Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support

Because of disease progression and the increasing number of treatment options, patients with metastatic breast cancer face multiple decisions over time. Our aim was to identify the multiple decisions patients with metastatic breast cancer face in order to decide which decision aids will be developed...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Julie van de Haterd, Helene Voogdt-Pruis, Ilse Raats, Rianne van den Brink, Haske van Veenendaal
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2016
Materias:	shared decision making breast cancer decision aids patient-centred care healthcare Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/d531def58b62486e90d229c281c800ac
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:d531def58b62486e90d229c281c800ac
record_format	dspace
spelling	oai:doaj.org-article:d531def58b62486e90d229c281c800ac2021-11-15T04:21:38ZPreference-sensitive decisions of patients with metastatic breast cancer: The need for decision support2372-0247https://doaj.org/article/d531def58b62486e90d229c281c800ac2016-04-01T00:00:00Zhttps://pxjournal.org/journal/vol3/iss1/8https://doaj.org/toc/2372-0247Because of disease progression and the increasing number of treatment options, patients with metastatic breast cancer face multiple decisions over time. Our aim was to identify the multiple decisions patients with metastatic breast cancer face in order to decide which decision aids will be developed. First, we analyzed the clinical practice guidelines to identify decisions encountered by patients with metastatic breast cancer and healthcare professionals. Furthermore, an online questionnaire for patients, a focus group interview with patients and interviews with healthcare professionals were performed. In addition, we performed a systematic literature research and internet search to identify relevant decision support tools and we assessed their quality. Finally, all results were discussed with a mixed group of eight experts, consisting of researchers, patients and healthcare professionals and a comprehensive advice was given which decision aid to develop. It turned out that patients with metastatic breast cancer and healthcare professionals are confronted with eight major decision points regarding treatment and examinations during the care process. We identified four decision aids. These tools partially overlap with some of the identified decision points. Experts advised to develop a decision aid for patients with metastatic breast cancer that would address all mentioned decision points. We concluded patients with metastatic breast cancer and healthcare professionals will benefit from a personalized decision aid in which all eight major decision points are addressed. This decision aid would help patients and healthcare professionals to explore patients’ personal values and preferences in order to make a well-informed decision.Julie van de HaterdHelene Voogdt-PruisIlse RaatsRianne van den BrinkHaske van VeenendaalThe Beryl Institutearticleshared decision makingbreast cancerdecision aidspatient-centred carehealthcareMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2016)
institution	DOAJ
collection	DOAJ
language	EN
topic	shared decision making breast cancer decision aids patient-centred care healthcare Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	shared decision making breast cancer decision aids patient-centred care healthcare Medicine (General) R5-920 Public aspects of medicine RA1-1270 Julie van de Haterd Helene Voogdt-Pruis Ilse Raats Rianne van den Brink Haske van Veenendaal Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support
description	Because of disease progression and the increasing number of treatment options, patients with metastatic breast cancer face multiple decisions over time. Our aim was to identify the multiple decisions patients with metastatic breast cancer face in order to decide which decision aids will be developed. First, we analyzed the clinical practice guidelines to identify decisions encountered by patients with metastatic breast cancer and healthcare professionals. Furthermore, an online questionnaire for patients, a focus group interview with patients and interviews with healthcare professionals were performed. In addition, we performed a systematic literature research and internet search to identify relevant decision support tools and we assessed their quality. Finally, all results were discussed with a mixed group of eight experts, consisting of researchers, patients and healthcare professionals and a comprehensive advice was given which decision aid to develop. It turned out that patients with metastatic breast cancer and healthcare professionals are confronted with eight major decision points regarding treatment and examinations during the care process. We identified four decision aids. These tools partially overlap with some of the identified decision points. Experts advised to develop a decision aid for patients with metastatic breast cancer that would address all mentioned decision points. We concluded patients with metastatic breast cancer and healthcare professionals will benefit from a personalized decision aid in which all eight major decision points are addressed. This decision aid would help patients and healthcare professionals to explore patients’ personal values and preferences in order to make a well-informed decision.
format	article
author	Julie van de Haterd Helene Voogdt-Pruis Ilse Raats Rianne van den Brink Haske van Veenendaal
author_facet	Julie van de Haterd Helene Voogdt-Pruis Ilse Raats Rianne van den Brink Haske van Veenendaal
author_sort	Julie van de Haterd
title	Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support
title_short	Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support
title_full	Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support
title_fullStr	Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support
title_full_unstemmed	Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support
title_sort	preference-sensitive decisions of patients with metastatic breast cancer: the need for decision support
publisher	The Beryl Institute
publishDate	2016
url	https://doaj.org/article/d531def58b62486e90d229c281c800ac
work_keys_str_mv	AT julievandehaterd preferencesensitivedecisionsofpatientswithmetastaticbreastcancertheneedfordecisionsupport AT helenevoogdtpruis preferencesensitivedecisionsofpatientswithmetastaticbreastcancertheneedfordecisionsupport AT ilseraats preferencesensitivedecisionsofpatientswithmetastaticbreastcancertheneedfordecisionsupport AT riannevandenbrink preferencesensitivedecisionsofpatientswithmetastaticbreastcancertheneedfordecisionsupport AT haskevanveenendaal preferencesensitivedecisionsofpatientswithmetastaticbreastcancertheneedfordecisionsupport
_version_	1718428897603747840

Preference-sensitive decisions of patients with metastatic breast cancer: The need for decision support

Ejemplares similares