Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences

Children spend a substantial part of their childhood in school, so provision of dietary care and inclusion of children with phenylketonuria (PKU) in this setting is essential. There are no reports describing the dietary support children with PKU receive whilst at school. The aim of this cross-sectio...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Hannah Jones, Alex Pinto, Sharon Evans, Suzanne Ford, Mike O’Driscoll, Sharon Buckley, Catherine Ashmore, Anne Daly, Anita MacDonald
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	PKU food protein substitute school IHCP parent/caregiver experiences Nutrition. Foods and food supply TX341-641
Acceso en línea:	https://doaj.org/article/b7272582e45342418146759f9f56c803
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:b7272582e45342418146759f9f56c803
record_format	dspace
spelling	oai:doaj.org-article:b7272582e45342418146759f9f56c8032021-11-25T18:34:44ZProvision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences10.3390/nu131138632072-6643https://doaj.org/article/b7272582e45342418146759f9f56c8032021-10-01T00:00:00Zhttps://www.mdpi.com/2072-6643/13/11/3863https://doaj.org/toc/2072-6643Children spend a substantial part of their childhood in school, so provision of dietary care and inclusion of children with phenylketonuria (PKU) in this setting is essential. There are no reports describing the dietary support children with PKU receive whilst at school. The aim of this cross-sectional study was to explore the experiences of the dietary management of children with PKU in schools across the UK. Data was collected using an online survey completed by parents/caregivers of children with PKU. Of 159 questionnaire responses, 92% (<i>n</i> = 146) of children attended state school, 6% (<i>n</i> = 10) private school and 2% (<i>n</i> = 3) other. Fourteen per cent (<i>n</i> = 21/154) were at nursery/preschool, 51% (<i>n</i> = 79/154) primary and 35% (<i>n</i> = 54/154) secondary school. Sixty-one per cent (<i>n</i> = 97/159) said their child did not have school meals, with some catering services refusing to provide suitable food and some parents distrusting the school meals service. Sixty-one per cent of children had an individual health care plan (IHCP) (<i>n</i> = 95/155). Children were commonly unsupervised at lunchtime (40%, <i>n</i> = 63/159), with snacks (46%, <i>n</i> = 71/155) and protein substitute (30%, <i>n</i> = 47/157), with significantly less supervision in secondary than primary school (<i>p</i> < 0.001). An IHCP was significantly associated with improved supervision of food and protein substitute administration (<i>p</i> < 0.01), and better communication between parents/caregivers and the school team (<i>p</i> < 0.05). Children commonly accessed non-permitted foods in school. Therefore, parents/caregivers described important issues concerning the school provision of low phenylalanine food and protein substitute. Every child should have an IHCP which details their dietary needs and how these will be met safely and discreetly. It is imperative that children with PKU are supported in school.Hannah JonesAlex PintoSharon EvansSuzanne FordMike O’DriscollSharon BuckleyCatherine AshmoreAnne DalyAnita MacDonaldMDPI AGarticlePKUfoodprotein substituteschoolIHCPparent/caregiver experiencesNutrition. Foods and food supplyTX341-641ENNutrients, Vol 13, Iss 3863, p 3863 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	PKU food protein substitute school IHCP parent/caregiver experiences Nutrition. Foods and food supply TX341-641
spellingShingle	PKU food protein substitute school IHCP parent/caregiver experiences Nutrition. Foods and food supply TX341-641 Hannah Jones Alex Pinto Sharon Evans Suzanne Ford Mike O’Driscoll Sharon Buckley Catherine Ashmore Anne Daly Anita MacDonald Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences
description	Children spend a substantial part of their childhood in school, so provision of dietary care and inclusion of children with phenylketonuria (PKU) in this setting is essential. There are no reports describing the dietary support children with PKU receive whilst at school. The aim of this cross-sectional study was to explore the experiences of the dietary management of children with PKU in schools across the UK. Data was collected using an online survey completed by parents/caregivers of children with PKU. Of 159 questionnaire responses, 92% (<i>n</i> = 146) of children attended state school, 6% (<i>n</i> = 10) private school and 2% (<i>n</i> = 3) other. Fourteen per cent (<i>n</i> = 21/154) were at nursery/preschool, 51% (<i>n</i> = 79/154) primary and 35% (<i>n</i> = 54/154) secondary school. Sixty-one per cent (<i>n</i> = 97/159) said their child did not have school meals, with some catering services refusing to provide suitable food and some parents distrusting the school meals service. Sixty-one per cent of children had an individual health care plan (IHCP) (<i>n</i> = 95/155). Children were commonly unsupervised at lunchtime (40%, <i>n</i> = 63/159), with snacks (46%, <i>n</i> = 71/155) and protein substitute (30%, <i>n</i> = 47/157), with significantly less supervision in secondary than primary school (<i>p</i> < 0.001). An IHCP was significantly associated with improved supervision of food and protein substitute administration (<i>p</i> < 0.01), and better communication between parents/caregivers and the school team (<i>p</i> < 0.05). Children commonly accessed non-permitted foods in school. Therefore, parents/caregivers described important issues concerning the school provision of low phenylalanine food and protein substitute. Every child should have an IHCP which details their dietary needs and how these will be met safely and discreetly. It is imperative that children with PKU are supported in school.
format	article
author	Hannah Jones Alex Pinto Sharon Evans Suzanne Ford Mike O’Driscoll Sharon Buckley Catherine Ashmore Anne Daly Anita MacDonald
author_facet	Hannah Jones Alex Pinto Sharon Evans Suzanne Ford Mike O’Driscoll Sharon Buckley Catherine Ashmore Anne Daly Anita MacDonald
author_sort	Hannah Jones
title	Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences
title_short	Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences
title_full	Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences
title_fullStr	Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences
title_full_unstemmed	Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences
title_sort	provision and supervision of food and protein substitute in school for children with pku: parent experiences
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/b7272582e45342418146759f9f56c803
work_keys_str_mv	AT hannahjones provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT alexpinto provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT sharonevans provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT suzanneford provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT mikeodriscoll provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT sharonbuckley provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT catherineashmore provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT annedaly provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences AT anitamacdonald provisionandsupervisionoffoodandproteinsubstituteinschoolforchildrenwithpkuparentexperiences
_version_	1718410973233020928

Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences

Ejemplares similares