The impact of parental presence in the NICU on hospital alienation and other distress measures
Parental presence in the neonatal intensive care unit (NICU) positively impacts infant development. Few studies have examined the impact of presence on parental distress. Alienation, or lack of trust in the healthcare team, may occur independently from other forms of distress. Increased parental pre...
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The Beryl Institute
2020
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oai:doaj.org-article:d9b24cbf4971495382a803187f7dc41c2021-11-15T04:31:28ZThe impact of parental presence in the NICU on hospital alienation and other distress measures2372-0247https://doaj.org/article/d9b24cbf4971495382a803187f7dc41c2020-11-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss3/7https://doaj.org/toc/2372-0247Parental presence in the neonatal intensive care unit (NICU) positively impacts infant development. Few studies have examined the impact of presence on parental distress. Alienation, or lack of trust in the healthcare team, may occur independently from other forms of distress. Increased parental presence was hypothesized to reduce alienation by allowing for more positive in-person interaction with hospital staff. Parents of infants born < 28 weeks or < 1000 grams were prospectively enrolled and completed several surveys measuring distress prior to discharge, including a novel hospital alienation questionnaire. Spearman correlation was used to compare distress measures and visitation rates of 68 mothers and 6 fathers. Alienation was rarely reported and was uncorrelated with other distress measures. Maternal presence was most strongly correlated with anxiety, though this was not statistically significant. Fathers who were more alienated were present in the NICU less and correlation between maternal and paternal alienation was strong. These results were not statistically significant, however. Though statistically significant results were not produced in this research, hospital alienation does appear to be a distinct concept that has been unstudied previously. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>Katherine TaylorLindsey McLaughlinDevon KuehnJustin CampbellJohn KohlerJason HigginsonThe Beryl Institutearticlepatient experiencecommunicationhealthcarepatient- and family- centered carenicuneonatologyhospital alienationalienationparental distressparental presencefamily engagementMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
EN |
| topic |
patient experience communication healthcare patient- and family- centered care nicu neonatology hospital alienation alienation parental distress parental presence family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270 |
| spellingShingle |
patient experience communication healthcare patient- and family- centered care nicu neonatology hospital alienation alienation parental distress parental presence family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270 Katherine Taylor Lindsey McLaughlin Devon Kuehn Justin Campbell John Kohler Jason Higginson The impact of parental presence in the NICU on hospital alienation and other distress measures |
| description |
Parental presence in the neonatal intensive care unit (NICU) positively impacts infant development. Few studies have examined the impact of presence on parental distress. Alienation, or lack of trust in the healthcare team, may occur independently from other forms of distress. Increased parental presence was hypothesized to reduce alienation by allowing for more positive in-person interaction with hospital staff. Parents of infants born < 28 weeks or < 1000 grams were prospectively enrolled and completed several surveys measuring distress prior to discharge, including a novel hospital alienation questionnaire. Spearman correlation was used to compare distress measures and visitation rates of 68 mothers and 6 fathers. Alienation was rarely reported and was uncorrelated with other distress measures. Maternal presence was most strongly correlated with anxiety, though this was not statistically significant. Fathers who were more alienated were present in the NICU less and correlation between maternal and paternal alienation was strong. These results were not statistically significant, however. Though statistically significant results were not produced in this research, hospital alienation does appear to be a distinct concept that has been unstudied previously.
<strong>Experience Framework</strong>
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul> |
| format |
article |
| author |
Katherine Taylor Lindsey McLaughlin Devon Kuehn Justin Campbell John Kohler Jason Higginson |
| author_facet |
Katherine Taylor Lindsey McLaughlin Devon Kuehn Justin Campbell John Kohler Jason Higginson |
| author_sort |
Katherine Taylor |
| title |
The impact of parental presence in the NICU on hospital alienation and other distress measures |
| title_short |
The impact of parental presence in the NICU on hospital alienation and other distress measures |
| title_full |
The impact of parental presence in the NICU on hospital alienation and other distress measures |
| title_fullStr |
The impact of parental presence in the NICU on hospital alienation and other distress measures |
| title_full_unstemmed |
The impact of parental presence in the NICU on hospital alienation and other distress measures |
| title_sort |
impact of parental presence in the nicu on hospital alienation and other distress measures |
| publisher |
The Beryl Institute |
| publishDate |
2020 |
| url |
https://doaj.org/article/d9b24cbf4971495382a803187f7dc41c |
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