Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais

In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Sylvie Fortin, Sabrina Lessard, Josiane Le Gall
Formato:	article
Lenguaje:	FR
Publicado:	Association Anthropologie Médicale Appliquée au Développement et à la Santé 2021
Materias:	pediatric hematology-oncology decision-making care trajectories end of life Canada/Québec Anthropology GN1-890
Acceso en línea:	https://doaj.org/article/d71af9c5440e4569a6c5069d2d1f1642
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:d71af9c5440e4569a6c5069d2d1f1642
record_format	dspace
spelling	oai:doaj.org-article:d71af9c5440e4569a6c5069d2d1f16422021-12-02T10:49:21ZEnvisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais2111-502810.4000/anthropologiesante.9819https://doaj.org/article/d71af9c5440e4569a6c5069d2d1f16422021-07-01T00:00:00Zhttp://journals.openedition.org/anthropologiesante/9819https://doaj.org/toc/2111-5028In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is a possibility. Based on ethnographic work conducted in a hematology-oncology unit in a pediatric hospital in Montreal, we discuss the decision-making process during poor prognoses and the challenges of moving from a curative to a palliative therapeutic trajectory as they stem from encounters with children, parents and health care providers. We question shared decision-making (patient/family/physician) and the moral role of clinicians in a context where “spontaneous deaths” rarely occur and where the option of prolonging life at all costs competes with palliative medicine.Sylvie FortinSabrina LessardJosiane Le GallAssociation Anthropologie Médicale Appliquée au Développement et à la Santéarticlepediatric hematology-oncologydecision-makingcare trajectoriesend of lifeCanada/QuébecAnthropologyGN1-890FRAnthropologie & Santé, Vol 23 (2021)
institution	DOAJ
collection	DOAJ
language	FR
topic	pediatric hematology-oncology decision-making care trajectories end of life Canada/Québec Anthropology GN1-890
spellingShingle	pediatric hematology-oncology decision-making care trajectories end of life Canada/Québec Anthropology GN1-890 Sylvie Fortin Sabrina Lessard Josiane Le Gall Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
description	In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is a possibility. Based on ethnographic work conducted in a hematology-oncology unit in a pediatric hospital in Montreal, we discuss the decision-making process during poor prognoses and the challenges of moving from a curative to a palliative therapeutic trajectory as they stem from encounters with children, parents and health care providers. We question shared decision-making (patient/family/physician) and the moral role of clinicians in a context where “spontaneous deaths” rarely occur and where the option of prolonging life at all costs competes with palliative medicine.
format	article
author	Sylvie Fortin Sabrina Lessard Josiane Le Gall
author_facet	Sylvie Fortin Sabrina Lessard Josiane Le Gall
author_sort	Sylvie Fortin
title	Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
title_short	Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
title_full	Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
title_fullStr	Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
title_full_unstemmed	Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
title_sort	envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
publisher	Association Anthropologie Médicale Appliquée au Développement et à la Santé
publishDate	2021
url	https://doaj.org/article/d71af9c5440e4569a6c5069d2d1f1642
work_keys_str_mv	AT sylviefortin envisagerlimprobablecontournerlinconcevablehistoiresdefindevieenhematooncologiepediatriquemontrealais AT sabrinalessard envisagerlimprobablecontournerlinconcevablehistoiresdefindevieenhematooncologiepediatriquemontrealais AT josianelegall envisagerlimprobablecontournerlinconcevablehistoiresdefindevieenhematooncologiepediatriquemontrealais
_version_	1718396619415617536

Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais

Ejemplares similares