One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate

The health care business serves as a profession in the art of human illness. But unlike other businesses there is the human side, the patient experience. These patients are the “customers” receiving the care, but they, unlike customers at a retail store, are vulnerable and scared and must trust thei...

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Autor principal:	Jennifer Cademartori
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2019
Materias:	patient experience caregiver experience rare disease narrative emergency department primary care Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/ad1c27a56ac54cd0b0e883bb3f80e00b
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spelling	oai:doaj.org-article:ad1c27a56ac54cd0b0e883bb3f80e00b2021-11-15T04:28:38ZOne patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate2372-0247https://doaj.org/article/ad1c27a56ac54cd0b0e883bb3f80e00b2019-04-01T00:00:00Zhttps://pxjournal.org/journal/vol6/iss1/2https://doaj.org/toc/2372-0247The health care business serves as a profession in the art of human illness. But unlike other businesses there is the human side, the patient experience. These patients are the “customers” receiving the care, but they, unlike customers at a retail store, are vulnerable and scared and must trust their lives in the hands of people they don’t know. The paradigm must change to reflect how the health care business is handled from the eyes of the person receiving the care from the first office visit, through the inpatient stay, to follow up visits. Patient focused training on all levels with the goal of seamless healthcare from phone to discharge to future visits to reach Value Based Health Care will help empower healthcare professionals and meet the expectations of patients [Lateef 2011]. As a health care provider for 25 years I have witnessed health care from a support staff perspective to a bedside RN to a Nurse Practitioner caring for complicated inpatients and outpatients. But the greatest learning curve for me was that as the wife of a complicated patient, my husband.Jennifer CademartoriThe Beryl Institutearticlepatient experiencecaregiver experiencerare diseasenarrativeemergency departmentprimary careMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience caregiver experience rare disease narrative emergency department primary care Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience caregiver experience rare disease narrative emergency department primary care Medicine (General) R5-920 Public aspects of medicine RA1-1270 Jennifer Cademartori One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
description	The health care business serves as a profession in the art of human illness. But unlike other businesses there is the human side, the patient experience. These patients are the “customers” receiving the care, but they, unlike customers at a retail store, are vulnerable and scared and must trust their lives in the hands of people they don’t know. The paradigm must change to reflect how the health care business is handled from the eyes of the person receiving the care from the first office visit, through the inpatient stay, to follow up visits. Patient focused training on all levels with the goal of seamless healthcare from phone to discharge to future visits to reach Value Based Health Care will help empower healthcare professionals and meet the expectations of patients [Lateef 2011]. As a health care provider for 25 years I have witnessed health care from a support staff perspective to a bedside RN to a Nurse Practitioner caring for complicated inpatients and outpatients. But the greatest learning curve for me was that as the wife of a complicated patient, my husband.
format	article
author	Jennifer Cademartori
author_facet	Jennifer Cademartori
author_sort	Jennifer Cademartori
title	One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
title_short	One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
title_full	One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
title_fullStr	One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
title_full_unstemmed	One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
title_sort	one patient's experiences and expectations in the healthcare system: complicated and critical illness with rare diagnosis described by his advocate
publisher	The Beryl Institute
publishDate	2019
url	https://doaj.org/article/ad1c27a56ac54cd0b0e883bb3f80e00b
work_keys_str_mv	AT jennifercademartori onepatientsexperiencesandexpectationsinthehealthcaresystemcomplicatedandcriticalillnesswithrarediagnosisdescribedbyhisadvocate
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One patient's experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate

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