Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.

<h4>Background</h4>Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly.<h4>Purpose</h4>Therefore, our aim is to describe the barriers and conce...

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Autores principales:	Thijs Devriendt, Pascal Borry, Mahsa Shabani
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/bf27bea8a2764add93e4f259fed831a6
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spelling	oai:doaj.org-article:bf27bea8a2764add93e4f259fed831a62021-12-02T20:15:38ZFactors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.1932-620310.1371/journal.pone.0254202https://doaj.org/article/bf27bea8a2764add93e4f259fed831a62021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0254202https://doaj.org/toc/1932-6203<h4>Background</h4>Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly.<h4>Purpose</h4>Therefore, our aim is to describe the barriers and concerns for the sharing of cohort data, and the implications for data sharing platforms.<h4>Methods</h4>Seventeen participants involved in developing data sharing platforms or tied to cohorts that are to be submitted to platforms were recruited for semi-structured interviews to share views and experiences regarding data sharing.<h4>Results</h4>Credit and recognition, the potential misuse of data, loss of control, lack of resources, socio-cultural factors and ethical and legal barriers are elements that influence decisions on data sharing. Core values underlying these reasons are equality, reciprocity, trust, transparency, gratification and beneficence.<h4>Conclusions</h4>Data generators might use data sharing platforms primarily for collaborative modes of working and network building. Data generators might be unwilling to contribute and share for non-collaborative work, or if no financial resources are provided for sharing data.Thijs DevriendtPascal BorryMahsa ShabaniPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 7, p e0254202 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Thijs Devriendt Pascal Borry Mahsa Shabani Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
description	<h4>Background</h4>Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly.<h4>Purpose</h4>Therefore, our aim is to describe the barriers and concerns for the sharing of cohort data, and the implications for data sharing platforms.<h4>Methods</h4>Seventeen participants involved in developing data sharing platforms or tied to cohorts that are to be submitted to platforms were recruited for semi-structured interviews to share views and experiences regarding data sharing.<h4>Results</h4>Credit and recognition, the potential misuse of data, loss of control, lack of resources, socio-cultural factors and ethical and legal barriers are elements that influence decisions on data sharing. Core values underlying these reasons are equality, reciprocity, trust, transparency, gratification and beneficence.<h4>Conclusions</h4>Data generators might use data sharing platforms primarily for collaborative modes of working and network building. Data generators might be unwilling to contribute and share for non-collaborative work, or if no financial resources are provided for sharing data.
format	article
author	Thijs Devriendt Pascal Borry Mahsa Shabani
author_facet	Thijs Devriendt Pascal Borry Mahsa Shabani
author_sort	Thijs Devriendt
title	Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
title_short	Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
title_full	Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
title_fullStr	Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
title_full_unstemmed	Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
title_sort	factors that influence data sharing through data sharing platforms: a qualitative study on the views and experiences of cohort holders and platform developers.
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/bf27bea8a2764add93e4f259fed831a6
work_keys_str_mv	AT thijsdevriendt factorsthatinfluencedatasharingthroughdatasharingplatformsaqualitativestudyontheviewsandexperiencesofcohortholdersandplatformdevelopers AT pascalborry factorsthatinfluencedatasharingthroughdatasharingplatformsaqualitativestudyontheviewsandexperiencesofcohortholdersandplatformdevelopers AT mahsashabani factorsthatinfluencedatasharingthroughdatasharingplatformsaqualitativestudyontheviewsandexperiencesofcohortholdersandplatformdevelopers
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Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.

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