Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners

Abstract In 2015, the Parkinson’s Disease Foundation sponsored the first international meeting on Palliative Care and Parkinson’s disease and the Patient Centered Outcomes Research Institute funded the first comparative effectiveness trial of palliative care for Parkinson’s disease. A council of Par...

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Autores principales:	Kirk Hall, Malenna Sumrall, Gil Thelen, Benzi M. Kluger, on behalf of the 2015 Parkinson’s Disease Foundation sponsored “Palliative Care and Parkinson’s Disease” Patient Advisory Council
Formato:	article
Lenguaje:	EN
Publicado:	Nature Portfolio 2017
Materias:	Neurology. Diseases of the nervous system RC346-429
Acceso en línea:	https://doaj.org/article/cfe08b2b00b54b81b0ab4be331975eb2
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spelling	oai:doaj.org-article:cfe08b2b00b54b81b0ab4be331975eb22021-12-02T15:10:33ZPalliative care for Parkinson’s disease: suggestions from a council of patient and carepartners10.1038/s41531-017-0016-22373-8057https://doaj.org/article/cfe08b2b00b54b81b0ab4be331975eb22017-05-01T00:00:00Zhttps://doi.org/10.1038/s41531-017-0016-2https://doaj.org/toc/2373-8057Abstract In 2015, the Parkinson’s Disease Foundation sponsored the first international meeting on Palliative Care and Parkinson’s disease and the Patient Centered Outcomes Research Institute funded the first comparative effectiveness trial of palliative care for Parkinson’s disease. A council of Parkinson’s disease patients and carepartners was engaged to assist with both projects. This council wrote the following manuscript as an opinion piece addressed to the clinical and research community on how palliative care could be applied to people living with Parkinson’s disease and their families. The council endorses palliative care as an approach to the care of Parkinson’s disease patients and their families that seeks to reduce suffering through spiritual, psychosocial, and medical support. This approach should start at the time of diagnosis, as this is a very challenging time for patients and carepartners; includes better emotional support, educational resources, and closer follow-up than is currently standard; and continue through end-of-life care and bereavement.Kirk HallMalenna SumrallGil ThelenBenzi M. Klugeron behalf of the 2015 Parkinson’s Disease Foundation sponsored “Palliative Care and Parkinson’s Disease” Patient Advisory CouncilNature PortfolioarticleNeurology. Diseases of the nervous systemRC346-429ENnpj Parkinson's Disease, Vol 3, Iss 1, Pp 1-3 (2017)
institution	DOAJ
collection	DOAJ
language	EN
topic	Neurology. Diseases of the nervous system RC346-429
spellingShingle	Neurology. Diseases of the nervous system RC346-429 Kirk Hall Malenna Sumrall Gil Thelen Benzi M. Kluger on behalf of the 2015 Parkinson’s Disease Foundation sponsored “Palliative Care and Parkinson’s Disease” Patient Advisory Council Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners
description	Abstract In 2015, the Parkinson’s Disease Foundation sponsored the first international meeting on Palliative Care and Parkinson’s disease and the Patient Centered Outcomes Research Institute funded the first comparative effectiveness trial of palliative care for Parkinson’s disease. A council of Parkinson’s disease patients and carepartners was engaged to assist with both projects. This council wrote the following manuscript as an opinion piece addressed to the clinical and research community on how palliative care could be applied to people living with Parkinson’s disease and their families. The council endorses palliative care as an approach to the care of Parkinson’s disease patients and their families that seeks to reduce suffering through spiritual, psychosocial, and medical support. This approach should start at the time of diagnosis, as this is a very challenging time for patients and carepartners; includes better emotional support, educational resources, and closer follow-up than is currently standard; and continue through end-of-life care and bereavement.
format	article
author	Kirk Hall Malenna Sumrall Gil Thelen Benzi M. Kluger on behalf of the 2015 Parkinson’s Disease Foundation sponsored “Palliative Care and Parkinson’s Disease” Patient Advisory Council
author_facet	Kirk Hall Malenna Sumrall Gil Thelen Benzi M. Kluger on behalf of the 2015 Parkinson’s Disease Foundation sponsored “Palliative Care and Parkinson’s Disease” Patient Advisory Council
author_sort	Kirk Hall
title	Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners
title_short	Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners
title_full	Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners
title_fullStr	Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners
title_full_unstemmed	Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners
title_sort	palliative care for parkinson’s disease: suggestions from a council of patient and carepartners
publisher	Nature Portfolio
publishDate	2017
url	https://doaj.org/article/cfe08b2b00b54b81b0ab4be331975eb2
work_keys_str_mv	AT kirkhall palliativecareforparkinsonsdiseasesuggestionsfromacouncilofpatientandcarepartners AT malennasumrall palliativecareforparkinsonsdiseasesuggestionsfromacouncilofpatientandcarepartners AT gilthelen palliativecareforparkinsonsdiseasesuggestionsfromacouncilofpatientandcarepartners AT benzimkluger palliativecareforparkinsonsdiseasesuggestionsfromacouncilofpatientandcarepartners AT onbehalfofthe2015parkinsonsdiseasefoundationsponsoredpalliativecareandparkinsonsdiseasepatientadvisorycouncil palliativecareforparkinsonsdiseasesuggestionsfromacouncilofpatientandcarepartners
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Palliative care for Parkinson’s disease: suggestions from a council of patient and carepartners

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