Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative

In this paper we discuss the experience of caregiving for children living with HIV in a resource poor environment in Gulu municipality in northern Uganda; the main research questions of the study were: what are the perceptions of caregivers on the care of children with HIV, and what barriers and ena...

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Autor principal:	Constantine Loum
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2014
Materias:	hiv/aids caregivers’ disease perception health and illness antiretroviral therapy quality of life. Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/d6fc57e1a8ed45adbff6e0ca24383149
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spelling	oai:doaj.org-article:d6fc57e1a8ed45adbff6e0ca243831492021-11-15T03:34:05ZCaregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative2372-0247https://doaj.org/article/d6fc57e1a8ed45adbff6e0ca243831492014-04-01T00:00:00Zhttps://pxjournal.org/journal/vol1/iss1/20https://doaj.org/toc/2372-0247In this paper we discuss the experience of caregiving for children living with HIV in a resource poor environment in Gulu municipality in northern Uganda; the main research questions of the study were: what are the perceptions of caregivers on the care of children with HIV, and what barriers and enablers exist that undermine or promote better care for children respectively? The experience of caregivers and their perceptions on managing HIV in children is believed to shape the health seeking behaviour towards treatment and efforts to cope with its negative impact on the body. Women and children are the greatest bearer of the burden of the HIV scourge to date. While more and more children are undergoing treatment as a way of controlling HIV/AIDS, it is still crucial to understand the perceptions of their parents and/or caregivers on the AIDS pandemic and the impact of antiretroviral therapy on the quality of life of their children. In this paper the socio-medical views of these clients, based on an ethnographic study are discussed to give a holistic understanding of the ‘crisis’ of HIV/AIDS as well as their ‘imagined’ hopes, fears and expectations on antiretroviral therapy as HIV/AIDS become a chronic disease. Five themes emerged from analysing the experiences and perceptions of caregivers of children living with HIV: beliefs in the antiretroviral therapy, psychological counselling, family breakdown, positive living with HIV and social stigma. These were central in their perception of caring for the affected children and other family members.Constantine LoumThe Beryl Institutearticlehiv/aidscaregivers’ disease perceptionhealth and illnessantiretroviral therapyquality of life.Medicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal, Vol 1, Iss 1 (2014)
institution	DOAJ
collection	DOAJ
language	EN
topic	hiv/aids caregivers’ disease perception health and illness antiretroviral therapy quality of life. Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	hiv/aids caregivers’ disease perception health and illness antiretroviral therapy quality of life. Medicine (General) R5-920 Public aspects of medicine RA1-1270 Constantine Loum Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative
description	In this paper we discuss the experience of caregiving for children living with HIV in a resource poor environment in Gulu municipality in northern Uganda; the main research questions of the study were: what are the perceptions of caregivers on the care of children with HIV, and what barriers and enablers exist that undermine or promote better care for children respectively? The experience of caregivers and their perceptions on managing HIV in children is believed to shape the health seeking behaviour towards treatment and efforts to cope with its negative impact on the body. Women and children are the greatest bearer of the burden of the HIV scourge to date. While more and more children are undergoing treatment as a way of controlling HIV/AIDS, it is still crucial to understand the perceptions of their parents and/or caregivers on the AIDS pandemic and the impact of antiretroviral therapy on the quality of life of their children. In this paper the socio-medical views of these clients, based on an ethnographic study are discussed to give a holistic understanding of the ‘crisis’ of HIV/AIDS as well as their ‘imagined’ hopes, fears and expectations on antiretroviral therapy as HIV/AIDS become a chronic disease. Five themes emerged from analysing the experiences and perceptions of caregivers of children living with HIV: beliefs in the antiretroviral therapy, psychological counselling, family breakdown, positive living with HIV and social stigma. These were central in their perception of caring for the affected children and other family members.
format	article
author	Constantine Loum
author_facet	Constantine Loum
author_sort	Constantine Loum
title	Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative
title_short	Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative
title_full	Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative
title_fullStr	Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative
title_full_unstemmed	Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative
title_sort	caregiving and the experience of health and illness in children living with hiv/aids in gulu district northern uganda: an ethnographic research narrative
publisher	The Beryl Institute
publishDate	2014
url	https://doaj.org/article/d6fc57e1a8ed45adbff6e0ca24383149
work_keys_str_mv	AT constantineloum caregivingandtheexperienceofhealthandillnessinchildrenlivingwithhivaidsinguludistrictnorthernugandaanethnographicresearchnarrative
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Caregiving and the experience of health and illness in children living with HIV/AIDS in Gulu District Northern Uganda: An ethnographic research narrative

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