The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda

<p>Background</p><p>The severe deficit of health care workers in Uganda necessitates hospitalized patients to be cared for by a relative. These informal caregivers constitute a crucial component of patient care. Mulago Hospital in Kampala, Uganda, is one of the nation's nation...

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Autores principales:	Mitra Sadigh, Faith Nawagi, Majid Sadigh
Formato:	article
Lenguaje:	EN
Publicado:	Ubiquity Press 2017
Materias:	patient care attendant informal caregiver human resource limitation caregiver economic burden caregiver emotional challenges resource-limited settings health inequity healthcare delivery Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/ee220e43258849a7ade3227bc952de78
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spelling	oai:doaj.org-article:ee220e43258849a7ade3227bc952de782021-12-02T04:01:29ZThe Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda2214-999610.1016/j.aogh.2016.06.005https://doaj.org/article/ee220e43258849a7ade3227bc952de782017-03-01T00:00:00Zhttps://annalsofglobalhealth.org/articles/715https://doaj.org/toc/2214-9996<p>Background</p><p>The severe deficit of health care workers in Uganda necessitates hospitalized patients to be cared for by a relative. These informal caregivers constitute a crucial component of patient care. Mulago Hospital in Kampala, Uganda, is one of the nation's national referral hospitals, receiving very sick patients. Although studies have been conducted on challenges facing informal caregivers in the home setting, no study has addressed the caregiver burden in the hospital setting.</p><p>Methods</p><p>A survey of 100 randomly selected informal caregivers was conducted in Mulago Hospital's internal medicine wards to evaluate informal caregivers' demographics, impact on patient care, and challenges.</p><p>Results</p><p>Challenges include emotional burdens, lack of sanitation, accommodation, sufficient health workers, finances, and recognition. Recommendations were given to ensure improve informal caregivers' situations.</p><p>Conclusions</p><p>Despite hardships, informal caregivers recognize the importance of familial presence, thereby setting a new standard for patient care by recreating the comfort of home care in the hospital. Studying the characteristics of these care givers and more fully delineating the sacrifices they make and the challenges they faced provides the basis for a series of recommendations to hospital management aimed both at improved patient care and care of the informal caregiver.Mitra SadighFaith NawagiMajid SadighUbiquity Pressarticlepatient care attendantinformal caregiverhuman resource limitationcaregiver economic burdencaregiver emotional challengesresource-limited settingshealth inequityhealthcare deliveryInfectious and parasitic diseasesRC109-216Public aspects of medicineRA1-1270ENAnnals of Global Health, Vol 82, Iss 5, Pp 866-874 (2017)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient care attendant informal caregiver human resource limitation caregiver economic burden caregiver emotional challenges resource-limited settings health inequity healthcare delivery Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270
spellingShingle	patient care attendant informal caregiver human resource limitation caregiver economic burden caregiver emotional challenges resource-limited settings health inequity healthcare delivery Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270 Mitra Sadigh Faith Nawagi Majid Sadigh The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda
description	<p>Background</p><p>The severe deficit of health care workers in Uganda necessitates hospitalized patients to be cared for by a relative. These informal caregivers constitute a crucial component of patient care. Mulago Hospital in Kampala, Uganda, is one of the nation's national referral hospitals, receiving very sick patients. Although studies have been conducted on challenges facing informal caregivers in the home setting, no study has addressed the caregiver burden in the hospital setting.</p><p>Methods</p><p>A survey of 100 randomly selected informal caregivers was conducted in Mulago Hospital's internal medicine wards to evaluate informal caregivers' demographics, impact on patient care, and challenges.</p><p>Results</p><p>Challenges include emotional burdens, lack of sanitation, accommodation, sufficient health workers, finances, and recognition. Recommendations were given to ensure improve informal caregivers' situations.</p><p>Conclusions</p><p>Despite hardships, informal caregivers recognize the importance of familial presence, thereby setting a new standard for patient care by recreating the comfort of home care in the hospital. Studying the characteristics of these care givers and more fully delineating the sacrifices they make and the challenges they faced provides the basis for a series of recommendations to hospital management aimed both at improved patient care and care of the informal caregiver.
format	article
author	Mitra Sadigh Faith Nawagi Majid Sadigh
author_facet	Mitra Sadigh Faith Nawagi Majid Sadigh
author_sort	Mitra Sadigh
title	The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda
title_short	The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda
title_full	The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda
title_fullStr	The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda
title_full_unstemmed	The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda
title_sort	economic and social impact of informal caregivers at mulago national referral hospital, kampala, uganda
publisher	Ubiquity Press
publishDate	2017
url	https://doaj.org/article/ee220e43258849a7ade3227bc952de78
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The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda

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