Patient-focused pathogen genetic counselling—has the time come?

Abstract Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic...

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Autores principales: Angeline S Ferdinand, Jane S Hocking, Justin T. Denholm, Benjamin P. Howden, Deborah A. Williamson
Formato: article
Lenguaje:EN
Publicado: BMC 2021
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Acceso en línea:https://doaj.org/article/d7252f038616483aae0de99d94e682e8
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spelling oai:doaj.org-article:d7252f038616483aae0de99d94e682e82021-11-14T12:27:38ZPatient-focused pathogen genetic counselling—has the time come?10.1186/s13073-021-00993-w1756-994Xhttps://doaj.org/article/d7252f038616483aae0de99d94e682e82021-11-01T00:00:00Zhttps://doi.org/10.1186/s13073-021-00993-whttps://doaj.org/toc/1756-994XAbstract Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic results to individuals, responsible media reporting guidelines, and counselling for individuals (‘pathogen genetic counselling’).Angeline S FerdinandJane S HockingJustin T. DenholmBenjamin P. HowdenDeborah A. WilliamsonBMCarticleMedicineRGeneticsQH426-470ENGenome Medicine, Vol 13, Iss 1, Pp 1-3 (2021)
institution DOAJ
collection DOAJ
language EN
topic Medicine
R
Genetics
QH426-470
spellingShingle Medicine
R
Genetics
QH426-470
Angeline S Ferdinand
Jane S Hocking
Justin T. Denholm
Benjamin P. Howden
Deborah A. Williamson
Patient-focused pathogen genetic counselling—has the time come?
description Abstract Ensuring accordance with principles of healthcare ethics requires improved communication of pathogen genomic data. This could include educating healthcare professionals in communicating pathogen genomic information to individuals, developing ethical frameworks for reporting pathogen genomic results to individuals, responsible media reporting guidelines, and counselling for individuals (‘pathogen genetic counselling’).
format article
author Angeline S Ferdinand
Jane S Hocking
Justin T. Denholm
Benjamin P. Howden
Deborah A. Williamson
author_facet Angeline S Ferdinand
Jane S Hocking
Justin T. Denholm
Benjamin P. Howden
Deborah A. Williamson
author_sort Angeline S Ferdinand
title Patient-focused pathogen genetic counselling—has the time come?
title_short Patient-focused pathogen genetic counselling—has the time come?
title_full Patient-focused pathogen genetic counselling—has the time come?
title_fullStr Patient-focused pathogen genetic counselling—has the time come?
title_full_unstemmed Patient-focused pathogen genetic counselling—has the time come?
title_sort patient-focused pathogen genetic counselling—has the time come?
publisher BMC
publishDate 2021
url https://doaj.org/article/d7252f038616483aae0de99d94e682e8
work_keys_str_mv AT angelinesferdinand patientfocusedpathogengeneticcounsellinghasthetimecome
AT janeshocking patientfocusedpathogengeneticcounsellinghasthetimecome
AT justintdenholm patientfocusedpathogengeneticcounsellinghasthetimecome
AT benjaminphowden patientfocusedpathogengeneticcounsellinghasthetimecome
AT deborahawilliamson patientfocusedpathogengeneticcounsellinghasthetimecome
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