Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders

Renata Rizzo,1 Lisa Karlov,2,3 Nicoletta Maugeri,1 Selena di silvestre,1 Valsamma Eapen2,3 1Child and Adolescent Neurology and Psychiatry, Department of Clinical and Experimental Medicine, Catania University, Catania, Italy; 2School of Psychiatry, UNSW, Sydney, NSW, Australia; 3Academic Unit of Chil...

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Autores principales:	Rizzo R, Karlov L, Maugeri N, DiSilvestre S, Eapen V
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2021
Materias:	neurocognitive k6 gad-2 who-5 general wellbeing Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429
Acceso en línea:	https://doaj.org/article/b9a7b6d519c74cffa7269491be646a61
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spelling	oai:doaj.org-article:b9a7b6d519c74cffa7269491be646a612021-12-02T15:31:09ZImpact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders1178-2021https://doaj.org/article/b9a7b6d519c74cffa7269491be646a612021-09-01T00:00:00Zhttps://www.dovepress.com/impact-of-the-covid-19-pandemic-on-family-wellbeing-in-the-context-of--peer-reviewed-fulltext-article-NDThttps://doaj.org/toc/1178-2021Renata Rizzo,1 Lisa Karlov,2,3 Nicoletta Maugeri,1 Selena di silvestre,1 Valsamma Eapen2,3 1Child and Adolescent Neurology and Psychiatry, Department of Clinical and Experimental Medicine, Catania University, Catania, Italy; 2School of Psychiatry, UNSW, Sydney, NSW, Australia; 3Academic Unit of Child Psychiatry South West Sydney, Liverpool Hospital & Ingham Institute, Sydney, Nsw, AustraliaCorrespondence: Valsamma Eapen Email v.eapen@unsw.edu.auObjective: The primary aim was to assess both the type and degree of impact of the COVID-19 pandemic on child and family wellbeing in a cohort with neurodevelopmental disorders.Design: This was a single time-point observational study utilizing a combination of surveys and standardized measures, which were administered to parents by researchers by telephone.Setting: The Child and Adolescent Neuropsychiatric Clinic of the Department of Clinical and Experimental Medicine, Catania University, Italy.Participants: In total, 200 caregivers completed the questionnaires on behalf of themselves and their child. They were predominantly mothers (88.00%) and primary caregivers (93.50%), with a mean age of 42.84 years (sd = 7.13).Primary and Secondary Outcomes Measures: A questionnaire featured in a previous study was used to assess the impact of COVID-19 on general wellbeing, types of support, family health, home-based learning, and child behaviors. Children’s diagnoses were recorded. Caregivers provided information about physical, mental, financial, and vocational wellbeing, and completed several standardised measures of mental health and well-being: the Kessler Psychological Distress Scale - K6; the General Anxiety Disorder Scale – GAD-2; and the WHO Well-being Scale – WHO-5.Results: Overall, 58.50% of respondents agreed somewhat or strongly that their child’s overall health and wellbeing had been impacted by the pandemic, while 47.74% felt that their own wellbeing as parents had been affected. Whilst home-based learning and disruption to services for children were noted as being significant, child wellbeing appeared to not be correlated with these but rather to restrictions, home isolation, and disruption to routine.Conclusion: Children with neurocognitive disorders and their families have been substantially impacted by the COVID-19 pandemic. It is expected that targeted resources and support services will be required in response to this increase in need.Keywords: neurocognitive, K6, GAD-2, WHO-5, general wellbeingRizzo RKarlov LMaugeri NDiSilvestre SEapen VDove Medical Pressarticleneurocognitivek6gad-2who-5general wellbeingNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571Neurology. Diseases of the nervous systemRC346-429ENNeuropsychiatric Disease and Treatment, Vol Volume 17, Pp 3007-3014 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	neurocognitive k6 gad-2 who-5 general wellbeing Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429
spellingShingle	neurocognitive k6 gad-2 who-5 general wellbeing Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 Rizzo R Karlov L Maugeri N DiSilvestre S Eapen V Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders
description	Renata Rizzo,1 Lisa Karlov,2,3 Nicoletta Maugeri,1 Selena di silvestre,1 Valsamma Eapen2,3 1Child and Adolescent Neurology and Psychiatry, Department of Clinical and Experimental Medicine, Catania University, Catania, Italy; 2School of Psychiatry, UNSW, Sydney, NSW, Australia; 3Academic Unit of Child Psychiatry South West Sydney, Liverpool Hospital & Ingham Institute, Sydney, Nsw, AustraliaCorrespondence: Valsamma Eapen Email v.eapen@unsw.edu.auObjective: The primary aim was to assess both the type and degree of impact of the COVID-19 pandemic on child and family wellbeing in a cohort with neurodevelopmental disorders.Design: This was a single time-point observational study utilizing a combination of surveys and standardized measures, which were administered to parents by researchers by telephone.Setting: The Child and Adolescent Neuropsychiatric Clinic of the Department of Clinical and Experimental Medicine, Catania University, Italy.Participants: In total, 200 caregivers completed the questionnaires on behalf of themselves and their child. They were predominantly mothers (88.00%) and primary caregivers (93.50%), with a mean age of 42.84 years (sd = 7.13).Primary and Secondary Outcomes Measures: A questionnaire featured in a previous study was used to assess the impact of COVID-19 on general wellbeing, types of support, family health, home-based learning, and child behaviors. Children’s diagnoses were recorded. Caregivers provided information about physical, mental, financial, and vocational wellbeing, and completed several standardised measures of mental health and well-being: the Kessler Psychological Distress Scale - K6; the General Anxiety Disorder Scale – GAD-2; and the WHO Well-being Scale – WHO-5.Results: Overall, 58.50% of respondents agreed somewhat or strongly that their child’s overall health and wellbeing had been impacted by the pandemic, while 47.74% felt that their own wellbeing as parents had been affected. Whilst home-based learning and disruption to services for children were noted as being significant, child wellbeing appeared to not be correlated with these but rather to restrictions, home isolation, and disruption to routine.Conclusion: Children with neurocognitive disorders and their families have been substantially impacted by the COVID-19 pandemic. It is expected that targeted resources and support services will be required in response to this increase in need.Keywords: neurocognitive, K6, GAD-2, WHO-5, general wellbeing
format	article
author	Rizzo R Karlov L Maugeri N DiSilvestre S Eapen V
author_facet	Rizzo R Karlov L Maugeri N DiSilvestre S Eapen V
author_sort	Rizzo R
title	Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders
title_short	Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders
title_full	Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders
title_fullStr	Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders
title_full_unstemmed	Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders
title_sort	impact of the covid-19 pandemic on family wellbeing in the context of neurodevelopmental disorders
publisher	Dove Medical Press
publishDate	2021
url	https://doaj.org/article/b9a7b6d519c74cffa7269491be646a61
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Impact of the COVID-19 Pandemic on Family Wellbeing in the Context of Neurodevelopmental Disorders

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