FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS

As the results of improvements and developments conducted on the areas of health, technology, education and social security in the world, the overall lifespan was extended, mortality rate was decreased and so many problems were emerged in association with the population ageing. One of these problems...

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Autores principales:	Ümmühan KAYA UYGUN, Hasan Hüseyin TAYLAN
Formato:	article
Lenguaje:	DE EN FR TR
Publicado:	Fırat University 2019
Materias:	alzheimer caregiving primary caregiver caregiver burden Social Sciences H Social sciences (General) H1-99
Acceso en línea:	https://doaj.org/article/e984be73a2214ab0ac0a08104365389c
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spelling	oai:doaj.org-article:e984be73a2214ab0ac0a08104365389c2021-11-24T09:20:40ZFACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS2148-416310.9761/JASSS7819https://doaj.org/article/e984be73a2214ab0ac0a08104365389c2019-10-01T00:00:00Zhttps://jasstudies.com/index.jsp?mod=tammetin&makaleadi=1422161849_32-%C3%9Cmm%C3%BChan%20Kaya%20Uygun.pdf&key=28929https://doaj.org/toc/2148-4163As the results of improvements and developments conducted on the areas of health, technology, education and social security in the world, the overall lifespan was extended, mortality rate was decreased and so many problems were emerged in association with the population ageing. One of these problems is currently incurable Alzheimer disease which is named to be a disease of elderly people. It has been estimated that the number of the Alzheimer patients are 46.8 million in the world and over 400.000 – 450.000 in Turkey. According to the data provided by the Turkish Statistical Institute, the mortality rate due to the Alzheimer disease was 2.9% in 2011 and increased to 4.3% in 2015. The disease causes cognitive, emotional and physical loses in patients and, as the diseases progresses, the dependency of patients increase. Different progresses at each patients, lack of psychological and behavioural symptoms as well as its being currently incurable make this disease difficult to distinguish from the others. It is a gospel truth that the Alzheimer disease will become more widespread in the forthcoming years and the care of Alzheimer disease is very difficult, abrasive and exhausting, and moreover, the responsibility of caregiver increases as the disease progresses. The aim of this study is to investigate the factors affecting the responsibilities of family members providing primary caregiving to Alzheimer patients. A quantitative research design was applied in this study. Sampling group of this study is constituted by 108 patient’s relative who have direct responsibility of caregiving to Alzheimer disease patients resident in the city of Sinop. “Caregiver Burden Inventory”, which was developed by Novak and Guest in 1989 and whose reliability and effectiveness for Turkish society realised by Küçükgüçlü in 2004, was applied in the scope of this research study. At the end of this research study, it was found that the most of the caregivers were women (74.1%), married (81.5%), at the ages of between 45 and 64 (64.8%) and the daughter of patient (43.5%), 50% of the caregivers had “a sense of family responsibility”, 67.6% needed help on “accompaniment”, 49.1% had health problems due to caregiving and finally 43.5% had psychiatric illnesses who declared health problems. It was determined that there was no statistically significant difference between the “Caregiver Burden Scale” and marital status, number of children, family structure, degree of relationship with the patient and whether receiving any payment while there was statistically significant difference between “Caregiver Burden Scale” and the age, sex, employment status, income status, duration of disease and daily caregiving period (hours).Ümmühan KAYA UYGUNHasan Hüseyin TAYLANFırat Universityarticlealzheimercaregivingprimary caregivercaregiver burdenSocial SciencesHSocial sciences (General)H1-99DEENFRTRJournal of Academic Social Science Studies , Vol 11, Iss 71, Pp 513-531 (2019)
institution	DOAJ
collection	DOAJ
language	DE EN FR TR
topic	alzheimer caregiving primary caregiver caregiver burden Social Sciences H Social sciences (General) H1-99
spellingShingle	alzheimer caregiving primary caregiver caregiver burden Social Sciences H Social sciences (General) H1-99 Ümmühan KAYA UYGUN Hasan Hüseyin TAYLAN FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS
description	As the results of improvements and developments conducted on the areas of health, technology, education and social security in the world, the overall lifespan was extended, mortality rate was decreased and so many problems were emerged in association with the population ageing. One of these problems is currently incurable Alzheimer disease which is named to be a disease of elderly people. It has been estimated that the number of the Alzheimer patients are 46.8 million in the world and over 400.000 – 450.000 in Turkey. According to the data provided by the Turkish Statistical Institute, the mortality rate due to the Alzheimer disease was 2.9% in 2011 and increased to 4.3% in 2015. The disease causes cognitive, emotional and physical loses in patients and, as the diseases progresses, the dependency of patients increase. Different progresses at each patients, lack of psychological and behavioural symptoms as well as its being currently incurable make this disease difficult to distinguish from the others. It is a gospel truth that the Alzheimer disease will become more widespread in the forthcoming years and the care of Alzheimer disease is very difficult, abrasive and exhausting, and moreover, the responsibility of caregiver increases as the disease progresses. The aim of this study is to investigate the factors affecting the responsibilities of family members providing primary caregiving to Alzheimer patients. A quantitative research design was applied in this study. Sampling group of this study is constituted by 108 patient’s relative who have direct responsibility of caregiving to Alzheimer disease patients resident in the city of Sinop. “Caregiver Burden Inventory”, which was developed by Novak and Guest in 1989 and whose reliability and effectiveness for Turkish society realised by Küçükgüçlü in 2004, was applied in the scope of this research study. At the end of this research study, it was found that the most of the caregivers were women (74.1%), married (81.5%), at the ages of between 45 and 64 (64.8%) and the daughter of patient (43.5%), 50% of the caregivers had “a sense of family responsibility”, 67.6% needed help on “accompaniment”, 49.1% had health problems due to caregiving and finally 43.5% had psychiatric illnesses who declared health problems. It was determined that there was no statistically significant difference between the “Caregiver Burden Scale” and marital status, number of children, family structure, degree of relationship with the patient and whether receiving any payment while there was statistically significant difference between “Caregiver Burden Scale” and the age, sex, employment status, income status, duration of disease and daily caregiving period (hours).
format	article
author	Ümmühan KAYA UYGUN Hasan Hüseyin TAYLAN
author_facet	Ümmühan KAYA UYGUN Hasan Hüseyin TAYLAN
author_sort	Ümmühan KAYA UYGUN
title	FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS
title_short	FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS
title_full	FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS
title_fullStr	FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS
title_full_unstemmed	FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS
title_sort	factors affecting the care burden of family members providing primary caregiving to alzheimer patients
publisher	Fırat University
publishDate	2019
url	https://doaj.org/article/e984be73a2214ab0ac0a08104365389c
work_keys_str_mv	AT ummuhankayauygun factorsaffectingthecareburdenoffamilymembersprovidingprimarycaregivingtoalzheimerpatients AT hasanhuseyintaylan factorsaffectingthecareburdenoffamilymembersprovidingprimarycaregivingtoalzheimerpatients
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FACTORS AFFECTING THE CARE BURDEN OF FAMILY MEMBERS PROVIDING PRIMARY CAREGIVING TO ALZHEIMER PATIENTS

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