there is still a lack of well-organized LTFU for survivors of childhood cancer across Europe.
format	article
author	Stefan Essig Roderick Skinner Nicolas X von der Weid Claudia E Kuehni Gisela Michel
author_facet	Stefan Essig Roderick Skinner Nicolas X von der Weid Claudia E Kuehni Gisela Michel
author_sort	Stefan Essig
title	Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.
title_short	Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.
title_full	Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.
title_fullStr	Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.
title_full_unstemmed	Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.
title_sort	follow-up programs for childhood cancer survivors in europe: a questionnaire survey.
publisher	Public Library of Science (PLoS)
publishDate	2012
url	https://doaj.org/article/93aa9726d5ca4d40a4e29e9f51357cbe
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Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.

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