Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team
Plain English Summary Immigrants often find accessing and navigating the healthcare system difficult upon arriving in Canada. Difficulties are often due to cultural differences, language barriers, limited health literacy, and health system complexity. This article shares the experiences of our resea...
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2021
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oai:doaj.org-article:cbf381e40558490083ff9d1a6183e8f32021-11-14T12:16:32ZBeyond the role of participant: a firsthand account of the experiences of a patient-oriented research team10.1186/s40900-021-00323-92056-7529https://doaj.org/article/cbf381e40558490083ff9d1a6183e8f32021-11-01T00:00:00Zhttps://doi.org/10.1186/s40900-021-00323-9https://doaj.org/toc/2056-7529Plain English Summary Immigrants often find accessing and navigating the healthcare system difficult upon arriving in Canada. Difficulties are often due to cultural differences, language barriers, limited health literacy, and health system complexity. This article shares the experiences of our research team as we engaged in patient-oriented research (POR) to better understand the unique barriers faced by newcomers trying to access and navigate the health system after immigrating to Canada. POR teams include researchers, patient partners, health care providers, and policymakers working together throughout each stage of the research process. This method of research embraces patient experience as expertise and provides patients an opportunity to influence decisions about their care. This research approach is aimed to improve patient outcomes by focusing on patient priorities. Through sharing our experiences, this article defines POR, describes the creation of our research team, and shares how impactful co-creating research with patients was for our team. Lastly, we provide examples of how taking a POR approach can increase research capacity and personal growth for both patient partners and researchers.Lindsey BoechlerSteven RenwickAbdullateef AlabiHarold de la TorreSusheel KumarHarmanpreet SinghRoshan XavierDalise HectorLauren McTaggartJennifer ShrubsoleBMCarticlePatient-oriented researchImmigrant healthHealth disparitiesAccessible health careCanadaMedicineRMedicine (General)R5-920ENResearch Involvement and Engagement, Vol 7, Iss 1, Pp 1-7 (2021) |
institution |
DOAJ |
collection |
DOAJ |
language |
EN |
topic |
Patient-oriented research Immigrant health Health disparities Accessible health care Canada Medicine R Medicine (General) R5-920 |
spellingShingle |
Patient-oriented research Immigrant health Health disparities Accessible health care Canada Medicine R Medicine (General) R5-920 Lindsey Boechler Steven Renwick Abdullateef Alabi Harold de la Torre Susheel Kumar Harmanpreet Singh Roshan Xavier Dalise Hector Lauren McTaggart Jennifer Shrubsole Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team |
description |
Plain English Summary Immigrants often find accessing and navigating the healthcare system difficult upon arriving in Canada. Difficulties are often due to cultural differences, language barriers, limited health literacy, and health system complexity. This article shares the experiences of our research team as we engaged in patient-oriented research (POR) to better understand the unique barriers faced by newcomers trying to access and navigate the health system after immigrating to Canada. POR teams include researchers, patient partners, health care providers, and policymakers working together throughout each stage of the research process. This method of research embraces patient experience as expertise and provides patients an opportunity to influence decisions about their care. This research approach is aimed to improve patient outcomes by focusing on patient priorities. Through sharing our experiences, this article defines POR, describes the creation of our research team, and shares how impactful co-creating research with patients was for our team. Lastly, we provide examples of how taking a POR approach can increase research capacity and personal growth for both patient partners and researchers. |
format |
article |
author |
Lindsey Boechler Steven Renwick Abdullateef Alabi Harold de la Torre Susheel Kumar Harmanpreet Singh Roshan Xavier Dalise Hector Lauren McTaggart Jennifer Shrubsole |
author_facet |
Lindsey Boechler Steven Renwick Abdullateef Alabi Harold de la Torre Susheel Kumar Harmanpreet Singh Roshan Xavier Dalise Hector Lauren McTaggart Jennifer Shrubsole |
author_sort |
Lindsey Boechler |
title |
Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team |
title_short |
Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team |
title_full |
Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team |
title_fullStr |
Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team |
title_full_unstemmed |
Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team |
title_sort |
beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team |
publisher |
BMC |
publishDate |
2021 |
url |
https://doaj.org/article/cbf381e40558490083ff9d1a6183e8f3 |
work_keys_str_mv |
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