A meta-synthesis on parenting a child with autism

Khim Lynn Ooi, Yin Sin Ong, Sabrina Anne Jacob, Tahir Mehmood Khan School of Pharmacy, Monash University Malaysia, Bandar Sunway, Selangor, Malaysia Background: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional cons...

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Autores principales:	Ooi KL, Ong YS, Jacob SA, Khan TM
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2016
Materias:	autistic spectrum disorder autism childhood parents adaptation meta-synthesis Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429
Acceso en línea:	https://doaj.org/article/93ebc3a2655345ee9679c9e7c94ea69b
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spelling	oai:doaj.org-article:93ebc3a2655345ee9679c9e7c94ea69b2021-12-02T02:25:13ZA meta-synthesis on parenting a child with autism1178-2021https://doaj.org/article/93ebc3a2655345ee9679c9e7c94ea69b2016-04-01T00:00:00Zhttps://www.dovepress.com/a-meta-synthesis-on-parenting-a-child-with-autism-peer-reviewed-article-NDThttps://doaj.org/toc/1178-2021Khim Lynn Ooi, Yin Sin Ong, Sabrina Anne Jacob, Tahir Mehmood Khan School of Pharmacy, Monash University Malaysia, Bandar Sunway, Selangor, Malaysia Background: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services.Methods: A systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included.Results: A total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation.Conclusion: Health care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism. Keywords: autistic spectrum disorder, childhood, adaptation, meta-synthesisOoi KLOng YSJacob SAKhan TMDove Medical Pressarticleautistic spectrum disorderautismchildhoodparentsadaptationmeta-synthesisNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571Neurology. Diseases of the nervous systemRC346-429ENNeuropsychiatric Disease and Treatment, Vol 2016, Iss Issue 1, Pp 745-762 (2016)
institution	DOAJ
collection	DOAJ
language	EN
topic	autistic spectrum disorder autism childhood parents adaptation meta-synthesis Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429
spellingShingle	autistic spectrum disorder autism childhood parents adaptation meta-synthesis Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 Ooi KL Ong YS Jacob SA Khan TM A meta-synthesis on parenting a child with autism
description	Khim Lynn Ooi, Yin Sin Ong, Sabrina Anne Jacob, Tahir Mehmood Khan School of Pharmacy, Monash University Malaysia, Bandar Sunway, Selangor, Malaysia Background: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services.Methods: A systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included.Results: A total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation.Conclusion: Health care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism. Keywords: autistic spectrum disorder, childhood, adaptation, meta-synthesis
format	article
author	Ooi KL Ong YS Jacob SA Khan TM
author_facet	Ooi KL Ong YS Jacob SA Khan TM
author_sort	Ooi KL
title	A meta-synthesis on parenting a child with autism
title_short	A meta-synthesis on parenting a child with autism
title_full	A meta-synthesis on parenting a child with autism
title_fullStr	A meta-synthesis on parenting a child with autism
title_full_unstemmed	A meta-synthesis on parenting a child with autism
title_sort	meta-synthesis on parenting a child with autism
publisher	Dove Medical Press
publishDate	2016
url	https://doaj.org/article/93ebc3a2655345ee9679c9e7c94ea69b
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A meta-synthesis on parenting a child with autism

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