The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture

CamCOPS is a free, open-source client–server system for secure data capture in the domain of psychiatry, psychology, and the clinical neurosciences. The client is a cross-platform C++ application, suitable for mobile and offline (disconnected) use. It allows touchscreen data entry by subjects/patien...

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Autores principales:	Rudolf N. Cardinal, Martin Burchell
Formato:	article
Lenguaje:	EN
Publicado:	Frontiers Media S.A. 2021
Materias:	clinical informatics research data capture cognitive assessment psychology psychiatry clinical neurosciences Psychiatry RC435-571
Acceso en línea:	https://doaj.org/article/bf100d743e664392bfb7ac5bde795364
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spelling	oai:doaj.org-article:bf100d743e664392bfb7ac5bde7953642021-11-17T06:51:25ZThe Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture1664-064010.3389/fpsyt.2021.578298https://doaj.org/article/bf100d743e664392bfb7ac5bde7953642021-11-01T00:00:00Zhttps://www.frontiersin.org/articles/10.3389/fpsyt.2021.578298/fullhttps://doaj.org/toc/1664-0640CamCOPS is a free, open-source client–server system for secure data capture in the domain of psychiatry, psychology, and the clinical neurosciences. The client is a cross-platform C++ application, suitable for mobile and offline (disconnected) use. It allows touchscreen data entry by subjects/patients, researchers/clinicians, or both together. It implements a large and extensible range of tasks, from simple questionnaires to complex animated tasks. The client uses encrypted data storage and sends data via an encrypted network connection to a CamCOPS server. Individual institutional users set up and run their own CamCOPS server, so no data is transferred outside the hosting institution's control. The server, written in Python, provides clinically oriented and research-oriented views of tasks, including the tracking of changes over time. It provides an audit trail, export facilities (such as to an institution's primary electronic health record system), and full structured data access subject to authorization. A single CamCOPS server can support multiple research/clinical groups, each having its own identity policy (e.g., fully identifiable for clinical use; de-identified/pseudonymised for research use). Intellectual property rules regarding third-party tasks vary and CamCOPS has several mechanisms to support compliance, including for tasks that may be permitted to some institutions but not others. CamCOPS supports task scheduling and home testing via a simplified user interface. We describe the software, report local information governance approvals within part of the UK National Health Service, and describe illustrative clinical and research uses.Rudolf N. CardinalRudolf N. CardinalMartin BurchellFrontiers Media S.A.articleclinical informaticsresearch data capturecognitive assessmentpsychologypsychiatryclinical neurosciencesPsychiatryRC435-571ENFrontiers in Psychiatry, Vol 12 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	clinical informatics research data capture cognitive assessment psychology psychiatry clinical neurosciences Psychiatry RC435-571
spellingShingle	clinical informatics research data capture cognitive assessment psychology psychiatry clinical neurosciences Psychiatry RC435-571 Rudolf N. Cardinal Rudolf N. Cardinal Martin Burchell The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture
description	CamCOPS is a free, open-source client–server system for secure data capture in the domain of psychiatry, psychology, and the clinical neurosciences. The client is a cross-platform C++ application, suitable for mobile and offline (disconnected) use. It allows touchscreen data entry by subjects/patients, researchers/clinicians, or both together. It implements a large and extensible range of tasks, from simple questionnaires to complex animated tasks. The client uses encrypted data storage and sends data via an encrypted network connection to a CamCOPS server. Individual institutional users set up and run their own CamCOPS server, so no data is transferred outside the hosting institution's control. The server, written in Python, provides clinically oriented and research-oriented views of tasks, including the tracking of changes over time. It provides an audit trail, export facilities (such as to an institution's primary electronic health record system), and full structured data access subject to authorization. A single CamCOPS server can support multiple research/clinical groups, each having its own identity policy (e.g., fully identifiable for clinical use; de-identified/pseudonymised for research use). Intellectual property rules regarding third-party tasks vary and CamCOPS has several mechanisms to support compliance, including for tasks that may be permitted to some institutions but not others. CamCOPS supports task scheduling and home testing via a simplified user interface. We describe the software, report local information governance approvals within part of the UK National Health Service, and describe illustrative clinical and research uses.
format	article
author	Rudolf N. Cardinal Rudolf N. Cardinal Martin Burchell
author_facet	Rudolf N. Cardinal Rudolf N. Cardinal Martin Burchell
author_sort	Rudolf N. Cardinal
title	The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture
title_short	The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture
title_full	The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture
title_fullStr	The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture
title_full_unstemmed	The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture
title_sort	cambridge cognitive and psychiatric assessment kit (camcops): a secure open-source client–server system for mobile research and clinical data capture
publisher	Frontiers Media S.A.
publishDate	2021
url	https://doaj.org/article/bf100d743e664392bfb7ac5bde795364
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The Cambridge Cognitive and Psychiatric Assessment Kit (CamCOPS): A Secure Open-Source Client–Server System for Mobile Research and Clinical Data Capture

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