Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team

Plain English Summary Immigrants often find accessing and navigating the healthcare system difficult upon arriving in Canada. Difficulties are often due to cultural differences, language barriers, limited health literacy, and health system complexity. This article shares the experiences of our resea...

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Autores principales:	Lindsey Boechler, Steven Renwick, Abdullateef Alabi, Harold de la Torre, Susheel Kumar, Harmanpreet Singh, Roshan Xavier, Dalise Hector, Lauren McTaggart, Jennifer Shrubsole
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Patient-oriented research Immigrant health Health disparities Accessible health care Canada Medicine R Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/cbf381e40558490083ff9d1a6183e8f3
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spelling	oai:doaj.org-article:cbf381e40558490083ff9d1a6183e8f32021-11-14T12:16:32ZBeyond the role of participant: a firsthand account of the experiences of a patient-oriented research team10.1186/s40900-021-00323-92056-7529https://doaj.org/article/cbf381e40558490083ff9d1a6183e8f32021-11-01T00:00:00Zhttps://doi.org/10.1186/s40900-021-00323-9https://doaj.org/toc/2056-7529Plain English Summary Immigrants often find accessing and navigating the healthcare system difficult upon arriving in Canada. Difficulties are often due to cultural differences, language barriers, limited health literacy, and health system complexity. This article shares the experiences of our research team as we engaged in patient-oriented research (POR) to better understand the unique barriers faced by newcomers trying to access and navigate the health system after immigrating to Canada. POR teams include researchers, patient partners, health care providers, and policymakers working together throughout each stage of the research process. This method of research embraces patient experience as expertise and provides patients an opportunity to influence decisions about their care. This research approach is aimed to improve patient outcomes by focusing on patient priorities. Through sharing our experiences, this article defines POR, describes the creation of our research team, and shares how impactful co-creating research with patients was for our team. Lastly, we provide examples of how taking a POR approach can increase research capacity and personal growth for both patient partners and researchers.Lindsey BoechlerSteven RenwickAbdullateef AlabiHarold de la TorreSusheel KumarHarmanpreet SinghRoshan XavierDalise HectorLauren McTaggartJennifer ShrubsoleBMCarticlePatient-oriented researchImmigrant healthHealth disparitiesAccessible health careCanadaMedicineRMedicine (General)R5-920ENResearch Involvement and Engagement, Vol 7, Iss 1, Pp 1-7 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Patient-oriented research Immigrant health Health disparities Accessible health care Canada Medicine R Medicine (General) R5-920
spellingShingle	Patient-oriented research Immigrant health Health disparities Accessible health care Canada Medicine R Medicine (General) R5-920 Lindsey Boechler Steven Renwick Abdullateef Alabi Harold de la Torre Susheel Kumar Harmanpreet Singh Roshan Xavier Dalise Hector Lauren McTaggart Jennifer Shrubsole Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
description	Plain English Summary Immigrants often find accessing and navigating the healthcare system difficult upon arriving in Canada. Difficulties are often due to cultural differences, language barriers, limited health literacy, and health system complexity. This article shares the experiences of our research team as we engaged in patient-oriented research (POR) to better understand the unique barriers faced by newcomers trying to access and navigate the health system after immigrating to Canada. POR teams include researchers, patient partners, health care providers, and policymakers working together throughout each stage of the research process. This method of research embraces patient experience as expertise and provides patients an opportunity to influence decisions about their care. This research approach is aimed to improve patient outcomes by focusing on patient priorities. Through sharing our experiences, this article defines POR, describes the creation of our research team, and shares how impactful co-creating research with patients was for our team. Lastly, we provide examples of how taking a POR approach can increase research capacity and personal growth for both patient partners and researchers.
format	article
author	Lindsey Boechler Steven Renwick Abdullateef Alabi Harold de la Torre Susheel Kumar Harmanpreet Singh Roshan Xavier Dalise Hector Lauren McTaggart Jennifer Shrubsole
author_facet	Lindsey Boechler Steven Renwick Abdullateef Alabi Harold de la Torre Susheel Kumar Harmanpreet Singh Roshan Xavier Dalise Hector Lauren McTaggart Jennifer Shrubsole
author_sort	Lindsey Boechler
title	Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
title_short	Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
title_full	Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
title_fullStr	Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
title_full_unstemmed	Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
title_sort	beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
publisher	BMC
publishDate	2021
url	https://doaj.org/article/cbf381e40558490083ff9d1a6183e8f3
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Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team

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