How information sharing can improve patient and family experience in critical care: A focus group study

The experience of being in hospital critical care has major impacts upon the patient, their family and carers. This situation is likely to be stressful, fast changing and challenging for those involved. Crucial to this encounter are factors relating to information sharing between the clinical team,...

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Autores principales:	Jayne Garner, Sioban Kelly, Girendra Sadera, Victoria Treadway
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2020
Materias:	patient experience information critical care Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/d01aa4155a884adfa5fc2567ac0b5d6a
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spelling	oai:doaj.org-article:d01aa4155a884adfa5fc2567ac0b5d6a2021-11-15T04:31:28ZHow information sharing can improve patient and family experience in critical care: A focus group study2372-0247https://doaj.org/article/d01aa4155a884adfa5fc2567ac0b5d6a2020-11-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss3/13https://doaj.org/toc/2372-0247The experience of being in hospital critical care has major impacts upon the patient, their family and carers. This situation is likely to be stressful, fast changing and challenging for those involved. Crucial to this encounter are factors relating to information sharing between the clinical team, the patient, family and carers. Focus groups at a UK hospital site with former patients, their families and carers provides insight into their journey and the factors that influence this. Issues that emerged included the format of information, how and who delivered this, communication transition out of critical care and leaving hospital. While participants expressed the need for personalised information, they also requested practical guidance at appropriate times in accessible formats. The encouragement from staff to keep diaries and record the patient’s journey was very valued and helped recall and share progress in difficult and challenging situations. Support and coordination of care when leaving critical care and the hospital also requires planning and communication with the patient, their family and carers and relevant health care teams. The experience of patients, their families and carers is important to understand in order to ensure future services can be tailored to meet their requirements. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>Jayne GarnerSioban KellyGirendra SaderaVictoria TreadwayThe Beryl Institutearticlepatient experience informationcritical careMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience information critical care Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience information critical care Medicine (General) R5-920 Public aspects of medicine RA1-1270 Jayne Garner Sioban Kelly Girendra Sadera Victoria Treadway How information sharing can improve patient and family experience in critical care: A focus group study
description	The experience of being in hospital critical care has major impacts upon the patient, their family and carers. This situation is likely to be stressful, fast changing and challenging for those involved. Crucial to this encounter are factors relating to information sharing between the clinical team, the patient, family and carers. Focus groups at a UK hospital site with former patients, their families and carers provides insight into their journey and the factors that influence this. Issues that emerged included the format of information, how and who delivered this, communication transition out of critical care and leaving hospital. While participants expressed the need for personalised information, they also requested practical guidance at appropriate times in accessible formats. The encouragement from staff to keep diaries and record the patient’s journey was very valued and helped recall and share progress in difficult and challenging situations. Support and coordination of care when leaving critical care and the hospital also requires planning and communication with the patient, their family and carers and relevant health care teams. The experience of patients, their families and carers is important to understand in order to ensure future services can be tailored to meet their requirements. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Jayne Garner Sioban Kelly Girendra Sadera Victoria Treadway
author_facet	Jayne Garner Sioban Kelly Girendra Sadera Victoria Treadway
author_sort	Jayne Garner
title	How information sharing can improve patient and family experience in critical care: A focus group study
title_short	How information sharing can improve patient and family experience in critical care: A focus group study
title_full	How information sharing can improve patient and family experience in critical care: A focus group study
title_fullStr	How information sharing can improve patient and family experience in critical care: A focus group study
title_full_unstemmed	How information sharing can improve patient and family experience in critical care: A focus group study
title_sort	how information sharing can improve patient and family experience in critical care: a focus group study
publisher	The Beryl Institute
publishDate	2020
url	https://doaj.org/article/d01aa4155a884adfa5fc2567ac0b5d6a
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How information sharing can improve patient and family experience in critical care: A focus group study

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