Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience

Introduction:Over the past decade, the global response to HIV has led to a reduction in the number of new infections, and a decrease in associated mortality. Yet, the number of people living with HIV (PLHIV) is high, with an estimated 38 million infected worldwide. As HIV shifts from being an acute...

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Autores principales:	Niki O’Brien, Y-Ling Chi, Karolin R. Krause
Formato:	article
Lenguaje:	EN
Publicado:	Ubiquity Press 2021
Materias:	Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/d82d6dec7eb145ab96ac2150377c6094
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spelling	oai:doaj.org-article:d82d6dec7eb145ab96ac2150377c60942021-12-02T13:31:37ZMeasuring Health Outcomes in HIV: Time to Bring in the Patient Experience2214-999610.5334/aogh.2958https://doaj.org/article/d82d6dec7eb145ab96ac2150377c60942021-01-01T00:00:00Zhttps://annalsofglobalhealth.org/articles/2958https://doaj.org/toc/2214-9996Introduction:Over the past decade, the global response to HIV has led to a reduction in the number of new infections, and a decrease in associated mortality. Yet, the number of people living with HIV (PLHIV) is high, with an estimated 38 million infected worldwide. As HIV shifts from being an acute terminal illness to a chronic condition, evaluating programmatic responses to HIV with sole reliance on biological markers (such as viral load or CD4 cell count) as proxies for patient health may no longer be suitable. HIV affects the lives of those infected in myriad ways which should be reflected in programme evaluations by measuring health-related quality of life, in addition to biomarkers. Discussion:In this commentary we argue that there is a pressing need to review how a “good” health outcome is defined and measured in light of care systems moving towards value-based frameworks that measure value in terms of the actual health outcomes achieved (rather than processes of care), global response shifting to providing long-term care for PLHIV in the community, and integrating HIV as part of universal health coverage plans. Efforts should be directed towards validating generic and disease specific patient reported measures of PLHIV, to identify the most suitable tools. Such efforts will ensure that patient experience is appropriately captured, especially to be used in programme or economic evaluations. Conclusions:It is only by recognising and measuring the full range of health, mental and social outcomes related to the disease that the health status of PLHIV can be fully understood.Niki O’BrienY-Ling ChiKarolin R. KrauseUbiquity PressarticleInfectious and parasitic diseasesRC109-216Public aspects of medicineRA1-1270ENAnnals of Global Health, Vol 87, Iss 1 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270
spellingShingle	Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270 Niki O’Brien Y-Ling Chi Karolin R. Krause Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience
description	Introduction:Over the past decade, the global response to HIV has led to a reduction in the number of new infections, and a decrease in associated mortality. Yet, the number of people living with HIV (PLHIV) is high, with an estimated 38 million infected worldwide. As HIV shifts from being an acute terminal illness to a chronic condition, evaluating programmatic responses to HIV with sole reliance on biological markers (such as viral load or CD4 cell count) as proxies for patient health may no longer be suitable. HIV affects the lives of those infected in myriad ways which should be reflected in programme evaluations by measuring health-related quality of life, in addition to biomarkers. Discussion:In this commentary we argue that there is a pressing need to review how a “good” health outcome is defined and measured in light of care systems moving towards value-based frameworks that measure value in terms of the actual health outcomes achieved (rather than processes of care), global response shifting to providing long-term care for PLHIV in the community, and integrating HIV as part of universal health coverage plans. Efforts should be directed towards validating generic and disease specific patient reported measures of PLHIV, to identify the most suitable tools. Such efforts will ensure that patient experience is appropriately captured, especially to be used in programme or economic evaluations. Conclusions:It is only by recognising and measuring the full range of health, mental and social outcomes related to the disease that the health status of PLHIV can be fully understood.
format	article
author	Niki O’Brien Y-Ling Chi Karolin R. Krause
author_facet	Niki O’Brien Y-Ling Chi Karolin R. Krause
author_sort	Niki O’Brien
title	Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience
title_short	Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience
title_full	Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience
title_fullStr	Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience
title_full_unstemmed	Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience
title_sort	measuring health outcomes in hiv: time to bring in the patient experience
publisher	Ubiquity Press
publishDate	2021
url	https://doaj.org/article/d82d6dec7eb145ab96ac2150377c6094
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Measuring Health Outcomes in HIV: Time to Bring in the Patient Experience

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