Nutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital
Edwin Kigozi,1 Clement Egwela,1 Livingstone Kamoga,1 Scovia Nalugo Mbalinda,1 Mark Kaddumukasa2 1Department of Nursing, School of Health Sciences, College of Health Sciences, Makerere University, Kampala, Uganda; 2School of Medicine, College of Health Sciences, Makerere University, Kampala, UgandaCo...
Guardado en:
| Autores principales: | , , , , |
|---|---|
| Formato: | article |
| Lenguaje: | EN |
| Publicado: |
Dove Medical Press
2021
|
| Materias: | |
| Acceso en línea: | https://doaj.org/article/c5814db69afe4215a95d3d0f0c953304 |
| Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
| id |
oai:doaj.org-article:c5814db69afe4215a95d3d0f0c953304 |
|---|---|
| record_format |
dspace |
| spelling |
oai:doaj.org-article:c5814db69afe4215a95d3d0f0c9533042021-12-02T14:49:47ZNutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital1178-2021https://doaj.org/article/c5814db69afe4215a95d3d0f0c9533042021-07-01T00:00:00Zhttps://www.dovepress.com/nutrition-challenges-of-patients-with-alzheimers-disease-and-related-d-peer-reviewed-fulltext-article-NDThttps://doaj.org/toc/1178-2021Edwin Kigozi,1 Clement Egwela,1 Livingstone Kamoga,1 Scovia Nalugo Mbalinda,1 Mark Kaddumukasa2 1Department of Nursing, School of Health Sciences, College of Health Sciences, Makerere University, Kampala, Uganda; 2School of Medicine, College of Health Sciences, Makerere University, Kampala, UgandaCorrespondence: Edwin KigoziDepartment of Nursing, School of Health Sciences, College of Health Sciences, Makerere University, P.O. Box 7072, Kampala, UgandaTel +256 751410637; +256 778297240Email kigoziedwin165@gmail.comPurpose: The burden of Alzheimer’s dementia greatly impacts patients and their immediate families. Studies on the perspective of caretakers regarding nutrition in patients with Alzheimer’s disease (AD) dementia are lacking. Yet this information is needed to guide clinical care for patients with dementia. The study explored caretakers’ perspective on nutritional challenges faced by patients with Alzheimer’s disease and related Dementias at Butabika National Referral Hospital.Methods: We conducted 20 in-depth interviews and 2 focus group discussions with 20 health workers and 16 caregivers, respectively. The focus group discussions and in-depth interviews were audio-recorded and transcribed. Analysis was conducted using a thematic, constant comparative approach with an emphasis on dominant themes.Results: Participants had a mean age of 37 in the range (27– 44) years. Seventeen (47%) of them were males. Their duration of Care for Dementia to patients was in the range (2– 7) years. The highest level of education was a bachelor’s degree and the primary level was the lowest. Thirteen (35%) were married and twenty-three (65%) were not, and they either survived on salaries or wages as a source of income. The key emerging issues were 1) hindrances to nutritional care in dementia, 2). Factors leading to inadequate nutrition among people with dementia and 3). Recommendations to improve nutrition needs.Conclusion: Caretakers experience challenges ranging from psychotic manifestations of a patient to hindrances in the provision of nutritional care. A better understanding of their experience is essential for the development of interventions to help the family members, health workers and other care takers promote good nutrition in patients with Alzheimer’s dementia. A clear referral system should be established to prevent overcrowding of patients at a mental national referral hospital to ensure adequate timely nutritional support to those admitted. Capacity building programs should continue to address the knowledge gap in nutritional requirements of patients with Alzheimer’s dementia.Keywords: Alzheimer’s disease, dementia, nutrition, challengesKigozi EEgwela CKamoga LNalugo Mbalinda SKaddumukasa MDove Medical Pressarticlealzheimer’s diseasedementianutritionchallengesNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571Neurology. Diseases of the nervous systemRC346-429ENNeuropsychiatric Disease and Treatment, Vol Volume 17, Pp 2473-2480 (2021) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
EN |
| topic |
alzheimer’s disease dementia nutrition challenges Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 |
| spellingShingle |
alzheimer’s disease dementia nutrition challenges Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 Kigozi E Egwela C Kamoga L Nalugo Mbalinda S Kaddumukasa M Nutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital |
| description |
Edwin Kigozi,1 Clement Egwela,1 Livingstone Kamoga,1 Scovia Nalugo Mbalinda,1 Mark Kaddumukasa2 1Department of Nursing, School of Health Sciences, College of Health Sciences, Makerere University, Kampala, Uganda; 2School of Medicine, College of Health Sciences, Makerere University, Kampala, UgandaCorrespondence: Edwin KigoziDepartment of Nursing, School of Health Sciences, College of Health Sciences, Makerere University, P.O. Box 7072, Kampala, UgandaTel +256 751410637; +256 778297240Email kigoziedwin165@gmail.comPurpose: The burden of Alzheimer’s dementia greatly impacts patients and their immediate families. Studies on the perspective of caretakers regarding nutrition in patients with Alzheimer’s disease (AD) dementia are lacking. Yet this information is needed to guide clinical care for patients with dementia. The study explored caretakers’ perspective on nutritional challenges faced by patients with Alzheimer’s disease and related Dementias at Butabika National Referral Hospital.Methods: We conducted 20 in-depth interviews and 2 focus group discussions with 20 health workers and 16 caregivers, respectively. The focus group discussions and in-depth interviews were audio-recorded and transcribed. Analysis was conducted using a thematic, constant comparative approach with an emphasis on dominant themes.Results: Participants had a mean age of 37 in the range (27– 44) years. Seventeen (47%) of them were males. Their duration of Care for Dementia to patients was in the range (2– 7) years. The highest level of education was a bachelor’s degree and the primary level was the lowest. Thirteen (35%) were married and twenty-three (65%) were not, and they either survived on salaries or wages as a source of income. The key emerging issues were 1) hindrances to nutritional care in dementia, 2). Factors leading to inadequate nutrition among people with dementia and 3). Recommendations to improve nutrition needs.Conclusion: Caretakers experience challenges ranging from psychotic manifestations of a patient to hindrances in the provision of nutritional care. A better understanding of their experience is essential for the development of interventions to help the family members, health workers and other care takers promote good nutrition in patients with Alzheimer’s dementia. A clear referral system should be established to prevent overcrowding of patients at a mental national referral hospital to ensure adequate timely nutritional support to those admitted. Capacity building programs should continue to address the knowledge gap in nutritional requirements of patients with Alzheimer’s dementia.Keywords: Alzheimer’s disease, dementia, nutrition, challenges |
| format |
article |
| author |
Kigozi E Egwela C Kamoga L Nalugo Mbalinda S Kaddumukasa M |
| author_facet |
Kigozi E Egwela C Kamoga L Nalugo Mbalinda S Kaddumukasa M |
| author_sort |
Kigozi E |
| title |
Nutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital |
| title_short |
Nutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital |
| title_full |
Nutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital |
| title_fullStr |
Nutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital |
| title_full_unstemmed |
Nutrition Challenges of Patients with Alzheimer’s Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital |
| title_sort |
nutrition challenges of patients with alzheimer’s disease and related dementias: a qualitative study from the perspective of caretakers in a mental national referral hospital |
| publisher |
Dove Medical Press |
| publishDate |
2021 |
| url |
https://doaj.org/article/c5814db69afe4215a95d3d0f0c953304 |
| work_keys_str_mv |
AT kigozie nutritionchallengesofpatientswithalzheimerrsquosdiseaseandrelateddementiasaqualitativestudyfromtheperspectiveofcaretakersinamentalnationalreferralhospital AT egwelac nutritionchallengesofpatientswithalzheimerrsquosdiseaseandrelateddementiasaqualitativestudyfromtheperspectiveofcaretakersinamentalnationalreferralhospital AT kamogal nutritionchallengesofpatientswithalzheimerrsquosdiseaseandrelateddementiasaqualitativestudyfromtheperspectiveofcaretakersinamentalnationalreferralhospital AT nalugombalindas nutritionchallengesofpatientswithalzheimerrsquosdiseaseandrelateddementiasaqualitativestudyfromtheperspectiveofcaretakersinamentalnationalreferralhospital AT kaddumukasam nutritionchallengesofpatientswithalzheimerrsquosdiseaseandrelateddementiasaqualitativestudyfromtheperspectiveofcaretakersinamentalnationalreferralhospital |
| _version_ |
1718389474150318080 |