The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana.
<h4>Background</h4>Research on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the belie...
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oai:doaj.org-article:aca56b0ed3a94cd48464f7b534e5751b2021-12-02T20:16:33ZThe multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana.1932-620310.1371/journal.pone.0258650https://doaj.org/article/aca56b0ed3a94cd48464f7b534e5751b2021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0258650https://doaj.org/toc/1932-6203<h4>Background</h4>Research on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the beliefs and experiences that motivate care-seeking practices among caregivers of children with CP in Ghana.<h4>Methods</h4>Semi-structured interviews were conducted with 25 caregivers, 10 medical providers, and 5 alternative providers in the Greater Accra Region. Participant interviews were analyzed using principles adapted from grounded theory. A conceptual model was constructed to illustrate salient patterns and motivational factors influencing care-seeking practices.<h4>Results</h4>Participants' experiences showed that caregivers initially sought physiotherapy and prescription medications from medical providers. Many of them then transitioned to alternative methods to search for a cure or address specific CP symptoms. Over time, most caregivers discontinued both medical and alternative care in favor of at-home treatment. A few withdrew completely from all forms of care. Cost of treatment, caregiver burden, and stigma strongly inhibited care-seeking outside the home.<h4>Conclusion</h4>Although caregivers were open to exploring a variety of treatment options, at-home treatment was preferred by long-time caregivers for its convenience, low cost, and adaptability to patient and caregiver needs.Victoria FonziBlessed SheriffSarah DalglishAdote AnumEmmanuella Dwomo AgyeiDevin DiggsLoretta EboigbePrince Gyebi OwusuKwame S SakyiPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 10, p e0258650 (2021) |
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Medicine R Science Q Victoria Fonzi Blessed Sheriff Sarah Dalglish Adote Anum Emmanuella Dwomo Agyei Devin Diggs Loretta Eboigbe Prince Gyebi Owusu Kwame S Sakyi The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana. |
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<h4>Background</h4>Research on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the beliefs and experiences that motivate care-seeking practices among caregivers of children with CP in Ghana.<h4>Methods</h4>Semi-structured interviews were conducted with 25 caregivers, 10 medical providers, and 5 alternative providers in the Greater Accra Region. Participant interviews were analyzed using principles adapted from grounded theory. A conceptual model was constructed to illustrate salient patterns and motivational factors influencing care-seeking practices.<h4>Results</h4>Participants' experiences showed that caregivers initially sought physiotherapy and prescription medications from medical providers. Many of them then transitioned to alternative methods to search for a cure or address specific CP symptoms. Over time, most caregivers discontinued both medical and alternative care in favor of at-home treatment. A few withdrew completely from all forms of care. Cost of treatment, caregiver burden, and stigma strongly inhibited care-seeking outside the home.<h4>Conclusion</h4>Although caregivers were open to exploring a variety of treatment options, at-home treatment was preferred by long-time caregivers for its convenience, low cost, and adaptability to patient and caregiver needs. |
format |
article |
author |
Victoria Fonzi Blessed Sheriff Sarah Dalglish Adote Anum Emmanuella Dwomo Agyei Devin Diggs Loretta Eboigbe Prince Gyebi Owusu Kwame S Sakyi |
author_facet |
Victoria Fonzi Blessed Sheriff Sarah Dalglish Adote Anum Emmanuella Dwomo Agyei Devin Diggs Loretta Eboigbe Prince Gyebi Owusu Kwame S Sakyi |
author_sort |
Victoria Fonzi |
title |
The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana. |
title_short |
The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana. |
title_full |
The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana. |
title_fullStr |
The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana. |
title_full_unstemmed |
The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana. |
title_sort |
multifaceted care-seeking practices among caregivers of children with cerebral palsy: perspectives from mothers and providers in ghana. |
publisher |
Public Library of Science (PLoS) |
publishDate |
2021 |
url |
https://doaj.org/article/aca56b0ed3a94cd48464f7b534e5751b |
work_keys_str_mv |
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