Identifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory

ObjectivesIdentifying the issues and concerns that matter most to burns survivors can be challenging. For a number of reasons, but mainly relating to patient empowerment, some of the most pressing concerns patients may have during a clinical encounter may not naturally be the focal point of that enc...

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Autores principales: Sally Spencer, John Alexander Gerald Gibson, Jeremy Yarrow, Liz Brown, Janine Evans, Simon N Rogers, Kayvan Shokrollahi
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Publicado: BMJ Publishing Group 2019
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Acceso en línea:https://doaj.org/article/e4c7a4662a7e4ff794fdf25aac3f5c15
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spelling oai:doaj.org-article:e4c7a4662a7e4ff794fdf25aac3f5c152021-11-15T19:00:04ZIdentifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory10.1136/bmjopen-2019-0327852044-6055https://doaj.org/article/e4c7a4662a7e4ff794fdf25aac3f5c152019-12-01T00:00:00Zhttps://bmjopen.bmj.com/content/9/12/e032785.fullhttps://doaj.org/toc/2044-6055ObjectivesIdentifying the issues and concerns that matter most to burns survivors can be challenging. For a number of reasons, but mainly relating to patient empowerment, some of the most pressing concerns patients may have during a clinical encounter may not naturally be the focal point of that encounter. The Patient Concerns Inventory (PCI) is a tried and tested concept initially developed in the field of head and neck cancer that empowers patients during a clinical encounter through provision of a list of prompts that allows patients to self-report concerns prior to consultation. The aim of this study was to develop a PCI for adult burns patients.DesignContent for the PCI was generated from three sources: burns health-related quality of life tools, thematic analysis of one-to-one interviews with 12 adult burns patients and 17 multidisciplinary team (MDT) members. Content was refined using a Delphi consensus technique, with patients and staff members, using SurveyMonkey.SettingWithin outpatient secondary care.ParticipantsTwelve adult burns patients and MDT members from two regional burns centres.ResultsA total of 111 individual items were generated from the three sources. The Delphi process refined the total number of items to 58. The main emergent domains were physical and functional well-being (18 items), psychological, emotional and spiritual well-being (22 items), social care and social well-being (7 items) and treatment-related concerns (11 items).ConclusionsThe Adult Burns Patient Concerns Inventory is a 58-item, holistic prompt list, designed to be used in the outpatient clinic. It offers a new tool in burn care to improve communication between healthcare professionals and patients, empowering them to identify their most pressing concerns and hence deliver a more focused and targeted patient-centred clinical encounter.Sally SpencerJohn Alexander Gerald GibsonJeremy YarrowLiz BrownJanine EvansSimon N RogersKayvan ShokrollahiBMJ Publishing GrouparticleMedicineRENBMJ Open, Vol 9, Iss 12 (2019)
institution DOAJ
collection DOAJ
language EN
topic Medicine
R
spellingShingle Medicine
R
Sally Spencer
John Alexander Gerald Gibson
Jeremy Yarrow
Liz Brown
Janine Evans
Simon N Rogers
Kayvan Shokrollahi
Identifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory
description ObjectivesIdentifying the issues and concerns that matter most to burns survivors can be challenging. For a number of reasons, but mainly relating to patient empowerment, some of the most pressing concerns patients may have during a clinical encounter may not naturally be the focal point of that encounter. The Patient Concerns Inventory (PCI) is a tried and tested concept initially developed in the field of head and neck cancer that empowers patients during a clinical encounter through provision of a list of prompts that allows patients to self-report concerns prior to consultation. The aim of this study was to develop a PCI for adult burns patients.DesignContent for the PCI was generated from three sources: burns health-related quality of life tools, thematic analysis of one-to-one interviews with 12 adult burns patients and 17 multidisciplinary team (MDT) members. Content was refined using a Delphi consensus technique, with patients and staff members, using SurveyMonkey.SettingWithin outpatient secondary care.ParticipantsTwelve adult burns patients and MDT members from two regional burns centres.ResultsA total of 111 individual items were generated from the three sources. The Delphi process refined the total number of items to 58. The main emergent domains were physical and functional well-being (18 items), psychological, emotional and spiritual well-being (22 items), social care and social well-being (7 items) and treatment-related concerns (11 items).ConclusionsThe Adult Burns Patient Concerns Inventory is a 58-item, holistic prompt list, designed to be used in the outpatient clinic. It offers a new tool in burn care to improve communication between healthcare professionals and patients, empowering them to identify their most pressing concerns and hence deliver a more focused and targeted patient-centred clinical encounter.
format article
author Sally Spencer
John Alexander Gerald Gibson
Jeremy Yarrow
Liz Brown
Janine Evans
Simon N Rogers
Kayvan Shokrollahi
author_facet Sally Spencer
John Alexander Gerald Gibson
Jeremy Yarrow
Liz Brown
Janine Evans
Simon N Rogers
Kayvan Shokrollahi
author_sort Sally Spencer
title Identifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory
title_short Identifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory
title_full Identifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory
title_fullStr Identifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory
title_full_unstemmed Identifying patient concerns during consultations in tertiary burns services: development of the Adult Burns Patient Concerns Inventory
title_sort identifying patient concerns during consultations in tertiary burns services: development of the adult burns patient concerns inventory
publisher BMJ Publishing Group
publishDate 2019
url https://doaj.org/article/e4c7a4662a7e4ff794fdf25aac3f5c15
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