A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis

Purpose Bronchiectasis is a chronic respiratory disease that impacts significantly on quality of life for those who have it. There is a paucity of literature exploring the perspectives of children and young people. The aim of this study was to examine the day-to-day life experience of a group of you...

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Autores principales:	Julie Blamires, Annette Dickinson, El Shadan Tautolo, Catherine A Byrnes
Formato:	article
Lenguaje:	EN
Publicado:	Taylor & Francis Group 2021
Materias:	bronchiectasis youth interpretive description normal life Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/d8823ffcd94d4bbfbb75447f6b80f661
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spelling	oai:doaj.org-article:d8823ffcd94d4bbfbb75447f6b80f6612021-12-01T14:40:59ZA “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis1748-26231748-263110.1080/17482631.2021.2003520https://doaj.org/article/d8823ffcd94d4bbfbb75447f6b80f6612021-01-01T00:00:00Zhttp://dx.doi.org/10.1080/17482631.2021.2003520https://doaj.org/toc/1748-2623https://doaj.org/toc/1748-2631Purpose Bronchiectasis is a chronic respiratory disease that impacts significantly on quality of life for those who have it. There is a paucity of literature exploring the perspectives of children and young people. The aim of this study was to examine the day-to-day life experience of a group of young people with bronchiectasis. Method A qualitative study using semi-structured interviews explored fifteen young people’s perspectives of life with bronchiectasis. Key themes were identified using an inductive iterative approach through constant comparative analysis guided by Thorne’s interpretive description. Results Life with bronchiectasis was conceptualized by participants as “Pretty Normal”. This consisted of two co-existing life views which represented how young people balanced the ups and downs of adolescence while learning to accommodate the demands of living with bronchiectasis. Three key thematic elements “sore and tired”, ‘life interrupted and “looking after self”, influenced and challenged these two views of life. Conclusions Young people with bronchiectasis portray life as being the same as their peers. Despite this, they recognized that the symptoms, interruptions, and self-management responsibilities led them to find ways of coping and integrating their experience into a new and modified view of normal.Julie BlamiresAnnette DickinsonEl Shadan TautoloCatherine A ByrnesTaylor & Francis Grouparticlebronchiectasisyouthinterpretive descriptionnormal lifeMedicine (General)R5-920ENInternational Journal of Qualitative Studies on Health & Well-Being, Vol 16, Iss 1 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	bronchiectasis youth interpretive description normal life Medicine (General) R5-920
spellingShingle	bronchiectasis youth interpretive description normal life Medicine (General) R5-920 Julie Blamires Annette Dickinson El Shadan Tautolo Catherine A Byrnes A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis
description	Purpose Bronchiectasis is a chronic respiratory disease that impacts significantly on quality of life for those who have it. There is a paucity of literature exploring the perspectives of children and young people. The aim of this study was to examine the day-to-day life experience of a group of young people with bronchiectasis. Method A qualitative study using semi-structured interviews explored fifteen young people’s perspectives of life with bronchiectasis. Key themes were identified using an inductive iterative approach through constant comparative analysis guided by Thorne’s interpretive description. Results Life with bronchiectasis was conceptualized by participants as “Pretty Normal”. This consisted of two co-existing life views which represented how young people balanced the ups and downs of adolescence while learning to accommodate the demands of living with bronchiectasis. Three key thematic elements “sore and tired”, ‘life interrupted and “looking after self”, influenced and challenged these two views of life. Conclusions Young people with bronchiectasis portray life as being the same as their peers. Despite this, they recognized that the symptoms, interruptions, and self-management responsibilities led them to find ways of coping and integrating their experience into a new and modified view of normal.
format	article
author	Julie Blamires Annette Dickinson El Shadan Tautolo Catherine A Byrnes
author_facet	Julie Blamires Annette Dickinson El Shadan Tautolo Catherine A Byrnes
author_sort	Julie Blamires
title	A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis
title_short	A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis
title_full	A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis
title_fullStr	A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis
title_full_unstemmed	A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis
title_sort	“pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis
publisher	Taylor & Francis Group
publishDate	2021
url	https://doaj.org/article/d8823ffcd94d4bbfbb75447f6b80f661
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A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis

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