Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic

Objective In the field of palliative care (PC) as it is integrated into heart failure (HF) treatment, it is essential to explore the patient experience and build on this knowledge for the further development of PC practice and policy. Based on an intervention study, this paper explores what patients...

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Autores principales:	Stine Gundtoft Roikjær, Charlotte Paaske Simonÿ, Helle Ussing Timm
Formato:	article
Lenguaje:	EN
Publicado:	BMJ Publishing Group 2020
Materias:	Medicine R
Acceso en línea:	https://doaj.org/article/b13fdf0810484a8f981fed6f90b88f2d
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spelling	oai:doaj.org-article:b13fdf0810484a8f981fed6f90b88f2d2021-11-20T15:00:06ZQualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic10.1136/bmjopen-2020-0439552044-6055https://doaj.org/article/b13fdf0810484a8f981fed6f90b88f2d2020-12-01T00:00:00Zhttps://bmjopen.bmj.com/content/10/12/e043955.fullhttps://doaj.org/toc/2044-6055Objective In the field of palliative care (PC) as it is integrated into heart failure (HF) treatment, it is essential to explore the patient experience and build on this knowledge for the further development of PC practice and policy. Based on an intervention study, this paper explores what patients with HF find significant in integrated sessions using a narrative S’ approach.Design We conducted a semistructured interview study with a qualitative analysis focused on meaning making. The study follows the guidelines of Consolidated Criteria for Reporting Qualitative Research.Participants and setting The inclusion criteria for the PC intervention were (1) a new diagnosis of HF, (2) follow-up treatment at this local Danish HF clinic and (3) informed consent to participate in the integrated PC intervention. The only exclusion criterion was if the patient was already engaged in a PC programme. 20 patients agreed to participate in the intervention, and 12 of these completed the S’ approach sessions and participated in this interview study.Results Overall, the analysis showed that the integrated S’ approach sessions were successful in joining an embodied patient perspective with a medical perspective. The thematic analysis resulted in three themes supporting the overall findings: sessions bring comfort, telling your story provides a sense of meaningfulness, and integrating perspectives of HF into everyday life.Conclusion The method using the S’ approach in integrated PC and HF sessions was significant in various ways. First, patients experienced a calm and safe atmosphere and perceived that the nurse was truly interested in them. Second, the integrated sessions based on the S’ approach were able to bring comfort to lived physical, psychosocial and existential issues. Last, it allowed patients to combine their embodied understanding of HF with a medical perspective, thereby finding meaning in the sense of how everything is connected.Stine Gundtoft RoikjærCharlotte Paaske SimonÿHelle Ussing TimmBMJ Publishing GrouparticleMedicineRENBMJ Open, Vol 10, Iss 12 (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R
spellingShingle	Medicine R Stine Gundtoft Roikjær Charlotte Paaske Simonÿ Helle Ussing Timm Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic
description	Objective In the field of palliative care (PC) as it is integrated into heart failure (HF) treatment, it is essential to explore the patient experience and build on this knowledge for the further development of PC practice and policy. Based on an intervention study, this paper explores what patients with HF find significant in integrated sessions using a narrative S’ approach.Design We conducted a semistructured interview study with a qualitative analysis focused on meaning making. The study follows the guidelines of Consolidated Criteria for Reporting Qualitative Research.Participants and setting The inclusion criteria for the PC intervention were (1) a new diagnosis of HF, (2) follow-up treatment at this local Danish HF clinic and (3) informed consent to participate in the integrated PC intervention. The only exclusion criterion was if the patient was already engaged in a PC programme. 20 patients agreed to participate in the intervention, and 12 of these completed the S’ approach sessions and participated in this interview study.Results Overall, the analysis showed that the integrated S’ approach sessions were successful in joining an embodied patient perspective with a medical perspective. The thematic analysis resulted in three themes supporting the overall findings: sessions bring comfort, telling your story provides a sense of meaningfulness, and integrating perspectives of HF into everyday life.Conclusion The method using the S’ approach in integrated PC and HF sessions was significant in various ways. First, patients experienced a calm and safe atmosphere and perceived that the nurse was truly interested in them. Second, the integrated sessions based on the S’ approach were able to bring comfort to lived physical, psychosocial and existential issues. Last, it allowed patients to combine their embodied understanding of HF with a medical perspective, thereby finding meaning in the sense of how everything is connected.
format	article
author	Stine Gundtoft Roikjær Charlotte Paaske Simonÿ Helle Ussing Timm
author_facet	Stine Gundtoft Roikjær Charlotte Paaske Simonÿ Helle Ussing Timm
author_sort	Stine Gundtoft Roikjær
title	Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic
title_short	Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic
title_full	Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic
title_fullStr	Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic
title_full_unstemmed	Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic
title_sort	qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a danish clinic
publisher	BMJ Publishing Group
publishDate	2020
url	https://doaj.org/article/b13fdf0810484a8f981fed6f90b88f2d
work_keys_str_mv	AT stinegundtoftroikjær qualitativestudytoexplorewhatpatientswithheartfailurefindsignificantduringintegratedpalliativecaresessionsinadanishclinic AT charlottepaaskesimony qualitativestudytoexplorewhatpatientswithheartfailurefindsignificantduringintegratedpalliativecaresessionsinadanishclinic AT helleussingtimm qualitativestudytoexplorewhatpatientswithheartfailurefindsignificantduringintegratedpalliativecaresessionsinadanishclinic
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Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic

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