Development of a Model Care Pathway for Myasthenia Gravis

Myasthenia Gravis (MG) is a chronic, life-lasting condition that requires high coordination among different professionals and disciplines. The diagnosis of MG is often delayed and sometimes misdiagnosed. The goal of the care pathway (CP) is to add value to healthcare reducing unnecessary variations....

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Autores principales:	Anil babu Payedimarri, Matteo Ratti, Riccardo Rescinito, Alessandra Vasile, Deborah Seys, Hervé Dumas, Kris Vanhaecht, Massimiliano Panella
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	myasthenia gravis critical pathway care pathway model pathway integrated care pathway clinical pathway Medicine R
Acceso en línea:	https://doaj.org/article/b76eaae57cf64215987d617a09e3395d
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spelling	oai:doaj.org-article:b76eaae57cf64215987d617a09e3395d2021-11-11T16:42:03ZDevelopment of a Model Care Pathway for Myasthenia Gravis10.3390/ijerph1821115911660-46011661-7827https://doaj.org/article/b76eaae57cf64215987d617a09e3395d2021-11-01T00:00:00Zhttps://www.mdpi.com/1660-4601/18/21/11591https://doaj.org/toc/1661-7827https://doaj.org/toc/1660-4601Myasthenia Gravis (MG) is a chronic, life-lasting condition that requires high coordination among different professionals and disciplines. The diagnosis of MG is often delayed and sometimes misdiagnosed. The goal of the care pathway (CP) is to add value to healthcare reducing unnecessary variations. The quality of the care received by patients affected with MG could benefit from the use of CP. We conducted a study aimed to define an inclusive, comprehensive, and multidisciplinary CP for the diagnosis, treatment, and care of MG. The development of the model CP, key interventions, and process indicators is based on the literature review and 85 international MG experts were involved in their evaluation, expressing a judgment of relevance through the Delphi study. 60 activities are included in the model CP and evaluated by the MG experts were valid and feasible. The 60 activities were then translated into 14 key interventions and 24 process indicators. We believe that the developed model CP will help for MG patients to have a timely diagnosis and high-quality, accessible, and cost-effective treatments and care. We also believe that the development of model CPs for other rare diseases is feasible and could aid in the integration of evidence-based knowledge into clinical practice.Anil babu PayedimarriMatteo RattiRiccardo RescinitoAlessandra VasileDeborah SeysHervé DumasKris VanhaechtMassimiliano PanellaMDPI AGarticlemyasthenia graviscritical pathwaycare pathwaymodel pathwayintegrated care pathwayclinical pathwayMedicineRENInternational Journal of Environmental Research and Public Health, Vol 18, Iss 11591, p 11591 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	myasthenia gravis critical pathway care pathway model pathway integrated care pathway clinical pathway Medicine R
spellingShingle	myasthenia gravis critical pathway care pathway model pathway integrated care pathway clinical pathway Medicine R Anil babu Payedimarri Matteo Ratti Riccardo Rescinito Alessandra Vasile Deborah Seys Hervé Dumas Kris Vanhaecht Massimiliano Panella Development of a Model Care Pathway for Myasthenia Gravis
description	Myasthenia Gravis (MG) is a chronic, life-lasting condition that requires high coordination among different professionals and disciplines. The diagnosis of MG is often delayed and sometimes misdiagnosed. The goal of the care pathway (CP) is to add value to healthcare reducing unnecessary variations. The quality of the care received by patients affected with MG could benefit from the use of CP. We conducted a study aimed to define an inclusive, comprehensive, and multidisciplinary CP for the diagnosis, treatment, and care of MG. The development of the model CP, key interventions, and process indicators is based on the literature review and 85 international MG experts were involved in their evaluation, expressing a judgment of relevance through the Delphi study. 60 activities are included in the model CP and evaluated by the MG experts were valid and feasible. The 60 activities were then translated into 14 key interventions and 24 process indicators. We believe that the developed model CP will help for MG patients to have a timely diagnosis and high-quality, accessible, and cost-effective treatments and care. We also believe that the development of model CPs for other rare diseases is feasible and could aid in the integration of evidence-based knowledge into clinical practice.
format	article
author	Anil babu Payedimarri Matteo Ratti Riccardo Rescinito Alessandra Vasile Deborah Seys Hervé Dumas Kris Vanhaecht Massimiliano Panella
author_facet	Anil babu Payedimarri Matteo Ratti Riccardo Rescinito Alessandra Vasile Deborah Seys Hervé Dumas Kris Vanhaecht Massimiliano Panella
author_sort	Anil babu Payedimarri
title	Development of a Model Care Pathway for Myasthenia Gravis
title_short	Development of a Model Care Pathway for Myasthenia Gravis
title_full	Development of a Model Care Pathway for Myasthenia Gravis
title_fullStr	Development of a Model Care Pathway for Myasthenia Gravis
title_full_unstemmed	Development of a Model Care Pathway for Myasthenia Gravis
title_sort	development of a model care pathway for myasthenia gravis
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/b76eaae57cf64215987d617a09e3395d
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Development of a Model Care Pathway for Myasthenia Gravis

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