It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia

Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents’ need for a booklet on how to manage physical activity restrictions bas...

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Autores principales:	Sarah Bérubé, David Ogez, Jennifer Aramideh, Claudine Amesse, Claude J Bourque, Claire Longpré, Lorraine Muise, Ariane Levesque, Serge Sultan
Formato:	article
Lenguaje:	EN
Publicado:	SAGE Publishing 2021
Materias:	Psychology BF1-990
Acceso en línea:	https://doaj.org/article/a17a053e358147e1878b524134319bc1
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spelling	oai:doaj.org-article:a17a053e358147e1878b524134319bc12021-11-30T23:35:41ZIt’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia2055-102910.1177/20551029211039920https://doaj.org/article/a17a053e358147e1878b524134319bc12021-10-01T00:00:00Zhttps://doi.org/10.1177/20551029211039920https://doaj.org/toc/2055-1029Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents’ need for a booklet on how to manage physical activity restrictions based on the self-determination theory and gather their suggestions for the booklet’s improvement in a focus group. Data were analyzed using thematic analyses to highlight to what extent the needs of parents were met by the booklet, as well as their suggestions for improvement. A discussion on the methodology of the booklet’s creation is also presented.Sarah BérubéDavid OgezJennifer AramidehClaudine AmesseClaude J BourqueClaire LongpréLorraine MuiseAriane LevesqueSerge SultanSAGE PublishingarticlePsychologyBF1-990ENHealth Psychology Open, Vol 8 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Psychology BF1-990
spellingShingle	Psychology BF1-990 Sarah Bérubé David Ogez Jennifer Aramideh Claudine Amesse Claude J Bourque Claire Longpré Lorraine Muise Ariane Levesque Serge Sultan It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia
description	Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents’ need for a booklet on how to manage physical activity restrictions based on the self-determination theory and gather their suggestions for the booklet’s improvement in a focus group. Data were analyzed using thematic analyses to highlight to what extent the needs of parents were met by the booklet, as well as their suggestions for improvement. A discussion on the methodology of the booklet’s creation is also presented.
format	article
author	Sarah Bérubé David Ogez Jennifer Aramideh Claudine Amesse Claude J Bourque Claire Longpré Lorraine Muise Ariane Levesque Serge Sultan
author_facet	Sarah Bérubé David Ogez Jennifer Aramideh Claudine Amesse Claude J Bourque Claire Longpré Lorraine Muise Ariane Levesque Serge Sultan
author_sort	Sarah Bérubé
title	It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia
title_short	It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia
title_full	It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia
title_fullStr	It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia
title_full_unstemmed	It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia
title_sort	it’s difficult to say no: development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia
publisher	SAGE Publishing
publishDate	2021
url	https://doaj.org/article/a17a053e358147e1878b524134319bc1
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It’s difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia

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