Child and caregiver experiences and perceptions of asthma self-management

Abstract Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications w...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Lauren Kelada, Charlotte J. Molloy, Peter Hibbert, Louise K. Wiles, Claire Gardner, Emily Klineberg, Jeffrey Braithwaite, Adam Jaffe
Formato:	article
Lenguaje:	EN
Publicado:	Nature Portfolio 2021
Materias:	Diseases of the respiratory system RC705-779
Acceso en línea:	https://doaj.org/article/b62b93b64678482691e8cae3a474855e
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:b62b93b64678482691e8cae3a474855e
record_format	dspace
spelling	oai:doaj.org-article:b62b93b64678482691e8cae3a474855e2021-12-02T19:13:53ZChild and caregiver experiences and perceptions of asthma self-management10.1038/s41533-021-00253-92055-1010https://doaj.org/article/b62b93b64678482691e8cae3a474855e2021-09-01T00:00:00Zhttps://doi.org/10.1038/s41533-021-00253-9https://doaj.org/toc/2055-1010Abstract Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications within and outside the home. We undertook 15 focus groups with 41 school-aged (6–11 years) children with asthma and 38 parents. Parents and their children attended the same focus groups. We used thematic analysis to analyse the transcripts. Our findings show the impact asthma can have on children’s social and emotional wellbeing and highlight how reliant school-aged children are on their parents to effectively manage their asthma. Parents reported being unsure when their child’s symptoms warranted visiting their doctor or hospital. Schools were identified as a source of difficulty regarding asthma management; families reported that children may be self-conscious about their asthma and using their inhaler at school. School policies and teachers’ lack of asthma knowledge were reported to exacerbate children’s reluctance to use their inhaler at school. Our results have implications for the design and implementation of children’s self-management interventions for their asthma, particularly when they are at school and away from their parents.Lauren KeladaCharlotte J. MolloyPeter HibbertLouise K. WilesClaire GardnerEmily KlinebergJeffrey BraithwaiteAdam JaffeNature PortfolioarticleDiseases of the respiratory systemRC705-779ENnpj Primary Care Respiratory Medicine, Vol 31, Iss 1, Pp 1-7 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Diseases of the respiratory system RC705-779
spellingShingle	Diseases of the respiratory system RC705-779 Lauren Kelada Charlotte J. Molloy Peter Hibbert Louise K. Wiles Claire Gardner Emily Klineberg Jeffrey Braithwaite Adam Jaffe Child and caregiver experiences and perceptions of asthma self-management
description	Abstract Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications within and outside the home. We undertook 15 focus groups with 41 school-aged (6–11 years) children with asthma and 38 parents. Parents and their children attended the same focus groups. We used thematic analysis to analyse the transcripts. Our findings show the impact asthma can have on children’s social and emotional wellbeing and highlight how reliant school-aged children are on their parents to effectively manage their asthma. Parents reported being unsure when their child’s symptoms warranted visiting their doctor or hospital. Schools were identified as a source of difficulty regarding asthma management; families reported that children may be self-conscious about their asthma and using their inhaler at school. School policies and teachers’ lack of asthma knowledge were reported to exacerbate children’s reluctance to use their inhaler at school. Our results have implications for the design and implementation of children’s self-management interventions for their asthma, particularly when they are at school and away from their parents.
format	article
author	Lauren Kelada Charlotte J. Molloy Peter Hibbert Louise K. Wiles Claire Gardner Emily Klineberg Jeffrey Braithwaite Adam Jaffe
author_facet	Lauren Kelada Charlotte J. Molloy Peter Hibbert Louise K. Wiles Claire Gardner Emily Klineberg Jeffrey Braithwaite Adam Jaffe
author_sort	Lauren Kelada
title	Child and caregiver experiences and perceptions of asthma self-management
title_short	Child and caregiver experiences and perceptions of asthma self-management
title_full	Child and caregiver experiences and perceptions of asthma self-management
title_fullStr	Child and caregiver experiences and perceptions of asthma self-management
title_full_unstemmed	Child and caregiver experiences and perceptions of asthma self-management
title_sort	child and caregiver experiences and perceptions of asthma self-management
publisher	Nature Portfolio
publishDate	2021
url	https://doaj.org/article/b62b93b64678482691e8cae3a474855e
work_keys_str_mv	AT laurenkelada childandcaregiverexperiencesandperceptionsofasthmaselfmanagement AT charlottejmolloy childandcaregiverexperiencesandperceptionsofasthmaselfmanagement AT peterhibbert childandcaregiverexperiencesandperceptionsofasthmaselfmanagement AT louisekwiles childandcaregiverexperiencesandperceptionsofasthmaselfmanagement AT clairegardner childandcaregiverexperiencesandperceptionsofasthmaselfmanagement AT emilyklineberg childandcaregiverexperiencesandperceptionsofasthmaselfmanagement AT jeffreybraithwaite childandcaregiverexperiencesandperceptionsofasthmaselfmanagement AT adamjaffe childandcaregiverexperiencesandperceptionsofasthmaselfmanagement
_version_	1718377026066317312

Child and caregiver experiences and perceptions of asthma self-management

Ejemplares similares