Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely
Long Term Conditions (LTCs) are increasing in prevalence and cost in Western healthcare. Patients with such conditions are often classed as “disabled”, because of impacts of self-care on “activities of daily life” or secondary consequences of conditions (impairments) affecting factors such as mobili...
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The Beryl Institute
2016
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oai:doaj.org-article:a4b8108bf13d4d60be03a1afcffbdc712021-11-15T04:21:38ZCan social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely2372-0247https://doaj.org/article/a4b8108bf13d4d60be03a1afcffbdc712016-04-01T00:00:00Zhttps://pxjournal.org/journal/vol3/iss1/6https://doaj.org/toc/2372-0247Long Term Conditions (LTCs) are increasing in prevalence and cost in Western healthcare. Patients with such conditions are often classed as “disabled”, because of impacts of self-care on “activities of daily life” or secondary consequences of conditions (impairments) affecting factors such as mobility, concentration and communications. Disability needs are often ignored in the design of services and treatment of individuals. It manifests as services which some find difficult to use and lack of personal respect (discrimination) often based on lack of understanding by the healthcare profession itself (ignorance). This paper explores how Social Media (SM), an example “Assistive Technology” in an increasingly digital age, might help. The focus is Chronic Kidney Disease with two, specific illustrations in the UK beginning to spread worldwide. Support mechanisms now emerging may go well beyond healthcare, and even beyond kidney problems. They may also find additional assistance via the new, English Accessible Information Standard.Shahid MuhammadAmy ZahraHoward LeicesterHeather DavisStephen DavisThe Beryl Institutearticlediscriminationignorancedisabilitylong-term conditionssocial mediaawarenessassistive technologycommunicationMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2016) |
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discrimination ignorance disability long-term conditions social media awareness assistive technology communication Medicine (General) R5-920 Public aspects of medicine RA1-1270 |
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discrimination ignorance disability long-term conditions social media awareness assistive technology communication Medicine (General) R5-920 Public aspects of medicine RA1-1270 Shahid Muhammad Amy Zahra Howard Leicester Heather Davis Stephen Davis Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely |
description |
Long Term Conditions (LTCs) are increasing in prevalence and cost in Western healthcare. Patients with such conditions are often classed as “disabled”, because of impacts of self-care on “activities of daily life” or secondary consequences of conditions (impairments) affecting factors such as mobility, concentration and communications. Disability needs are often ignored in the design of services and treatment of individuals. It manifests as services which some find difficult to use and lack of personal respect (discrimination) often based on lack of understanding by the healthcare profession itself (ignorance). This paper explores how Social Media (SM), an example “Assistive Technology” in an increasingly digital age, might help. The focus is Chronic Kidney Disease with two, specific illustrations in the UK beginning to spread worldwide. Support mechanisms now emerging may go well beyond healthcare, and even beyond kidney problems. They may also find additional assistance via the new, English Accessible Information Standard. |
format |
article |
author |
Shahid Muhammad Amy Zahra Howard Leicester Heather Davis Stephen Davis |
author_facet |
Shahid Muhammad Amy Zahra Howard Leicester Heather Davis Stephen Davis |
author_sort |
Shahid Muhammad |
title |
Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely |
title_short |
Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely |
title_full |
Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely |
title_fullStr |
Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely |
title_full_unstemmed |
Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely |
title_sort |
can social media reduce discrimination and ignorance towards patients with long term conditions? a chronic kidney disease example in the uk and more widely |
publisher |
The Beryl Institute |
publishDate |
2016 |
url |
https://doaj.org/article/a4b8108bf13d4d60be03a1afcffbdc71 |
work_keys_str_mv |
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