Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study

Objective Most research on patient experiences of rheumatoid arthritis (RA) care is performed with patients who have established RA and less often with patients with early RA. Experiences of and expectations about health care may change over time, which is why the aim was to explore patients’ percep...

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Autores principales: Ellen Landgren, Ann Bremander, Elisabet Lindqvist, Maria Nylander, Ingrid Larsson
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Lenguaje:EN
Publicado: Wiley 2021
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Acceso en línea:https://doaj.org/article/adab0cdfb247488480ea82487193b54b
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spelling oai:doaj.org-article:adab0cdfb247488480ea82487193b54b2021-11-16T09:54:20ZPatients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study2578-574510.1002/acr2.11326https://doaj.org/article/adab0cdfb247488480ea82487193b54b2021-11-01T00:00:00Zhttps://doi.org/10.1002/acr2.11326https://doaj.org/toc/2578-5745Objective Most research on patient experiences of rheumatoid arthritis (RA) care is performed with patients who have established RA and less often with patients with early RA. Experiences of and expectations about health care may change over time, which is why the aim was to explore patients’ perceptions of person‐centered care (PCC) early in the RA disease course. Methods Thirty‐one patients with early RA were interviewed in this qualitative study. An abductive qualitative content analysis was conducted based on the framework of McCormack and McCance (1,2). The four constructs, prerequisites, care environment, person‐centered processes, and person‐centered outcomes, constituted the four categories in the deductive part of the study. An inductive analysis generated 11 subcategories exploring the content of PCC. Results For patients with early RA, PCC was described in terms of 1) prerequisites including being treated with respect, meeting dedicated health care professionals, and meeting professional competence; 2) care environment including having access to a multidisciplinary team, having access to health care, and encountering a supportive organization; 3) person‐centered processes including being listened to, being supported, and being involved in decision‐making; and 4) person‐centered outcomes including being satisfied with received health care and achieving optimal health. Conclusion Genuine PCC is important for patients early in the RA disease course, supporting the implementation of a person‐centered approach during all stages in the health care system. This study contributes to information about how to further develop person‐centeredness in rheumatology care.Ellen LandgrenAnn BremanderElisabet LindqvistMaria NylanderIngrid LarssonWileyarticleDiseases of the musculoskeletal systemRC925-935ENACR Open Rheumatology, Vol 3, Iss 11, Pp 788-795 (2021)
institution DOAJ
collection DOAJ
language EN
topic Diseases of the musculoskeletal system
RC925-935
spellingShingle Diseases of the musculoskeletal system
RC925-935
Ellen Landgren
Ann Bremander
Elisabet Lindqvist
Maria Nylander
Ingrid Larsson
Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study
description Objective Most research on patient experiences of rheumatoid arthritis (RA) care is performed with patients who have established RA and less often with patients with early RA. Experiences of and expectations about health care may change over time, which is why the aim was to explore patients’ perceptions of person‐centered care (PCC) early in the RA disease course. Methods Thirty‐one patients with early RA were interviewed in this qualitative study. An abductive qualitative content analysis was conducted based on the framework of McCormack and McCance (1,2). The four constructs, prerequisites, care environment, person‐centered processes, and person‐centered outcomes, constituted the four categories in the deductive part of the study. An inductive analysis generated 11 subcategories exploring the content of PCC. Results For patients with early RA, PCC was described in terms of 1) prerequisites including being treated with respect, meeting dedicated health care professionals, and meeting professional competence; 2) care environment including having access to a multidisciplinary team, having access to health care, and encountering a supportive organization; 3) person‐centered processes including being listened to, being supported, and being involved in decision‐making; and 4) person‐centered outcomes including being satisfied with received health care and achieving optimal health. Conclusion Genuine PCC is important for patients early in the RA disease course, supporting the implementation of a person‐centered approach during all stages in the health care system. This study contributes to information about how to further develop person‐centeredness in rheumatology care.
format article
author Ellen Landgren
Ann Bremander
Elisabet Lindqvist
Maria Nylander
Ingrid Larsson
author_facet Ellen Landgren
Ann Bremander
Elisabet Lindqvist
Maria Nylander
Ingrid Larsson
author_sort Ellen Landgren
title Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study
title_short Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study
title_full Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study
title_fullStr Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study
title_full_unstemmed Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study
title_sort patients’ perceptions of person‐centered care in early rheumatoid arthritis: a qualitative study
publisher Wiley
publishDate 2021
url https://doaj.org/article/adab0cdfb247488480ea82487193b54b
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