Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments

This manuscript summarizes available evidence-based best practices in the development, translation, and cultural adaptation of one type of outcome measure for adults with hearing impairment, patient-reported outcome measures (PROMs). It presents the development of the Cochlear Implant Quality of Lif...

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Autores principales:	Ariane Laplante-Lévesque, Judy R. Dubno, Isabelle Mosnier, Evelyne Ferrary, Theodore R. McRackan
Formato:	article
Lenguaje:	EN
Publicado:	Frontiers Media S.A. 2021
Materias:	patient-reported outcome measure (PROM) questionnaire PROM development PROM translation PROM cultural adaptation quality of life Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571
Acceso en línea:	https://doaj.org/article/d4122df6c5014dcea4a0d8ddec50f264
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spelling	oai:doaj.org-article:d4122df6c5014dcea4a0d8ddec50f2642021-11-30T19:58:10ZBest Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments1662-453X10.3389/fnins.2021.718416https://doaj.org/article/d4122df6c5014dcea4a0d8ddec50f2642021-11-01T00:00:00Zhttps://www.frontiersin.org/articles/10.3389/fnins.2021.718416/fullhttps://doaj.org/toc/1662-453XThis manuscript summarizes available evidence-based best practices in the development, translation, and cultural adaptation of one type of outcome measure for adults with hearing impairment, patient-reported outcome measures (PROMs). It presents the development of the Cochlear Implant Quality of Life (CIQOL) instruments and the ongoing translation and cultural adaptation of the CIQOL-35 Profile from English to French as case studies and discusses useful lessons for selecting, developing, translating, culturally adapting, and using PROMs. Relevant best practice guides are introduced, described and their steps are illustrated with examples. Future trends in hearing-related PROMs, including computerized adaptive testing, patient-reported experience measures (PREMs), economic evaluation and allocation of scarce resources, and PROMs in low-resource settings, are discussed. The manuscript concludes on the lessons that can be learned from implementation science for the successful and sustainable integration of PROMs in clinical practice.Ariane Laplante-LévesqueAriane Laplante-LévesqueJudy R. DubnoIsabelle MosnierIsabelle MosnierEvelyne FerraryEvelyne FerraryTheodore R. McRackanFrontiers Media S.A.articlepatient-reported outcome measure (PROM)questionnairePROM developmentPROM translationPROM cultural adaptationquality of lifeNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571ENFrontiers in Neuroscience, Vol 15 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient-reported outcome measure (PROM) questionnaire PROM development PROM translation PROM cultural adaptation quality of life Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571
spellingShingle	patient-reported outcome measure (PROM) questionnaire PROM development PROM translation PROM cultural adaptation quality of life Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Ariane Laplante-Lévesque Ariane Laplante-Lévesque Judy R. Dubno Isabelle Mosnier Isabelle Mosnier Evelyne Ferrary Evelyne Ferrary Theodore R. McRackan Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments
description	This manuscript summarizes available evidence-based best practices in the development, translation, and cultural adaptation of one type of outcome measure for adults with hearing impairment, patient-reported outcome measures (PROMs). It presents the development of the Cochlear Implant Quality of Life (CIQOL) instruments and the ongoing translation and cultural adaptation of the CIQOL-35 Profile from English to French as case studies and discusses useful lessons for selecting, developing, translating, culturally adapting, and using PROMs. Relevant best practice guides are introduced, described and their steps are illustrated with examples. Future trends in hearing-related PROMs, including computerized adaptive testing, patient-reported experience measures (PREMs), economic evaluation and allocation of scarce resources, and PROMs in low-resource settings, are discussed. The manuscript concludes on the lessons that can be learned from implementation science for the successful and sustainable integration of PROMs in clinical practice.
format	article
author	Ariane Laplante-Lévesque Ariane Laplante-Lévesque Judy R. Dubno Isabelle Mosnier Isabelle Mosnier Evelyne Ferrary Evelyne Ferrary Theodore R. McRackan
author_facet	Ariane Laplante-Lévesque Ariane Laplante-Lévesque Judy R. Dubno Isabelle Mosnier Isabelle Mosnier Evelyne Ferrary Evelyne Ferrary Theodore R. McRackan
author_sort	Ariane Laplante-Lévesque
title	Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments
title_short	Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments
title_full	Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments
title_fullStr	Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments
title_full_unstemmed	Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments
title_sort	best practices in the development, translation, and cultural adaptation of patient-reported outcome measures for adults with hearing impairment: lessons from the cochlear implant quality of life instruments
publisher	Frontiers Media S.A.
publishDate	2021
url	https://doaj.org/article/d4122df6c5014dcea4a0d8ddec50f264
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Best Practices in the Development, Translation, and Cultural Adaptation of Patient-Reported Outcome Measures for Adults With Hearing Impairment: Lessons From the Cochlear Implant Quality of Life Instruments

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