Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.

Plain English summary The COPD Patient-Powered Research Network (PPRN) asked adults with COPD and their caregivers to suggest areas for future research on COPD. Researchers analyzed 7336 survey responses and created six research areas to reflect their suggestions: (1) family/social/community researc...

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Autores principales:	Inga Gruß, Gretchen M. McCreary, Ilya Ivlev, Mary Ellen Houlihan, Barbara P. Yawn, Cara Pasquale, William Clark, Richard A. Mularski
Formato:	article
Lenguaje:	EN
Publicado:	SpringerOpen 2021
Materias:	Chronic obstructive pulmonary disease Patient-generated research topics Research agenda Patient and public involvement Open-ended survey responses Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/9be99056d00a43849dd1ba60e30b7dd8
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id	oai:doaj.org-article:9be99056d00a43849dd1ba60e30b7dd8
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spelling	oai:doaj.org-article:9be99056d00a43849dd1ba60e30b7dd82021-12-05T12:18:52ZDeveloping a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.10.1186/s41687-021-00399-72509-8020https://doaj.org/article/9be99056d00a43849dd1ba60e30b7dd82021-12-01T00:00:00Zhttps://doi.org/10.1186/s41687-021-00399-7https://doaj.org/toc/2509-8020Plain English summary The COPD Patient-Powered Research Network (PPRN) asked adults with COPD and their caregivers to suggest areas for future research on COPD. Researchers analyzed 7336 survey responses and created six research areas to reflect their suggestions: (1) family/social/community research, (2) well-being, (3) research on a cure for COPD, (4) new drugs and treatments, (5) policy concerns, and (6) natural therapies. Several research topics patients and their caregivers identified as important have received little attention from researchers in the past and could be valuable topics for researchers to explore.Inga GrußGretchen M. McCrearyIlya IvlevMary Ellen HoulihanBarbara P. YawnCara PasqualeWilliam ClarkRichard A. MularskiSpringerOpenarticleChronic obstructive pulmonary diseasePatient-generated research topicsResearch agendaPatient and public involvementOpen-ended survey responsesPublic aspects of medicineRA1-1270ENJournal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-9 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Chronic obstructive pulmonary disease Patient-generated research topics Research agenda Patient and public involvement Open-ended survey responses Public aspects of medicine RA1-1270
spellingShingle	Chronic obstructive pulmonary disease Patient-generated research topics Research agenda Patient and public involvement Open-ended survey responses Public aspects of medicine RA1-1270 Inga Gruß Gretchen M. McCreary Ilya Ivlev Mary Ellen Houlihan Barbara P. Yawn Cara Pasquale William Clark Richard A. Mularski Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.
description	Plain English summary The COPD Patient-Powered Research Network (PPRN) asked adults with COPD and their caregivers to suggest areas for future research on COPD. Researchers analyzed 7336 survey responses and created six research areas to reflect their suggestions: (1) family/social/community research, (2) well-being, (3) research on a cure for COPD, (4) new drugs and treatments, (5) policy concerns, and (6) natural therapies. Several research topics patients and their caregivers identified as important have received little attention from researchers in the past and could be valuable topics for researchers to explore.
format	article
author	Inga Gruß Gretchen M. McCreary Ilya Ivlev Mary Ellen Houlihan Barbara P. Yawn Cara Pasquale William Clark Richard A. Mularski
author_facet	Inga Gruß Gretchen M. McCreary Ilya Ivlev Mary Ellen Houlihan Barbara P. Yawn Cara Pasquale William Clark Richard A. Mularski
author_sort	Inga Gruß
title	Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.
title_short	Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.
title_full	Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.
title_fullStr	Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.
title_full_unstemmed	Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.
title_sort	developing a patient-driven chronic obstructive pulmonary disease (copd) research agenda in the u.s.
publisher	SpringerOpen
publishDate	2021
url	https://doaj.org/article/9be99056d00a43849dd1ba60e30b7dd8
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Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.

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