Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India

<h4>Background</h4> Measurement of health-related quality of life (HRQOL) of people with chronic illnesses has become extremely important as the mortality rates associated with such illnesses have decreased and survival rates have increased. Thereby, such measurements not only provide in...

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Autores principales:	Jyoti Dixit, Gaurav Jyani, Shankar Prinja, Yashpaul Sharma
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/9ef599b70ede414588e2871adde4418f
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spelling	oai:doaj.org-article:9ef599b70ede414588e2871adde4418f2021-11-04T07:42:08ZHealth related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India1932-6203https://doaj.org/article/9ef599b70ede414588e2871adde4418f2021-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8555809/?tool=EBIhttps://doaj.org/toc/1932-6203<h4>Background</h4> Measurement of health-related quality of life (HRQOL) of people with chronic illnesses has become extremely important as the mortality rates associated with such illnesses have decreased and survival rates have increased. Thereby, such measurements not only provide insights into physical, mental and social dimensions of patient’s health, but also allow monitoring of the results of interventions, complementing the traditional methods based on morbidity and mortality. <h4>Objective</h4> The present study was conducted to describe the HRQOL of patients suffering from Rheumatic Fever (RF) and Rheumatic Heart Disease (RHD), and to identify socio-demographic and clinical factors as predictors of HRQOL. <h4>Methodology</h4> A cross-sectional study was conducted to assess the HRQOL among 702 RF and RHD patients using EuroQol 5-dimensions 5-levels instrument (EQ-5D-5L), EuroQol Visual Analogue Scale and Time Trade off method. Mean EQ-5D-5L quality of life scores were calculated using EQ5D index value calculator across different stages of RF and RHD. Proportions of patients reporting problems in different attributes of EQ-5D-5L were calculated. The impact of socio-economic determinants on HRQOL was assessed. <h4>Results</h4> The mean EQ-5D-5L utility scores among RF, RHD and RHD with Congestive heart failure patients (CHF) were estimated as 0.952 [95% Confidence Interval (CI): 0.929–0.975], 0.820 [95% CI: 0.799–0.842] and 0.800 [95% CI: 0.772–0.829] respectively. The most frequently reported problem among RF/RHD patients was pain/discomfort (33.8%) followed by difficulty in performing usual activities (23.9%) patients, mobility (22.7%) and anxiety/depression (22%). Patients with an annual income of less than 50,000 Indian National Rupees (INR) reported the highest EQ-5D-5L score of 0.872, followed by those in the income group of more than INR 200,000 (0.835), INR 50,000–100,000 (0.832) and INR 100,000–200,000 (0.828). Better HRQOL was reported by RHD patients (including RHD with CHF) who underwent balloon valvotomy (0.806) as compared to valve replacement surgery (0.645). <h4>Conclusion</h4> RF and RHD significantly impact the HRQOL of patients. Interventions aiming to improve HRQOL of RF/RHD patients should focus upon ameliorating pain and implementation of secondary prevention strategies for reducing the progression from ARF to RHD and prevention of RHD-related complications.Jyoti DixitGaurav JyaniShankar PrinjaYashpaul SharmaPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 10 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Jyoti Dixit Gaurav Jyani Shankar Prinja Yashpaul Sharma Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India
description	<h4>Background</h4> Measurement of health-related quality of life (HRQOL) of people with chronic illnesses has become extremely important as the mortality rates associated with such illnesses have decreased and survival rates have increased. Thereby, such measurements not only provide insights into physical, mental and social dimensions of patient’s health, but also allow monitoring of the results of interventions, complementing the traditional methods based on morbidity and mortality. <h4>Objective</h4> The present study was conducted to describe the HRQOL of patients suffering from Rheumatic Fever (RF) and Rheumatic Heart Disease (RHD), and to identify socio-demographic and clinical factors as predictors of HRQOL. <h4>Methodology</h4> A cross-sectional study was conducted to assess the HRQOL among 702 RF and RHD patients using EuroQol 5-dimensions 5-levels instrument (EQ-5D-5L), EuroQol Visual Analogue Scale and Time Trade off method. Mean EQ-5D-5L quality of life scores were calculated using EQ5D index value calculator across different stages of RF and RHD. Proportions of patients reporting problems in different attributes of EQ-5D-5L were calculated. The impact of socio-economic determinants on HRQOL was assessed. <h4>Results</h4> The mean EQ-5D-5L utility scores among RF, RHD and RHD with Congestive heart failure patients (CHF) were estimated as 0.952 [95% Confidence Interval (CI): 0.929–0.975], 0.820 [95% CI: 0.799–0.842] and 0.800 [95% CI: 0.772–0.829] respectively. The most frequently reported problem among RF/RHD patients was pain/discomfort (33.8%) followed by difficulty in performing usual activities (23.9%) patients, mobility (22.7%) and anxiety/depression (22%). Patients with an annual income of less than 50,000 Indian National Rupees (INR) reported the highest EQ-5D-5L score of 0.872, followed by those in the income group of more than INR 200,000 (0.835), INR 50,000–100,000 (0.832) and INR 100,000–200,000 (0.828). Better HRQOL was reported by RHD patients (including RHD with CHF) who underwent balloon valvotomy (0.806) as compared to valve replacement surgery (0.645). <h4>Conclusion</h4> RF and RHD significantly impact the HRQOL of patients. Interventions aiming to improve HRQOL of RF/RHD patients should focus upon ameliorating pain and implementation of secondary prevention strategies for reducing the progression from ARF to RHD and prevention of RHD-related complications.
format	article
author	Jyoti Dixit Gaurav Jyani Shankar Prinja Yashpaul Sharma
author_facet	Jyoti Dixit Gaurav Jyani Shankar Prinja Yashpaul Sharma
author_sort	Jyoti Dixit
title	Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India
title_short	Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India
title_full	Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India
title_fullStr	Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India
title_full_unstemmed	Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India
title_sort	health related quality of life among rheumatic fever and rheumatic heart disease patients in india
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/9ef599b70ede414588e2871adde4418f
work_keys_str_mv	AT jyotidixit healthrelatedqualityoflifeamongrheumaticfeverandrheumaticheartdiseasepatientsinindia AT gauravjyani healthrelatedqualityoflifeamongrheumaticfeverandrheumaticheartdiseasepatientsinindia AT shankarprinja healthrelatedqualityoflifeamongrheumaticfeverandrheumaticheartdiseasepatientsinindia AT yashpaulsharma healthrelatedqualityoflifeamongrheumaticfeverandrheumaticheartdiseasepatientsinindia
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Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India

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