Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report

Abstract Background The aim of this study is to highlight the importance of having a central case managing team and to make some strong recommendations that can have a positive impact on the lives of hematopoietic stem cell transplantation survivors. Case presentation A 2-year-old white child who wa...

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Autores principales:	Jaleel Mohammed, Hadeel R. Bakhsh, Cliodhna Craig, Shahrukh K. Hashmi
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Occupational therapy HSCT Rehabilitation Graft-versus-host disease Case report Medicine R
Acceso en línea:	https://doaj.org/article/af5113327e304ce68e274e7a14205c16
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spelling	oai:doaj.org-article:af5113327e304ce68e274e7a14205c162021-11-08T11:13:56ZRecommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report10.1186/s13256-021-03126-41752-1947https://doaj.org/article/af5113327e304ce68e274e7a14205c162021-11-01T00:00:00Zhttps://doi.org/10.1186/s13256-021-03126-4https://doaj.org/toc/1752-1947Abstract Background The aim of this study is to highlight the importance of having a central case managing team and to make some strong recommendations that can have a positive impact on the lives of hematopoietic stem cell transplantation survivors. Case presentation A 2-year-old white child who was diagnosed with acute myeloid leukemia and underwent hematopoietic stem cell transplantation in May 2014 relapsed in March 2017, and underwent a second hematopoietic stem cell transplantation in July 2017, at which point he suffered from graft-versus-host disease. This case report presents his journey and that of his caregivers, and the challenges they faced as patient and parents in pursuit of optimal quality of life during the survivorship period. The case study emphasizes not only the challenges faced by patients but also identified gaps in post-hematopoietic cell transplantation care service delivery. Furthermore, the case study also highlights the importance of involving caregivers in post-transplant care and having a better communication process and service facilitation process throughout the journey of the patient and their carer. Conclusions Transplant centers have a duty of care, and a proactive approach with a well-defined pathway is needed for managing post-transplant complications and reducing stress and anxiety for patients and their caregivers.Jaleel MohammedHadeel R. BakhshCliodhna CraigShahrukh K. HashmiBMCarticleOccupational therapyHSCTRehabilitationGraft-versus-host diseaseCase reportMedicineRENJournal of Medical Case Reports, Vol 15, Iss 1, Pp 1-7 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Occupational therapy HSCT Rehabilitation Graft-versus-host disease Case report Medicine R
spellingShingle	Occupational therapy HSCT Rehabilitation Graft-versus-host disease Case report Medicine R Jaleel Mohammed Hadeel R. Bakhsh Cliodhna Craig Shahrukh K. Hashmi Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report
description	Abstract Background The aim of this study is to highlight the importance of having a central case managing team and to make some strong recommendations that can have a positive impact on the lives of hematopoietic stem cell transplantation survivors. Case presentation A 2-year-old white child who was diagnosed with acute myeloid leukemia and underwent hematopoietic stem cell transplantation in May 2014 relapsed in March 2017, and underwent a second hematopoietic stem cell transplantation in July 2017, at which point he suffered from graft-versus-host disease. This case report presents his journey and that of his caregivers, and the challenges they faced as patient and parents in pursuit of optimal quality of life during the survivorship period. The case study emphasizes not only the challenges faced by patients but also identified gaps in post-hematopoietic cell transplantation care service delivery. Furthermore, the case study also highlights the importance of involving caregivers in post-transplant care and having a better communication process and service facilitation process throughout the journey of the patient and their carer. Conclusions Transplant centers have a duty of care, and a proactive approach with a well-defined pathway is needed for managing post-transplant complications and reducing stress and anxiety for patients and their caregivers.
format	article
author	Jaleel Mohammed Hadeel R. Bakhsh Cliodhna Craig Shahrukh K. Hashmi
author_facet	Jaleel Mohammed Hadeel R. Bakhsh Cliodhna Craig Shahrukh K. Hashmi
author_sort	Jaleel Mohammed
title	Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report
title_short	Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report
title_full	Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report
title_fullStr	Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report
title_full_unstemmed	Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report
title_sort	recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report
publisher	BMC
publishDate	2021
url	https://doaj.org/article/af5113327e304ce68e274e7a14205c16
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Recommendations on service delivery to help reduce suffering and anxiety in patients and caregivers post-hematopoietic cell transplantation: a case report

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