SMART Markers: collecting patient-generated health data as a standardized property of health information technology

Abstract A patient-centered health system needs precise computable measurements to derive value. While validated patient-reported outcomes (PROs) are increasingly used in trials, their adoption in care remains limited and generally separated from the medical record. Further, absence of systematic pr...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Raheel Sayeed, Daniel Gottlieb, Kenneth D. Mandl
Formato:	article
Lenguaje:	EN
Publicado:	Nature Portfolio 2020
Materias:	Computer applications to medicine. Medical informatics R858-859.7
Acceso en línea:	https://doaj.org/article/a80cc95ab5dc451faedab198eaec3b14
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:a80cc95ab5dc451faedab198eaec3b14
record_format	dspace
spelling	oai:doaj.org-article:a80cc95ab5dc451faedab198eaec3b142021-12-02T14:28:17ZSMART Markers: collecting patient-generated health data as a standardized property of health information technology10.1038/s41746-020-0218-62398-6352https://doaj.org/article/a80cc95ab5dc451faedab198eaec3b142020-01-01T00:00:00Zhttps://doi.org/10.1038/s41746-020-0218-6https://doaj.org/toc/2398-6352Abstract A patient-centered health system needs precise computable measurements to derive value. While validated patient-reported outcomes (PROs) are increasingly used in trials, their adoption in care remains limited and generally separated from the medical record. Further, absence of systematic processes for patient-led data submission excludes valuable data from digital devices that can potentially aid in contextualizing health status. With prior experience in developing apps for the Patient-Reported Outcomes Measurement Information System (PROMIS), we sought to make collecting patient-generated health data (PGHD) a fundamental property of health information technology at scale, and in an interoperable, standards-compliant fashion. We build upon the open SMART on FHIR (Fast Health Interoperability Resources) specification to create SMART Markers—a mobile device software framework encapsulating functionality needed for rapid deployment of both patient- and practitioner-facing PGHD apps. We refactored previously developed PROMIS apps to use SMART Markers for handling PGHD-request creation, on-device administration, and generation of a variety of PGHD types and submission of results to a FHIR server. Validation and conformance tests were performed on the generated output and app-reusability was demonstrated across two demo servers. App developers can import SMART Markers into their existing or new apps to readily leverage an interoperable PGHD capturing functionality out of the box, without having to reinvent the wheel. Our approach enables the creation of health system integrated, context-specific experiences for both patients and practitioners.Raheel SayeedDaniel GottliebKenneth D. MandlNature PortfolioarticleComputer applications to medicine. Medical informaticsR858-859.7ENnpj Digital Medicine, Vol 3, Iss 1, Pp 1-8 (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	Computer applications to medicine. Medical informatics R858-859.7
spellingShingle	Computer applications to medicine. Medical informatics R858-859.7 Raheel Sayeed Daniel Gottlieb Kenneth D. Mandl SMART Markers: collecting patient-generated health data as a standardized property of health information technology
description	Abstract A patient-centered health system needs precise computable measurements to derive value. While validated patient-reported outcomes (PROs) are increasingly used in trials, their adoption in care remains limited and generally separated from the medical record. Further, absence of systematic processes for patient-led data submission excludes valuable data from digital devices that can potentially aid in contextualizing health status. With prior experience in developing apps for the Patient-Reported Outcomes Measurement Information System (PROMIS), we sought to make collecting patient-generated health data (PGHD) a fundamental property of health information technology at scale, and in an interoperable, standards-compliant fashion. We build upon the open SMART on FHIR (Fast Health Interoperability Resources) specification to create SMART Markers—a mobile device software framework encapsulating functionality needed for rapid deployment of both patient- and practitioner-facing PGHD apps. We refactored previously developed PROMIS apps to use SMART Markers for handling PGHD-request creation, on-device administration, and generation of a variety of PGHD types and submission of results to a FHIR server. Validation and conformance tests were performed on the generated output and app-reusability was demonstrated across two demo servers. App developers can import SMART Markers into their existing or new apps to readily leverage an interoperable PGHD capturing functionality out of the box, without having to reinvent the wheel. Our approach enables the creation of health system integrated, context-specific experiences for both patients and practitioners.
format	article
author	Raheel Sayeed Daniel Gottlieb Kenneth D. Mandl
author_facet	Raheel Sayeed Daniel Gottlieb Kenneth D. Mandl
author_sort	Raheel Sayeed
title	SMART Markers: collecting patient-generated health data as a standardized property of health information technology
title_short	SMART Markers: collecting patient-generated health data as a standardized property of health information technology
title_full	SMART Markers: collecting patient-generated health data as a standardized property of health information technology
title_fullStr	SMART Markers: collecting patient-generated health data as a standardized property of health information technology
title_full_unstemmed	SMART Markers: collecting patient-generated health data as a standardized property of health information technology
title_sort	smart markers: collecting patient-generated health data as a standardized property of health information technology
publisher	Nature Portfolio
publishDate	2020
url	https://doaj.org/article/a80cc95ab5dc451faedab198eaec3b14
work_keys_str_mv	AT raheelsayeed smartmarkerscollectingpatientgeneratedhealthdataasastandardizedpropertyofhealthinformationtechnology AT danielgottlieb smartmarkerscollectingpatientgeneratedhealthdataasastandardizedpropertyofhealthinformationtechnology AT kennethdmandl smartmarkerscollectingpatientgeneratedhealthdataasastandardizedpropertyofhealthinformationtechnology
_version_	1718391271762952192

SMART Markers: collecting patient-generated health data as a standardized property of health information technology

Ejemplares similares