Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps

The right of people with disability to enjoyment of the highest attainable standard of health without discrimination on the basis of disability is enshrined in the United Nations Convention on the Rights of Persons with Disabilities (CRPD). Among its obligations as a signatory to the CRPD, Australia...

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Autores principales:	Nicola Fortune, Rosamond H. Madden, Shane Clifton
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	health services disability data gaps disability identification International Classification of Functioning, Disability and Health (ICF) Convention on the Rights of Persons with Disabilities (CRPD) Medicine R
Acceso en línea:	https://doaj.org/article/bbadc7de974443f59619815bb772abd9
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spelling	oai:doaj.org-article:bbadc7de974443f59619815bb772abd92021-11-11T16:46:55ZHealth and Access to Health Services for People with Disability in Australia: Data and Data Gaps10.3390/ijerph1821117051660-46011661-7827https://doaj.org/article/bbadc7de974443f59619815bb772abd92021-11-01T00:00:00Zhttps://www.mdpi.com/1660-4601/18/21/11705https://doaj.org/toc/1661-7827https://doaj.org/toc/1660-4601The right of people with disability to enjoyment of the highest attainable standard of health without discrimination on the basis of disability is enshrined in the United Nations Convention on the Rights of Persons with Disabilities (CRPD). Among its obligations as a signatory to the CRPD, Australia is required to collect appropriate information, including statistical and research data, to inform development and implementation of policies to give effect to the Convention. In this commentary, we first describe how the International Classification of Functioning, Disability and Health (ICF) conceptual model of disability can be operationalised in statistical data collections, with a focus on how this is achieved in key Australian data sources such that people with disability can be identified as a population group. We then review existing statistical data on health and health service use for people with disability in Australia, highlighting data gaps and limitations. Finally, we outline priorities and considerations for improving data on health and access to health services for people with disability. As well as conceptual, practical, and ethical considerations, a key principle that must guide future disability data development is that people with disability and their representative organisations must be involved and participate fully in the development of disability data and statistics, and in their use.Nicola FortuneRosamond H. MaddenShane CliftonMDPI AGarticlehealth servicesdisabilitydata gapsdisability identificationInternational Classification of Functioning, Disability and Health (ICF)Convention on the Rights of Persons with Disabilities (CRPD)MedicineRENInternational Journal of Environmental Research and Public Health, Vol 18, Iss 11705, p 11705 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	health services disability data gaps disability identification International Classification of Functioning, Disability and Health (ICF) Convention on the Rights of Persons with Disabilities (CRPD) Medicine R
spellingShingle	health services disability data gaps disability identification International Classification of Functioning, Disability and Health (ICF) Convention on the Rights of Persons with Disabilities (CRPD) Medicine R Nicola Fortune Rosamond H. Madden Shane Clifton Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps
description	The right of people with disability to enjoyment of the highest attainable standard of health without discrimination on the basis of disability is enshrined in the United Nations Convention on the Rights of Persons with Disabilities (CRPD). Among its obligations as a signatory to the CRPD, Australia is required to collect appropriate information, including statistical and research data, to inform development and implementation of policies to give effect to the Convention. In this commentary, we first describe how the International Classification of Functioning, Disability and Health (ICF) conceptual model of disability can be operationalised in statistical data collections, with a focus on how this is achieved in key Australian data sources such that people with disability can be identified as a population group. We then review existing statistical data on health and health service use for people with disability in Australia, highlighting data gaps and limitations. Finally, we outline priorities and considerations for improving data on health and access to health services for people with disability. As well as conceptual, practical, and ethical considerations, a key principle that must guide future disability data development is that people with disability and their representative organisations must be involved and participate fully in the development of disability data and statistics, and in their use.
format	article
author	Nicola Fortune Rosamond H. Madden Shane Clifton
author_facet	Nicola Fortune Rosamond H. Madden Shane Clifton
author_sort	Nicola Fortune
title	Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps
title_short	Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps
title_full	Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps
title_fullStr	Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps
title_full_unstemmed	Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps
title_sort	health and access to health services for people with disability in australia: data and data gaps
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/bbadc7de974443f59619815bb772abd9
work_keys_str_mv	AT nicolafortune healthandaccesstohealthservicesforpeoplewithdisabilityinaustraliadataanddatagaps AT rosamondhmadden healthandaccesstohealthservicesforpeoplewithdisabilityinaustraliadataanddatagaps AT shaneclifton healthandaccesstohealthservicesforpeoplewithdisabilityinaustraliadataanddatagaps
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Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps

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