Experience-based co-design: A method for patient and family engagement in system-level quality improvement

Integrating patient and family member needs, wants and preferences in healthcare is of utmost importance. However, a standardized patient and family engagement model to understand these needs, wants and preferences in order to translate into high quality improvement activities is lacking. Experience...

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Autores principales:	Bianca Fucile, Erica Bridge, Charlene Duliban, Madelyn Law
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2017
Materias:	experience-based co-design patient engagement patient-centered care patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/ab4206a83120453c82acc6ed9f1636a2
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spelling	oai:doaj.org-article:ab4206a83120453c82acc6ed9f1636a22021-11-15T04:22:04ZExperience-based co-design: A method for patient and family engagement in system-level quality improvement2372-0247https://doaj.org/article/ab4206a83120453c82acc6ed9f1636a22017-07-01T00:00:00Zhttps://pxjournal.org/journal/vol4/iss2/8https://doaj.org/toc/2372-0247Integrating patient and family member needs, wants and preferences in healthcare is of utmost importance. However, a standardized patient and family engagement model to understand these needs, wants and preferences in order to translate into high quality improvement activities is lacking. Experience based co-design (EBCD) is an approach that enables patients, family members and healthcare providers to co-design improvement initiatives together. In this study, EBCD was employed to: 1) assess the current state of information and educational resources at a local oncology center and 2) partner with patients, family members, and healthcare providers to create quality improvement initiatives targeting identified issues. Three focus groups were conducted: 1) patient and family member-specific, 2) healthcare provider-specific, and 3) all participants (including patients, family members and healthcare providers). Discussion questions were focused around current educational resources, barriers encountered throughout the cancer continuum, and recommendations for improvement. Six themes emerged from the two initial focus groups with patients and family members and healthcare providers: 1) patient-provider communication, 2) accessing information, 3) tailored information, 4) side effect information, 5) caregiver information, and 6) partners in care. Themes were presented to participants to ensure findings accurately depicted their experience and five quality improvement projects were created, aligning with the themes. This study provides an example of how EBCD helped to foster a safe environment, where patients, family members, and healthcare providers worked together in order to improve educational resources.Bianca FucileErica BridgeCharlene DulibanMadelyn LawThe Beryl Institutearticleexperience-based co-designpatient engagementpatient-centered carepatient experienceMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2017)
institution	DOAJ
collection	DOAJ
language	EN
topic	experience-based co-design patient engagement patient-centered care patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	experience-based co-design patient engagement patient-centered care patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270 Bianca Fucile Erica Bridge Charlene Duliban Madelyn Law Experience-based co-design: A method for patient and family engagement in system-level quality improvement
description	Integrating patient and family member needs, wants and preferences in healthcare is of utmost importance. However, a standardized patient and family engagement model to understand these needs, wants and preferences in order to translate into high quality improvement activities is lacking. Experience based co-design (EBCD) is an approach that enables patients, family members and healthcare providers to co-design improvement initiatives together. In this study, EBCD was employed to: 1) assess the current state of information and educational resources at a local oncology center and 2) partner with patients, family members, and healthcare providers to create quality improvement initiatives targeting identified issues. Three focus groups were conducted: 1) patient and family member-specific, 2) healthcare provider-specific, and 3) all participants (including patients, family members and healthcare providers). Discussion questions were focused around current educational resources, barriers encountered throughout the cancer continuum, and recommendations for improvement. Six themes emerged from the two initial focus groups with patients and family members and healthcare providers: 1) patient-provider communication, 2) accessing information, 3) tailored information, 4) side effect information, 5) caregiver information, and 6) partners in care. Themes were presented to participants to ensure findings accurately depicted their experience and five quality improvement projects were created, aligning with the themes. This study provides an example of how EBCD helped to foster a safe environment, where patients, family members, and healthcare providers worked together in order to improve educational resources.
format	article
author	Bianca Fucile Erica Bridge Charlene Duliban Madelyn Law
author_facet	Bianca Fucile Erica Bridge Charlene Duliban Madelyn Law
author_sort	Bianca Fucile
title	Experience-based co-design: A method for patient and family engagement in system-level quality improvement
title_short	Experience-based co-design: A method for patient and family engagement in system-level quality improvement
title_full	Experience-based co-design: A method for patient and family engagement in system-level quality improvement
title_fullStr	Experience-based co-design: A method for patient and family engagement in system-level quality improvement
title_full_unstemmed	Experience-based co-design: A method for patient and family engagement in system-level quality improvement
title_sort	experience-based co-design: a method for patient and family engagement in system-level quality improvement
publisher	The Beryl Institute
publishDate	2017
url	https://doaj.org/article/ab4206a83120453c82acc6ed9f1636a2
work_keys_str_mv	AT biancafucile experiencebasedcodesignamethodforpatientandfamilyengagementinsystemlevelqualityimprovement AT ericabridge experiencebasedcodesignamethodforpatientandfamilyengagementinsystemlevelqualityimprovement AT charleneduliban experiencebasedcodesignamethodforpatientandfamilyengagementinsystemlevelqualityimprovement AT madelynlaw experiencebasedcodesignamethodforpatientandfamilyengagementinsystemlevelqualityimprovement
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Experience-based co-design: A method for patient and family engagement in system-level quality improvement

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