Les mots à ne pas dire : relation de soins et communication en oncologie pédiatrique
In West Africa, pediatric cancer is often treated late, with little chance of recovery. Our work is based on ethnographic surveys carried out in Bamako and Nouakchott. We are interested in how caregivers, parents and their sick child communicate about the disease, the name of which is often avoided....
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| Autores principales: | , |
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| Formato: | article |
| Lenguaje: | FR |
| Publicado: |
Association Anthropologie Médicale Appliquée au Développement et à la Santé
2021
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| Materias: | |
| Acceso en línea: | https://doaj.org/article/bdd8e36385ad4491bfa8536dbafdb845 |
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| Sumario: | In West Africa, pediatric cancer is often treated late, with little chance of recovery. Our work is based on ethnographic surveys carried out in Bamako and Nouakchott. We are interested in how caregivers, parents and their sick child communicate about the disease, the name of which is often avoided. It is about analyzing how they refer to it, the information that is communicated, as well as the understandings and spaces for dialogue that result from it. Over the course of care, communication around the disease is modulated by paradoxical issues – promoting commitment to care, informing, comforting – and by statuses linked to gender, age and social backgrounds. Pediatric oncologists are confronted with specific difficulties: poor knowledge of cancer in general, and the cultural and linguistic diversity of their interlocutors, who have different relationships towards putting the disease and their emotions into words. Although often excluded from the official announcement of their illness, children adapt to the communicative contexts that are offered to them, whether not to say or to evoke in an admissible manner. |
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