Consumer representative experiences of partnership with health workers in Australia

We examine the experiences of Consumer Representatives participating in consumer engagement activities across a public health service in NSW, Australia. A team of Consumer Representatives and staff members use a participatory, constructivist paradigm and a hermeneutic phenomenological approach to an...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Coralie Wales, Judith Lababedi, Alison Coles, Philip Lee, Emma Clarke
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2021
Materias:	participant-researchers consumer representatives health consumers consumer experience consumer partnership heidegger phenomenology hermeneutic circle power imbalance respect australian national standards for quality and safety patient-centred care patient engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/e4f165efbbc341f68dfa07218962c150
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:e4f165efbbc341f68dfa07218962c150
record_format	dspace
spelling	oai:doaj.org-article:e4f165efbbc341f68dfa07218962c1502021-11-15T04:34:02ZConsumer representative experiences of partnership with health workers in Australia2372-0247https://doaj.org/article/e4f165efbbc341f68dfa07218962c1502021-11-01T00:00:00Zhttps://pxjournal.org/journal/vol8/iss3/8https://doaj.org/toc/2372-0247We examine the experiences of Consumer Representatives participating in consumer engagement activities across a public health service in NSW, Australia. A team of Consumer Representatives and staff members use a participatory, constructivist paradigm and a hermeneutic phenomenological approach to analyse ten interviews with Consumer Representatives over three years 2017-2019, and three focus groups in 2020. We explore these experiences and identify the linked contextual factors from their points of view. Consumer Representatives were prepared to invest their time, but they needed respect. “Respect” from a consumer perspective was being meaningfully included, supported and heard, and activities needed to be purposeful and relevant. They operated in a complex environment of people and systems that were sometimes frustrating and hindered partnership. Nevertheless, they were optimistic their involvement made a difference although this may take time. Using hermeneutic phenomenology enabled the results to be seen clearly after a comprehensive and highly iterative process engaging with participants-as-researchers. The results challenge the usual default position of engaging consumers in committees and reveal other opportunities to focus on patient-centred care, as mandated by Australian National Standards for hospital accreditation. Respect is identified as a practice necessary to enhance engagement. Health organisations may improve consumer engagement outcomes as mandated for accreditation by being aware of the experiences of Consumer Representatives giving their time to partner with staff members and health systems. Staff may mitigate Consumer Representative negative experiences by being mindful of the complex people and system environment within health that can impede successful engagement. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>Coralie WalesJudith LababediAlison ColesPhilip LeeEmma ClarkeThe Beryl Institutearticleparticipant-researchersconsumer representativeshealth consumersconsumer experienceconsumer partnershipheideggerphenomenologyhermeneutic circlepower imbalancerespectaustralian national standards for quality and safetypatient-centred carepatient engagementMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	participant-researchers consumer representatives health consumers consumer experience consumer partnership heidegger phenomenology hermeneutic circle power imbalance respect australian national standards for quality and safety patient-centred care patient engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	participant-researchers consumer representatives health consumers consumer experience consumer partnership heidegger phenomenology hermeneutic circle power imbalance respect australian national standards for quality and safety patient-centred care patient engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270 Coralie Wales Judith Lababedi Alison Coles Philip Lee Emma Clarke Consumer representative experiences of partnership with health workers in Australia
description	We examine the experiences of Consumer Representatives participating in consumer engagement activities across a public health service in NSW, Australia. A team of Consumer Representatives and staff members use a participatory, constructivist paradigm and a hermeneutic phenomenological approach to analyse ten interviews with Consumer Representatives over three years 2017-2019, and three focus groups in 2020. We explore these experiences and identify the linked contextual factors from their points of view. Consumer Representatives were prepared to invest their time, but they needed respect. “Respect” from a consumer perspective was being meaningfully included, supported and heard, and activities needed to be purposeful and relevant. They operated in a complex environment of people and systems that were sometimes frustrating and hindered partnership. Nevertheless, they were optimistic their involvement made a difference although this may take time. Using hermeneutic phenomenology enabled the results to be seen clearly after a comprehensive and highly iterative process engaging with participants-as-researchers. The results challenge the usual default position of engaging consumers in committees and reveal other opportunities to focus on patient-centred care, as mandated by Australian National Standards for hospital accreditation. Respect is identified as a practice necessary to enhance engagement. Health organisations may improve consumer engagement outcomes as mandated for accreditation by being aware of the experiences of Consumer Representatives giving their time to partner with staff members and health systems. Staff may mitigate Consumer Representative negative experiences by being mindful of the complex people and system environment within health that can impede successful engagement. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Coralie Wales Judith Lababedi Alison Coles Philip Lee Emma Clarke
author_facet	Coralie Wales Judith Lababedi Alison Coles Philip Lee Emma Clarke
author_sort	Coralie Wales
title	Consumer representative experiences of partnership with health workers in Australia
title_short	Consumer representative experiences of partnership with health workers in Australia
title_full	Consumer representative experiences of partnership with health workers in Australia
title_fullStr	Consumer representative experiences of partnership with health workers in Australia
title_full_unstemmed	Consumer representative experiences of partnership with health workers in Australia
title_sort	consumer representative experiences of partnership with health workers in australia
publisher	The Beryl Institute
publishDate	2021
url	https://doaj.org/article/e4f165efbbc341f68dfa07218962c150
work_keys_str_mv	AT coraliewales consumerrepresentativeexperiencesofpartnershipwithhealthworkersinaustralia AT judithlababedi consumerrepresentativeexperiencesofpartnershipwithhealthworkersinaustralia AT alisoncoles consumerrepresentativeexperiencesofpartnershipwithhealthworkersinaustralia AT philiplee consumerrepresentativeexperiencesofpartnershipwithhealthworkersinaustralia AT emmaclarke consumerrepresentativeexperiencesofpartnershipwithhealthworkersinaustralia
_version_	1718428838273220608

Consumer representative experiences of partnership with health workers in Australia

Ejemplares similares