Potentials and current shortcomings in the cooperation between German centers for rare diseases and primary care physicians: results from the project TRANSLATE-NAMSE
Abstract Background The TRANSLATE-NAMSE project with the strengthening of the centers for rare diseases with their affiliation to the European Reference Networks was a major step towards the implementation of the German National Plan of Action for People with Rare Diseases establishing better care s...
Guardado en:
Autores principales: | D. Druschke, F. Krause, G. Müller, J. Scharfe, G. F. Hoffmann, J. Schmitt, TRANSLATE-NAMSE-Consortium |
---|---|
Formato: | article |
Lenguaje: | EN |
Publicado: |
BMC
2021
|
Materias: | |
Acceso en línea: | https://doaj.org/article/d48167600882492aa8e912e0fabd6c0f |
Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
Ejemplares similares
-
An Integrated clinical pathway for diagnosis, treatment and care of rare diseases: model, operating procedures, and results of the project TRANSLATE-NAMSE funded by the German Federal Joint Committee
por: Daniela Choukair, et al.
Publicado: (2021) -
Uptake of Vaccinations among Children with Chronic Diseases Is Affected by Knowledge Gaps and Implementation Challenges in Italy
por: Alessandra Beni, et al.
Publicado: (2021) -
Journal of the American Academy of Nurse Practitioners
Publicado: (1989) -
Modalities and Determinants of Career Paths in Pediatrics: A Survey of Former Pediatric Residents From Lille University Medical Center
por: Charlotte Héritier-Laffargue, et al.
Publicado: (2021) -
Burden of Disease, Unmet Needs in the Diagnosis and Management of Atopic Dermatitis: An Indian Expert Consensus
por: Rajagopalan M, et al.
Publicado: (2021)