Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation

Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation

Abstract Background This study examined the impact of Duchenne muscular dystrophy (DMD) on family-member caregivers in terms of quality of life, life stress, and indirect costs, as compared to a stratified comparison group of parents of similar-age children without DMD. Methods A web-based survey in...

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Autores principales: Carolyn E. Schwartz, Roland B. Stark, Ivana F. Audhya, Katherine L. Gooch
Formato: article
Lenguaje:EN
Publicado: SpringerOpen 2021
Materias:
Duchenne muscular dystrophy
Impact
Caregivers
Quality of life
Resilience
Public aspects of medicine
RA1-1270
Acceso en línea:https://doaj.org/article/bc2b7f86292f48379b318d9bf5310196
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