This is me: A qualitative investigation of young people's experience of growing up with visual impairment.

<h4>Background</h4>Childhood visual impairment (VI) has a profound impact on many aspects of childhood and adolescence. This is well-documented in cross-sectional and/or quantitative studies utilizing self-report instruments which compare children with and without VI. Young people's...

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Autores principales:	Alexandra O Robertson, Valerija Tadić, Jugnoo S Rahi
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/b6e40b30ea854074aedd6602f10fc78c
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spelling	oai:doaj.org-article:b6e40b30ea854074aedd6602f10fc78c2021-12-02T20:09:37ZThis is me: A qualitative investigation of young people's experience of growing up with visual impairment.1932-620310.1371/journal.pone.0254009https://doaj.org/article/b6e40b30ea854074aedd6602f10fc78c2021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0254009https://doaj.org/toc/1932-6203<h4>Background</h4>Childhood visual impairment (VI) has a profound impact on many aspects of childhood and adolescence. This is well-documented in cross-sectional and/or quantitative studies utilizing self-report instruments which compare children with and without VI. Young people's views on the experience of growing up with VI as a developmental, change-driven process remain largely unexplored.<h4>Methods</h4>As part of our broader research programme on quality of life of visually impaired children and young people in the United Kingdom, in-depth, semi-structured interviews were conducted between March and June 2015, with a stratified sample of 17 young people with VI, aged 16-19 years. An age-sensitive, empirically-based topic guide encouraged retrospective reflections on participants' experiences of growing up with VI, including age-normative and vision-specific challenges.<h4>Results</h4>Descriptions of growing up with VI largely centered on an overarching higher-order theme labelled becoming me. Four themes representing everyday activities, attitudes, preferences and perceptions in relation to i) social relationships, ii) independence and responsibilities, iii) the future, and iv) rising to challenges emerged and were used by participants in their description of three stages in which they developed a sense of self: i) laying the foundations, ii) testing the waters, and iii) this is me. Differences in manifestation of VI influenced how young people made sense of their experiences and their sense of self.<h4>Conclusions</h4>Findings are discussed in relation to normative and vision-specific changes in psychosocial development during adolescence, including the development of identity. They highlight the need for ongoing monitoring of subjective well-being in a clinical population with a unique early life course trajectory.Alexandra O RobertsonValerija TadićJugnoo S RahiPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 7, p e0254009 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Alexandra O Robertson Valerija Tadić Jugnoo S Rahi This is me: A qualitative investigation of young people's experience of growing up with visual impairment.
description	<h4>Background</h4>Childhood visual impairment (VI) has a profound impact on many aspects of childhood and adolescence. This is well-documented in cross-sectional and/or quantitative studies utilizing self-report instruments which compare children with and without VI. Young people's views on the experience of growing up with VI as a developmental, change-driven process remain largely unexplored.<h4>Methods</h4>As part of our broader research programme on quality of life of visually impaired children and young people in the United Kingdom, in-depth, semi-structured interviews were conducted between March and June 2015, with a stratified sample of 17 young people with VI, aged 16-19 years. An age-sensitive, empirically-based topic guide encouraged retrospective reflections on participants' experiences of growing up with VI, including age-normative and vision-specific challenges.<h4>Results</h4>Descriptions of growing up with VI largely centered on an overarching higher-order theme labelled becoming me. Four themes representing everyday activities, attitudes, preferences and perceptions in relation to i) social relationships, ii) independence and responsibilities, iii) the future, and iv) rising to challenges emerged and were used by participants in their description of three stages in which they developed a sense of self: i) laying the foundations, ii) testing the waters, and iii) this is me. Differences in manifestation of VI influenced how young people made sense of their experiences and their sense of self.<h4>Conclusions</h4>Findings are discussed in relation to normative and vision-specific changes in psychosocial development during adolescence, including the development of identity. They highlight the need for ongoing monitoring of subjective well-being in a clinical population with a unique early life course trajectory.
format	article
author	Alexandra O Robertson Valerija Tadić Jugnoo S Rahi
author_facet	Alexandra O Robertson Valerija Tadić Jugnoo S Rahi
author_sort	Alexandra O Robertson
title	This is me: A qualitative investigation of young people's experience of growing up with visual impairment.
title_short	This is me: A qualitative investigation of young people's experience of growing up with visual impairment.
title_full	This is me: A qualitative investigation of young people's experience of growing up with visual impairment.
title_fullStr	This is me: A qualitative investigation of young people's experience of growing up with visual impairment.
title_full_unstemmed	This is me: A qualitative investigation of young people's experience of growing up with visual impairment.
title_sort	this is me: a qualitative investigation of young people's experience of growing up with visual impairment.
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/b6e40b30ea854074aedd6602f10fc78c
work_keys_str_mv	AT alexandraorobertson thisismeaqualitativeinvestigationofyoungpeoplesexperienceofgrowingupwithvisualimpairment AT valerijatadic thisismeaqualitativeinvestigationofyoungpeoplesexperienceofgrowingupwithvisualimpairment AT jugnoosrahi thisismeaqualitativeinvestigationofyoungpeoplesexperienceofgrowingupwithvisualimpairment
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This is me: A qualitative investigation of young people's experience of growing up with visual impairment.

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