Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme

Objective: To assess the results of the health condition management service provided for children with sickle cell disease (SCD). Methods: a cross-sectional study of the health condition management service offered to newly diagnosed children with SCD treated between January 2016 and December 2019 a...

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Autores principales:	Elaine F. DIAS, Fernanda T. DUQUE, Ronara C. GROIA-VELOSO, Mariana G. NASCIMENTO
Formato:	article
Lenguaje:	EN PT
Publicado:	Sociedade Brasileira de Farmácia Hospitalar e Serviços de Saúde 2021
Materias:	Public aspects of medicine RA1-1270 Pharmacy and materia medica RS1-441 Therapeutics. Pharmacology RM1-950
Acceso en línea:	https://doaj.org/article/b1186c21f29147e8800afbae11357694
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spelling	oai:doaj.org-article:b1186c21f29147e8800afbae113576942021-11-28T02:42:42ZDescrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme10.30968/rbfhss.2021.123.06382179-59242316-7750https://doaj.org/article/b1186c21f29147e8800afbae113576942021-07-01T00:00:00Zhttps://www.rbfhss.org.br/sbrafh/article/view/638https://doaj.org/toc/2179-5924https://doaj.org/toc/2316-7750 Objective: To assess the results of the health condition management service provided for children with sickle cell disease (SCD). Methods: a cross-sectional study of the health condition management service offered to newly diagnosed children with SCD treated between January 2016 and December 2019 at the Blood Center in Belo Horizonte, Brazil. The service was provided by a clinical pharmacist and an academic from the pharmacy course, with data from the initial consultation (start of drug use) performed in a pharmacist’s office and telephone contact carried out eight days later. All children seen at the service were evaluated, and their demographic characteristics, compliance with the beginning of the use of prophylactic drugs for sickle cell disease (phenoxymethylpenicillin and folic acid) according to the protocol of the Ministry of Health (within 90 days after birth), and documented reason in case of non-compliance. The doubts regarding the medications and the standardized interventions of the service to the children´s guardians were also described. The difference in the distribution of variables in the adequacy and non-adequacy group to the MS protocol was assessed using Pearson’s chi-square test (categorical) and Mann-Whitney (numerical). Results: In the SCD condition management service, all children together with their guardians (N = 298) had their first consultation with the pharmacist (initial dispensation day), however, only 185 (62.1%) participated in the pharmaceutical service by telephone (eight days after the initial dispensing). Approximately 88.3% of children started using drugs for sickle cell disease according to the protocol of the Ministry of Health; the most frequent reason for non-compliance was the late diagnosis in the complementary health system (22.9%). The guardians pointed out 63 doubts about the medications, highlighting their non-acceptance by the child (28.6%), and for all doubts standard pharmaceutical guidelines were provided in the service. Conclusion: It was identified that the health condition management service provided is relevant, since most of those responsible for the children with SCD had doubts about their medication after the administration of medications began. The pharmacist contributes positively to the pharmacotherapeutic management of SCD, promoting empowerment about the correct use of medicines. Elaine F. DIASFernanda T. DUQUERonara C. GROIA-VELOSOMariana G. NASCIMENTOSociedade Brasileira de Farmácia Hospitalar e Serviços de SaúdearticlePublic aspects of medicineRA1-1270Pharmacy and materia medicaRS1-441Therapeutics. PharmacologyRM1-950ENPTRevista Brasileira de Farmácia Hospitalar e Serviços de Saúde, Vol 12, Iss 3 (2021)
institution	DOAJ
collection	DOAJ
language	EN PT
topic	Public aspects of medicine RA1-1270 Pharmacy and materia medica RS1-441 Therapeutics. Pharmacology RM1-950
spellingShingle	Public aspects of medicine RA1-1270 Pharmacy and materia medica RS1-441 Therapeutics. Pharmacology RM1-950 Elaine F. DIAS Fernanda T. DUQUE Ronara C. GROIA-VELOSO Mariana G. NASCIMENTO Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme
description	Objective: To assess the results of the health condition management service provided for children with sickle cell disease (SCD). Methods: a cross-sectional study of the health condition management service offered to newly diagnosed children with SCD treated between January 2016 and December 2019 at the Blood Center in Belo Horizonte, Brazil. The service was provided by a clinical pharmacist and an academic from the pharmacy course, with data from the initial consultation (start of drug use) performed in a pharmacist’s office and telephone contact carried out eight days later. All children seen at the service were evaluated, and their demographic characteristics, compliance with the beginning of the use of prophylactic drugs for sickle cell disease (phenoxymethylpenicillin and folic acid) according to the protocol of the Ministry of Health (within 90 days after birth), and documented reason in case of non-compliance. The doubts regarding the medications and the standardized interventions of the service to the children´s guardians were also described. The difference in the distribution of variables in the adequacy and non-adequacy group to the MS protocol was assessed using Pearson’s chi-square test (categorical) and Mann-Whitney (numerical). Results: In the SCD condition management service, all children together with their guardians (N = 298) had their first consultation with the pharmacist (initial dispensation day), however, only 185 (62.1%) participated in the pharmaceutical service by telephone (eight days after the initial dispensing). Approximately 88.3% of children started using drugs for sickle cell disease according to the protocol of the Ministry of Health; the most frequent reason for non-compliance was the late diagnosis in the complementary health system (22.9%). The guardians pointed out 63 doubts about the medications, highlighting their non-acceptance by the child (28.6%), and for all doubts standard pharmaceutical guidelines were provided in the service. Conclusion: It was identified that the health condition management service provided is relevant, since most of those responsible for the children with SCD had doubts about their medication after the administration of medications began. The pharmacist contributes positively to the pharmacotherapeutic management of SCD, promoting empowerment about the correct use of medicines.
format	article
author	Elaine F. DIAS Fernanda T. DUQUE Ronara C. GROIA-VELOSO Mariana G. NASCIMENTO
author_facet	Elaine F. DIAS Fernanda T. DUQUE Ronara C. GROIA-VELOSO Mariana G. NASCIMENTO
author_sort	Elaine F. DIAS
title	Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme
title_short	Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme
title_full	Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme
title_fullStr	Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme
title_full_unstemmed	Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme
title_sort	descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme
publisher	Sociedade Brasileira de Farmácia Hospitalar e Serviços de Saúde
publishDate	2021
url	https://doaj.org/article/b1186c21f29147e8800afbae11357694
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Descrição do serviço de gestão da condição da saúde voltado a crianças recém-diagnosticadas com doença falciforme

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