Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is...
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| Autores principales: | , , |
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| Formato: | article |
| Lenguaje: | FR |
| Publicado: |
Association Anthropologie Médicale Appliquée au Développement et à la Santé
2021
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| Materias: | |
| Acceso en línea: | https://doaj.org/article/d71af9c5440e4569a6c5069d2d1f1642 |
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| Sumario: | In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is a possibility. Based on ethnographic work conducted in a hematology-oncology unit in a pediatric hospital in Montreal, we discuss the decision-making process during poor prognoses and the challenges of moving from a curative to a palliative therapeutic trajectory as they stem from encounters with children, parents and health care providers. We question shared decision-making (patient/family/physician) and the moral role of clinicians in a context where “spontaneous deaths” rarely occur and where the option of prolonging life at all costs competes with palliative medicine. |
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