A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program

Objective: To determine the feasibility of physiotherapy led remote cardiac rehabilitation (RCR) for Adult Congenital Heart Disease (ACHD) patients and quantify the impact on physical activity levels and well-being. Method: ACHD cardiologists referred sedentary complex ACHD patients over 3 months, f...

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Autores principales:	Caroline Evans, Stephanie Curtis, Radwa Bedair, Mark Turner, Gergely Szantho, Alan Graham Stuart
Formato:	article
Lenguaje:	EN
Publicado:	Elsevier 2021
Materias:	Adult congenital heart disease Cardiac rehabilitation Diseases of the circulatory (Cardiovascular) system RC666-701
Acceso en línea:	https://doaj.org/article/9faeafc48335453fa4942269737a2439
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spelling	oai:doaj.org-article:9faeafc48335453fa4942269737a24392021-11-06T04:38:05ZA feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program2666-668510.1016/j.ijcchd.2021.100220https://doaj.org/article/9faeafc48335453fa4942269737a24392021-10-01T00:00:00Zhttp://www.sciencedirect.com/science/article/pii/S2666668521001440https://doaj.org/toc/2666-6685Objective: To determine the feasibility of physiotherapy led remote cardiac rehabilitation (RCR) for Adult Congenital Heart Disease (ACHD) patients and quantify the impact on physical activity levels and well-being. Method: ACHD cardiologists referred sedentary complex ACHD patients over 3 months, for 12-week physiotherapy-led RCR. RCR provided individualised exercise program and coaching via telephone clinics and apps. Outcomes in Self Efficacy for Exercise (SEE) and Satisfaction with Life Score (SWLC) were assessed by comparing patients' responses upon program completion to baseline. Results: 23 patients were referred, 11 completed the programme, 3 had learning difficulties. Participants were mainly female (9); age range 18–61 (median 24). Reasons for not completing RCR included; failure to attend initial appointments (7), lack of interest (1), too unwell (1), lost at follow up (1) and a death unrelated to RCR.Initially no patients were achieving the UK Physical Activity Guidelines; all 11 became more active fulfilling the guidelines. Improvements were seen in SEE with a mean increase of 23 (SD 12) and a mean improvement of 10 (SD 4) in SWLC. Participants (9) responded well to apps. Reasons for not using apps included limited phone storage capacity to download the app (1) or lack of device (2). Patients found RCR acceptable and a personalised approach was essential to improving efficacy. Conclusion: RCR is feasible, allowing patients to access specialised, personalised exercise advice and prescription and become more active, improving quality of life (QOL). Future work is required to improve uptake and extend to larger patient numbers.Caroline EvansStephanie CurtisRadwa BedairMark TurnerGergely SzanthoAlan Graham StuartElsevierarticleAdult congenital heart diseaseCardiac rehabilitationDiseases of the circulatory (Cardiovascular) systemRC666-701ENInternational Journal of Cardiology Congenital Heart Disease, Vol 5, Iss , Pp 100220- (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Adult congenital heart disease Cardiac rehabilitation Diseases of the circulatory (Cardiovascular) system RC666-701
spellingShingle	Adult congenital heart disease Cardiac rehabilitation Diseases of the circulatory (Cardiovascular) system RC666-701 Caroline Evans Stephanie Curtis Radwa Bedair Mark Turner Gergely Szantho Alan Graham Stuart A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program
description	Objective: To determine the feasibility of physiotherapy led remote cardiac rehabilitation (RCR) for Adult Congenital Heart Disease (ACHD) patients and quantify the impact on physical activity levels and well-being. Method: ACHD cardiologists referred sedentary complex ACHD patients over 3 months, for 12-week physiotherapy-led RCR. RCR provided individualised exercise program and coaching via telephone clinics and apps. Outcomes in Self Efficacy for Exercise (SEE) and Satisfaction with Life Score (SWLC) were assessed by comparing patients' responses upon program completion to baseline. Results: 23 patients were referred, 11 completed the programme, 3 had learning difficulties. Participants were mainly female (9); age range 18–61 (median 24). Reasons for not completing RCR included; failure to attend initial appointments (7), lack of interest (1), too unwell (1), lost at follow up (1) and a death unrelated to RCR.Initially no patients were achieving the UK Physical Activity Guidelines; all 11 became more active fulfilling the guidelines. Improvements were seen in SEE with a mean increase of 23 (SD 12) and a mean improvement of 10 (SD 4) in SWLC. Participants (9) responded well to apps. Reasons for not using apps included limited phone storage capacity to download the app (1) or lack of device (2). Patients found RCR acceptable and a personalised approach was essential to improving efficacy. Conclusion: RCR is feasible, allowing patients to access specialised, personalised exercise advice and prescription and become more active, improving quality of life (QOL). Future work is required to improve uptake and extend to larger patient numbers.
format	article
author	Caroline Evans Stephanie Curtis Radwa Bedair Mark Turner Gergely Szantho Alan Graham Stuart
author_facet	Caroline Evans Stephanie Curtis Radwa Bedair Mark Turner Gergely Szantho Alan Graham Stuart
author_sort	Caroline Evans
title	A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program
title_short	A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program
title_full	A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program
title_fullStr	A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program
title_full_unstemmed	A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program
title_sort	feasibility pilot- a personalised physiotherapy led remote achd cardiac rehabilitation program
publisher	Elsevier
publishDate	2021
url	https://doaj.org/article/9faeafc48335453fa4942269737a2439
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A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program

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