Informal carers in Sweden – striving for partnership

Purpose Informal carers have an important role in society through their care and support of their long-term ill relatives. Providing informal care is challenging and can lead to caregiver burden; moreover, many support needs of the carers are not met, leading to confusion, disappointment and frustra...

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Autores principales: Elin Blanck, Andreas Fors, Lilas Ali, Margareta Brännström, Inger Ekman
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Lenguaje:EN
Publicado: Taylor & Francis Group 2021
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Acceso en línea:https://doaj.org/article/c4eafd5bd2094b839dee76f3f673bbc0
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spelling oai:doaj.org-article:c4eafd5bd2094b839dee76f3f673bbc02021-11-11T14:23:41ZInformal carers in Sweden – striving for partnership1748-26231748-263110.1080/17482631.2021.1994804https://doaj.org/article/c4eafd5bd2094b839dee76f3f673bbc02021-01-01T00:00:00Zhttp://dx.doi.org/10.1080/17482631.2021.1994804https://doaj.org/toc/1748-2623https://doaj.org/toc/1748-2631Purpose Informal carers have an important role in society through their care and support of their long-term ill relatives. Providing informal care is challenging and can lead to caregiver burden; moreover, many support needs of the carers are not met, leading to confusion, disappointment and frustration. We conducted an interview study to clarify the meaning of support given and received by informal carers to relatives with chronic obstructive pulmonary disease or chronic heart failure. Methods We purposively selected and recruited informants via participants in another study, thereby conducting interviews over the phone from June 2016 to May 2017. In total, we conducted 14 interviews with 12 informants. All interviews were transcribed verbatim and the content was analysed using a phenomenological hermeneutical approach. Result and conclusion Our comprehensive understanding of the meaning of support for these carers is twofold: it is a self-evident struggle for the good life of their relatives and that they want to be carers in partnership. The healthcare system must recognize the efforts of carers and include them in the strategic planning and operational stages of care and treatment for people with long-term illness.Elin BlanckAndreas ForsLilas AliMargareta BrännströmInger EkmanTaylor & Francis Grouparticlecarerschronic illnesschronic obstructive pulmonary diseaseheart failurequalitative researchsupportMedicine (General)R5-920ENInternational Journal of Qualitative Studies on Health & Well-Being, Vol 16, Iss 1 (2021)
institution DOAJ
collection DOAJ
language EN
topic carers
chronic illness
chronic obstructive pulmonary disease
heart failure
qualitative research
support
Medicine (General)
R5-920
spellingShingle carers
chronic illness
chronic obstructive pulmonary disease
heart failure
qualitative research
support
Medicine (General)
R5-920
Elin Blanck
Andreas Fors
Lilas Ali
Margareta Brännström
Inger Ekman
Informal carers in Sweden – striving for partnership
description Purpose Informal carers have an important role in society through their care and support of their long-term ill relatives. Providing informal care is challenging and can lead to caregiver burden; moreover, many support needs of the carers are not met, leading to confusion, disappointment and frustration. We conducted an interview study to clarify the meaning of support given and received by informal carers to relatives with chronic obstructive pulmonary disease or chronic heart failure. Methods We purposively selected and recruited informants via participants in another study, thereby conducting interviews over the phone from June 2016 to May 2017. In total, we conducted 14 interviews with 12 informants. All interviews were transcribed verbatim and the content was analysed using a phenomenological hermeneutical approach. Result and conclusion Our comprehensive understanding of the meaning of support for these carers is twofold: it is a self-evident struggle for the good life of their relatives and that they want to be carers in partnership. The healthcare system must recognize the efforts of carers and include them in the strategic planning and operational stages of care and treatment for people with long-term illness.
format article
author Elin Blanck
Andreas Fors
Lilas Ali
Margareta Brännström
Inger Ekman
author_facet Elin Blanck
Andreas Fors
Lilas Ali
Margareta Brännström
Inger Ekman
author_sort Elin Blanck
title Informal carers in Sweden – striving for partnership
title_short Informal carers in Sweden – striving for partnership
title_full Informal carers in Sweden – striving for partnership
title_fullStr Informal carers in Sweden – striving for partnership
title_full_unstemmed Informal carers in Sweden – striving for partnership
title_sort informal carers in sweden – striving for partnership
publisher Taylor & Francis Group
publishDate 2021
url https://doaj.org/article/c4eafd5bd2094b839dee76f3f673bbc0
work_keys_str_mv AT elinblanck informalcarersinswedenstrivingforpartnership
AT andreasfors informalcarersinswedenstrivingforpartnership
AT lilasali informalcarersinswedenstrivingforpartnership
AT margaretabrannstrom informalcarersinswedenstrivingforpartnership
AT ingerekman informalcarersinswedenstrivingforpartnership
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