A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers
Prader–Willi syndrome (PWS) is a complex neurodevelopmental genetic disorder characterized by hypotonia and hyperphagia. Consequently, individuals with PWS are at high risk of choking, and choking is a leading cause of morbidity and mortality. The aim of this quality improvement (QI) project is to p...
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2021
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oai:doaj.org-article:ba00aae3ae724b5db6a7bc9e652de1092021-11-11T17:37:20ZA Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers10.3390/jcm102149932077-0383https://doaj.org/article/ba00aae3ae724b5db6a7bc9e652de1092021-10-01T00:00:00Zhttps://www.mdpi.com/2077-0383/10/21/4993https://doaj.org/toc/2077-0383Prader–Willi syndrome (PWS) is a complex neurodevelopmental genetic disorder characterized by hypotonia and hyperphagia. Consequently, individuals with PWS are at high risk of choking, and choking is a leading cause of morbidity and mortality. The aim of this quality improvement (QI) project is to provide choking prevention and first aid education from 0% to 80% of PWS caregivers seen in a multidisciplinary PWS clinic, and to assess the effectiveness of this education program. A QI initiative was developed to standardize and implement choking prevention and first aid education for PWS caregivers. Using a Likert scale, pre- and post-education assessments were conducted to measure caregiver (1) awareness of the PWS choking risk, (2) self-reported knowledge of choking prevention strategies, and (3) comfort in providing choking first aid. The American Heart Association Family and Friends<sup>®</sup> CPR (Dallas, TX, USA) curriculum was utilized. Education was provided during a regularly scheduled PWS clinic appointment. At project conclusion, 45/52 (87%) of PWS caregivers received education. A post-education assessment revealed an improvement in PWS caregivers’ awareness of choking risk, self-reported knowledge of choking prevention strategies, and comfort in providing choking first aid. This QI project supports a practice change to implement choking prevention and first aid education as standard process within our PWS clinic.Kathryn S. ObrynbaKathryn AnglinAmy MoffettTracie SteinkeManmohan K. KambojMDPI AGarticlePrader–Willi syndromequality improvementchokingMedicineRENJournal of Clinical Medicine, Vol 10, Iss 4993, p 4993 (2021) |
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Prader–Willi syndrome quality improvement choking Medicine R |
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Prader–Willi syndrome quality improvement choking Medicine R Kathryn S. Obrynba Kathryn Anglin Amy Moffett Tracie Steinke Manmohan K. Kamboj A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers |
description |
Prader–Willi syndrome (PWS) is a complex neurodevelopmental genetic disorder characterized by hypotonia and hyperphagia. Consequently, individuals with PWS are at high risk of choking, and choking is a leading cause of morbidity and mortality. The aim of this quality improvement (QI) project is to provide choking prevention and first aid education from 0% to 80% of PWS caregivers seen in a multidisciplinary PWS clinic, and to assess the effectiveness of this education program. A QI initiative was developed to standardize and implement choking prevention and first aid education for PWS caregivers. Using a Likert scale, pre- and post-education assessments were conducted to measure caregiver (1) awareness of the PWS choking risk, (2) self-reported knowledge of choking prevention strategies, and (3) comfort in providing choking first aid. The American Heart Association Family and Friends<sup>®</sup> CPR (Dallas, TX, USA) curriculum was utilized. Education was provided during a regularly scheduled PWS clinic appointment. At project conclusion, 45/52 (87%) of PWS caregivers received education. A post-education assessment revealed an improvement in PWS caregivers’ awareness of choking risk, self-reported knowledge of choking prevention strategies, and comfort in providing choking first aid. This QI project supports a practice change to implement choking prevention and first aid education as standard process within our PWS clinic. |
format |
article |
author |
Kathryn S. Obrynba Kathryn Anglin Amy Moffett Tracie Steinke Manmohan K. Kamboj |
author_facet |
Kathryn S. Obrynba Kathryn Anglin Amy Moffett Tracie Steinke Manmohan K. Kamboj |
author_sort |
Kathryn S. Obrynba |
title |
A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers |
title_short |
A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers |
title_full |
A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers |
title_fullStr |
A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers |
title_full_unstemmed |
A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers |
title_sort |
quality improvement project to implement choking prevention and first aid education in prader–willi syndrome caregivers |
publisher |
MDPI AG |
publishDate |
2021 |
url |
https://doaj.org/article/ba00aae3ae724b5db6a7bc9e652de109 |
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