A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers

Prader–Willi syndrome (PWS) is a complex neurodevelopmental genetic disorder characterized by hypotonia and hyperphagia. Consequently, individuals with PWS are at high risk of choking, and choking is a leading cause of morbidity and mortality. The aim of this quality improvement (QI) project is to p...

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Autores principales: Kathryn S. Obrynba, Kathryn Anglin, Amy Moffett, Tracie Steinke, Manmohan K. Kamboj
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Lenguaje:EN
Publicado: MDPI AG 2021
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spelling oai:doaj.org-article:ba00aae3ae724b5db6a7bc9e652de1092021-11-11T17:37:20ZA Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers10.3390/jcm102149932077-0383https://doaj.org/article/ba00aae3ae724b5db6a7bc9e652de1092021-10-01T00:00:00Zhttps://www.mdpi.com/2077-0383/10/21/4993https://doaj.org/toc/2077-0383Prader–Willi syndrome (PWS) is a complex neurodevelopmental genetic disorder characterized by hypotonia and hyperphagia. Consequently, individuals with PWS are at high risk of choking, and choking is a leading cause of morbidity and mortality. The aim of this quality improvement (QI) project is to provide choking prevention and first aid education from 0% to 80% of PWS caregivers seen in a multidisciplinary PWS clinic, and to assess the effectiveness of this education program. A QI initiative was developed to standardize and implement choking prevention and first aid education for PWS caregivers. Using a Likert scale, pre- and post-education assessments were conducted to measure caregiver (1) awareness of the PWS choking risk, (2) self-reported knowledge of choking prevention strategies, and (3) comfort in providing choking first aid. The American Heart Association Family and Friends<sup>®</sup> CPR (Dallas, TX, USA) curriculum was utilized. Education was provided during a regularly scheduled PWS clinic appointment. At project conclusion, 45/52 (87%) of PWS caregivers received education. A post-education assessment revealed an improvement in PWS caregivers’ awareness of choking risk, self-reported knowledge of choking prevention strategies, and comfort in providing choking first aid. This QI project supports a practice change to implement choking prevention and first aid education as standard process within our PWS clinic.Kathryn S. ObrynbaKathryn AnglinAmy MoffettTracie SteinkeManmohan K. KambojMDPI AGarticlePrader–Willi syndromequality improvementchokingMedicineRENJournal of Clinical Medicine, Vol 10, Iss 4993, p 4993 (2021)
institution DOAJ
collection DOAJ
language EN
topic Prader–Willi syndrome
quality improvement
choking
Medicine
R
spellingShingle Prader–Willi syndrome
quality improvement
choking
Medicine
R
Kathryn S. Obrynba
Kathryn Anglin
Amy Moffett
Tracie Steinke
Manmohan K. Kamboj
A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers
description Prader–Willi syndrome (PWS) is a complex neurodevelopmental genetic disorder characterized by hypotonia and hyperphagia. Consequently, individuals with PWS are at high risk of choking, and choking is a leading cause of morbidity and mortality. The aim of this quality improvement (QI) project is to provide choking prevention and first aid education from 0% to 80% of PWS caregivers seen in a multidisciplinary PWS clinic, and to assess the effectiveness of this education program. A QI initiative was developed to standardize and implement choking prevention and first aid education for PWS caregivers. Using a Likert scale, pre- and post-education assessments were conducted to measure caregiver (1) awareness of the PWS choking risk, (2) self-reported knowledge of choking prevention strategies, and (3) comfort in providing choking first aid. The American Heart Association Family and Friends<sup>®</sup> CPR (Dallas, TX, USA) curriculum was utilized. Education was provided during a regularly scheduled PWS clinic appointment. At project conclusion, 45/52 (87%) of PWS caregivers received education. A post-education assessment revealed an improvement in PWS caregivers’ awareness of choking risk, self-reported knowledge of choking prevention strategies, and comfort in providing choking first aid. This QI project supports a practice change to implement choking prevention and first aid education as standard process within our PWS clinic.
format article
author Kathryn S. Obrynba
Kathryn Anglin
Amy Moffett
Tracie Steinke
Manmohan K. Kamboj
author_facet Kathryn S. Obrynba
Kathryn Anglin
Amy Moffett
Tracie Steinke
Manmohan K. Kamboj
author_sort Kathryn S. Obrynba
title A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers
title_short A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers
title_full A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers
title_fullStr A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers
title_full_unstemmed A Quality Improvement Project to Implement Choking Prevention and First Aid Education in Prader–Willi Syndrome Caregivers
title_sort quality improvement project to implement choking prevention and first aid education in prader–willi syndrome caregivers
publisher MDPI AG
publishDate 2021
url https://doaj.org/article/ba00aae3ae724b5db6a7bc9e652de109
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