Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.

<h4>Background</h4>Selection of an appropriate renal replacement modality is of utmost importance for patients with end stage renal disease. Previous studies showed provision of information to and free modality choice by patients to be suboptimal. Therefore, the European Kidney Patients&...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Wim Van Biesen, Sabine N van der Veer, Mark Murphey, Olga Loblova, Simon Davies
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2014
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/bd45289b53564ceaa423966d2d732224
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:bd45289b53564ceaa423966d2d732224
record_format	dspace
spelling	oai:doaj.org-article:bd45289b53564ceaa423966d2d7322242021-11-25T06:06:31ZPatients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.1932-620310.1371/journal.pone.0103914https://doaj.org/article/bd45289b53564ceaa423966d2d7322242014-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/pmid/25079071/?tool=EBIhttps://doaj.org/toc/1932-6203<h4>Background</h4>Selection of an appropriate renal replacement modality is of utmost importance for patients with end stage renal disease. Previous studies showed provision of information to and free modality choice by patients to be suboptimal. Therefore, the European Kidney Patients' Federation (CEAPIR) explored European patients' perceptions regarding information, education and involvement on the modality selection process.<h4>Methods</h4>CEAPIR developed a survey, which was disseminated by the national kidney patient organisations in Europe.<h4>Results</h4>In total, 3867 patients from 36 countries completed the survey. Respondents were either on in-centre haemodialysis (53%) or had a functioning graft (38%) at the time of survey. The majority (78%) evaluated the general information about kidney disease and treatment as helpful, but 39% did not recall being told about alternative treatment options than their current one. Respondents were more often satisfied with information provided on in-centre haemodialysis (90%) and transplantation (87%) than with information provided on peritoneal dialysis (79%) or home haemodialysis (61%), and were more satisfied with information from health care professionals vs other sources such as social media. Most (75%) felt they had been involved in treatment selection, 29% perceived they had no free choice. Involvement in modality selection was associated with enhanced satisfaction with treatment (OR 3.13; 95% CI 2.72-3.60). Many respondents (64%) could not remember receiving education on how to manage their kidney disease in daily life. Perceptions on information seem to differ between countries.<h4>Conclusions</h4>Kidney patients reported to be overall satisfied with the information they received on their disease and treatment, although information seemed mostly to have been focused on one modality. Patients involved in modality selection were more satisfied with their treatment. However, in the perception of the patients, the freedom to choose an alternative modality showed room for improvement.Wim Van BiesenSabine N van der VeerMark MurpheyOlga LoblovaSimon DaviesPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 9, Iss 7, p e103914 (2014)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Wim Van Biesen Sabine N van der Veer Mark Murphey Olga Loblova Simon Davies Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.
description	<h4>Background</h4>Selection of an appropriate renal replacement modality is of utmost importance for patients with end stage renal disease. Previous studies showed provision of information to and free modality choice by patients to be suboptimal. Therefore, the European Kidney Patients' Federation (CEAPIR) explored European patients' perceptions regarding information, education and involvement on the modality selection process.<h4>Methods</h4>CEAPIR developed a survey, which was disseminated by the national kidney patient organisations in Europe.<h4>Results</h4>In total, 3867 patients from 36 countries completed the survey. Respondents were either on in-centre haemodialysis (53%) or had a functioning graft (38%) at the time of survey. The majority (78%) evaluated the general information about kidney disease and treatment as helpful, but 39% did not recall being told about alternative treatment options than their current one. Respondents were more often satisfied with information provided on in-centre haemodialysis (90%) and transplantation (87%) than with information provided on peritoneal dialysis (79%) or home haemodialysis (61%), and were more satisfied with information from health care professionals vs other sources such as social media. Most (75%) felt they had been involved in treatment selection, 29% perceived they had no free choice. Involvement in modality selection was associated with enhanced satisfaction with treatment (OR 3.13; 95% CI 2.72-3.60). Many respondents (64%) could not remember receiving education on how to manage their kidney disease in daily life. Perceptions on information seem to differ between countries.<h4>Conclusions</h4>Kidney patients reported to be overall satisfied with the information they received on their disease and treatment, although information seemed mostly to have been focused on one modality. Patients involved in modality selection were more satisfied with their treatment. However, in the perception of the patients, the freedom to choose an alternative modality showed room for improvement.
format	article
author	Wim Van Biesen Sabine N van der Veer Mark Murphey Olga Loblova Simon Davies
author_facet	Wim Van Biesen Sabine N van der Veer Mark Murphey Olga Loblova Simon Davies
author_sort	Wim Van Biesen
title	Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.
title_short	Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.
title_full	Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.
title_fullStr	Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.
title_full_unstemmed	Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.
title_sort	patients' perceptions of information and education for renal replacement therapy: an independent survey by the european kidney patients' federation on information and support on renal replacement therapy.
publisher	Public Library of Science (PLoS)
publishDate	2014
url	https://doaj.org/article/bd45289b53564ceaa423966d2d732224
work_keys_str_mv	AT wimvanbiesen patientsperceptionsofinformationandeducationforrenalreplacementtherapyanindependentsurveybytheeuropeankidneypatientsfederationoninformationandsupportonrenalreplacementtherapy AT sabinenvanderveer patientsperceptionsofinformationandeducationforrenalreplacementtherapyanindependentsurveybytheeuropeankidneypatientsfederationoninformationandsupportonrenalreplacementtherapy AT markmurphey patientsperceptionsofinformationandeducationforrenalreplacementtherapyanindependentsurveybytheeuropeankidneypatientsfederationoninformationandsupportonrenalreplacementtherapy AT olgaloblova patientsperceptionsofinformationandeducationforrenalreplacementtherapyanindependentsurveybytheeuropeankidneypatientsfederationoninformationandsupportonrenalreplacementtherapy AT simondavies patientsperceptionsofinformationandeducationforrenalreplacementtherapyanindependentsurveybytheeuropeankidneypatientsfederationoninformationandsupportonrenalreplacementtherapy
_version_	1718414187070226432

Patients' perceptions of information and education for renal replacement therapy: an independent survey by the European Kidney Patients' Federation on information and support on renal replacement therapy.

Ejemplares similares